Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Can You Be Sure What Is Ccing You?


foodiegurl

Recommended Posts

foodiegurl Collaborator

I have read many posts where people are positive they are being CC with something that touched something else...a utensil, something that may not have been cleaned, a food item that was supposed to be gluten-free, etc...

What I am wondering is how are you able to pin it down??

I was just thinking as I go about my day, if I did feel glutened, how would I ever nail it down?

Just curious.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SGWhiskers Collaborator
I have read many posts where people are positive they are being CC with something that touched something else...a utensil, something that may not have been cleaned, a food item that was supposed to be gluten-free, etc...

What I am wondering is how are you able to pin it down??

I was just thinking as I go about my day, if I did feel glutened, how would I ever nail it down?

Just curious.

I'm one of the people always freaking out about CC. I have a running list of suspicions, and when the same thing keeps popping up, I do a challenge. For example, I seem to be the rare celiac who can't tolerate the smell of gluten. I repeatedly got sick on Sundays. I figured out that I started feeling bad at the grocery store and tested out my theory 2 additional weeks. Then I asked hubby to do the grocery shopping for a few weeks. (He's great!) I'm not getting sick on the weekend anymore. I'm supposed to give the grocery store a test this weekend if I get the nerve.

Most of the time, I just have to deal with the fact that I'll never know what got me. Keeping that mental list has helped narrow down the following culprits though.

bbq grill, finger food, birdseed, hubby gluten, lotion, nail biting, inhaled gluten.

These are the items currently running around my suspicious list:

sharing gluten free serving platters with non celiacs, that darn bowl hubby might have contaminated, the soap at work, the corn chips and cereal I love.

NorthernElf Enthusiast

Most of the time I can figure it out - it takes a bit of sleuthing. I don't know what I would do without the internet - it's so easy to look up ingredients and visit forums such as this to find answers or ask questions. I can detail my home for the best gluten avoiding strategies I can, but it's mostly away from my home that I get "got". My best strategy is to just eat my own food. Basically anything with "natural flavors" is suspect. Food from other people can be suspect. Someone at work made gluten free cupcakes and I didn't even have one...at home I have my own muffin tins, cutting boards, etc.

There have been some glutenings I haven't figured out though.

Zachnap Newbie

It is tough and I believe that most of my problems are due to this as my reactions now are very minor but present - meaning I am coming in contact with gluten but very, very small amounts.

Dishes and silverware from the dishwasher. What do you think happens to the gluten that is on the stuff before it goes in the dishwasher? Answer: it goes into solution with the dish water and then dries onto the dishes and silverware. Make sure you rinse everything off with soap and water before using it even though it has already been washed. Forks: forks collect dried food particles between the prongs and I am always having to scrape it off even though it is difficult to notice it is there.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,761
    • Most Online (within 30 mins)
      7,748

    Manuel
    Newest Member
    Manuel
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      For back pain, I take a combination of Cobalamine B12, Pyridoxine B 6, and Thiamine B 1 (in the form Benfotiamine), which have an analgesic effect.  These three B vitamins together work way better than those over the counter pain relievers.  Theses are water soluble B vitamins that are easily excreted via the kidneys if not needed.  Thiamine will also help the nausea. Interesting Reading... Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/#:~:text=Some of these processes include,Analgesics
    • knitty kitty
      @stephaniekl, welcome to the forum, Is your daughter taking any nutritional supplements?   Weight loss and failure to thrive are two symptoms of thiamine insufficiency.  Thiamine deficiency symptoms are not recognized as such by doctors.   I experienced similar symptoms when I became malnourished.  Thiamine deficiency symptoms can become worse quickly, and can affect one emotionally and mentally.  Although blood tests for thiamine aren't accurate, do have your daughter checked for nutritional deficiencies.  Thiamine B 1 works with the other B vitamins and magnesium.  Thiamine and Niacin B 3 help improve Gerd.  All the B vitamins are frequently low due to malabsorption.  Vitamin D will help calm the immune system.  Thiamine helps the immune system fight off viruses like those tick borne illnesses.   Thiamine Mononitrate, which is in many vitamin supplements, is not bioavailable.  I was taking a multivitamin containing thiamine mononitrate and still became deficient in thiamine. Thiamine in the form Benfotiamine has been shown to promote intestinal healing.  A form called TTFD (tetrahydrofurfuryl disulfide) is also excellent for correcting thiamine deficiency.  A combination of Thiamine, Cobalamine B12, and Pyridoxine B 6 has analgesic properties.  I take it for back pain.   Keep us posted on your progress! Interesting Reading... The importance of thiamine (vitamin B1) in humans https://pmc.ncbi.nlm.nih.gov/articles/PMC10568373/#:~:text=Thiamine absorption in the jejunum,system [51–53].
    • trents
      Has prednisone or some other systemic steroid been tried that might quiet her immune system down for a while? I have two acquaintances with Lyme's disease. It is a wicked condition that has long fingers.
    • stephaniekl
      We have.  She is so limited as to what she can eat.  She has a nutritionist, but they are even at a loss.  Right now, her pain is so significant that she can only eat 5-10 bites a meal.   We just got some labs back today and she is hypoglycemia, anemic and her immune system is shot.  She also is positive for 3 tickborne illnesses.  Thanks for your help! 
    • RMJ
      A much better suggestion than that of the new doctor!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.