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Diagnosed Today


mikehall117

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mikehall117 Rookie

I saw the doctor today and based on my symptoms and the extensive history I was able to provide she was confident that she could diagnose Celiac disease, despite having negative blood work. I am being referred to a gastroenterologist for a more expert opinion and advice, however at present my doctor doesn


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jerseyangel Proficient

Welcome Mike! :D

Your doctor sounds very sensible--now you can get started on that happy, healthy life! Let us know what we can do to help. :)

whitball Explorer

I'm glad that you have a doc that listened and did not treat you like you were crazy! Welcome to the forum.

ang1e0251 Contributor

Welcome to the Forum! You have a great dr! You will feel much better soon! Ask anything you need to and someone will be able to help.

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    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
    • trents
      @JettaGirl, "Coeliac" is the British spelling of "celiac". Same disease. 
    • JettaGirl
      This may sound ridiculous but is this supposed to say Celiacs? I looked up Coeliacs because you never know, there’s a lot of diseases related to a disease that they come up with similar names for. It’s probably meant to say Celiacs but I just wanted to confirm.
    • JoJo0611
      I was told it was to see how much damage has been caused. But just told CT with contrast not any other name for it. 
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