Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Doc In Kansas City?


*Daniella*

Recommended Posts

*Daniella* Apprentice

Greetings!

I just recently moved to the Kansas City area. Can anybody recommend a good celiac doctor? Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jennyj Collaborator

I do not know one but I do want to watch responses due to the fact I live only an hour east of KC and would like to find one also. My general PCP is great but said that I should probably find someone who is a specialst in this area. Good luck and welcome to the area.

*Daniella* Apprentice
I do not know one but I do want to watch responses due to the fact I live only an hour east of KC and would like to find one also. My general PCP is great but said that I should probably find someone who is a specialst in this area. Good luck and welcome to the area.

Where are you from? I live an hour East of KC. I'm stationed at Whiteman AFB.

jennyj Collaborator
Where are you from? I live an hour East of KC. I'm stationed at Whiteman AFB.

I live in Slater.

  • 2 weeks later...
SalmonNationWoman Newbie

Right now I'm temporarily living in Johnson Co. and have yet to find a gastroenterologist as I self-diagnosed (I'm a DC, NMD, MSTCM, CMT). I'm sure you could find out some good info from some of the members of the local CSA chapter. Open Original Shared Link

The local chapter of CSA for KC meets on Sunday, April 26th at 2PM. We meet at St. Joseph's Hospital, building D- Community Center auditorium. If you want to attend, here's the exact address so you can plug it in to your GPS or mapquest.

St. Joseph Health Center, 1000 Carondelet Drive , Kansas City , Missouri 64114 . (near I-435 and State Line) Community Center (Building D), Alex George Auditorium.

  • 1 month later...
lisa25 Rookie

I don't have a celiac doctor and have not been officially diagnosed, but with great results from the diet, I would not go back to eating gluten, dairy, or soy. My mother-in-law is a diagnosed celiac by blood test and biopsy. Her doctor is Dr. Buser (in Kansas City). She said he is very knowledgeable about celiac and she would definitely recommend him. I don't have a phone number now, but if you are interested let me know and I can find that out from her.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,203
    • Most Online (within 30 mins)
      7,748

    Sarahmegan
    Newest Member
    Sarahmegan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.