Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

7yr Old Daughter Has Symptoms


Wispyshadow

Recommended Posts

Wispyshadow Rookie

I'm really concerned because my daughter just had a check-up and she has dropped from the 75th percentile in height down to below the 3rd percentile. She has always been very thin, she only weighs 37lbs. and has weighed that amount for a year now. She is 7 years old and I am really worried and her pediatrician is concerned that she isn't growing at a normal rate. She also complains of stomach pain daily and says her legs and feet are sore. Each thing has always been addressed seperately and just today I started putting the whole picture together. THey did test her at the pediatricians office for anemia and never called me back with results so I assume that it was normal. I feel that I should push the pediatrician to test her further to see if celiac disease is the culprit. My mother keeps pushing me to just forgoe the Dr. and just go gluten-free without a diagnosis. My insurance will pay for everything and it would be much more helpful to have a diagnosis but I'm really not sure if the Dr. will take this seriously if just blow it off. Any opinions or help would be appreciated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Hi, and welcome to the forum.

I would definitely call the pediatrician and get the results of the test; you should always follow up on results, sometimes they are overlooked. If they were normal then I would request further exploration of why she is not growing because this is a serious issue; express your concern. If you get no joy from him, is there another doctor the family uses who could help? Maybe discuss it with the pediatrician for you. Is there another pediatrician in your area that your insurance covers? Do you have to get HMO referral? Before just going gluten free I think you should push the doctors further.

Wispyshadow Rookie

Thanks for the suggestions. It really is hard right now because due to the holiday all the Dr. offices are closed and she still never called me back yesterday. I started really piecing things together last night and thinking back to when she was a baby. I had another ped in another state where we lived test her stool for fat malabsorption but said she couldn't have celiac disease because she didn't have a big swollen abdomen and the only case he had ever seen that was what they looked like. I had never heard of celiac disease and really had no idea and just had to take the dr's word for it and we just wrote it off that she was just a small child. She has always had either loose stools or constipation and the dr's have just really written it off as just not a big deal. She has been on colace and had to take children's immodium off and on enough that I keep it stocked in the medicine cabinet and she is used to it and asks me for the one she needs when she starts having issues. From looking back and piecing everything together she has been dealing with this since she started eating regular food. I didnt' notice much when she was a baby I'm guessing because I made all of her babyfood from fresh fruits and vegetables at home. I feel so bad that I missed it.

:D:D Good news!! The pediatricians office just called me and wants to see my daughter. She has another appt on Wed next week. Say prayers that we get some supportive answers and help!!!

ang1e0251 Contributor

I'll be thinking of you. Tell the dr you want a full celiac panel run. Listen to what he says but don't take no for an answer. THe old dr may have seen more celiac children, he just didn't recognize it.

mushroom Proficient

I am so glad that you got a response. I agree with Angle that you need to have him run the full celiac panel. I do hope that you get some help and answers.

Wispyshadow Rookie

We went and had blood drawn today and our new pediatrician is really taking this all very seriously. I feel really good about how we are being treated. She is running a full celiac panel, thyroid panel, liver panel, and some other blood tests. She told me she doesn't want to leave a stone unturned. We should have results back by early next week.

mushroom Proficient
We went and had blood drawn today and our new pediatrician is really taking this all very seriously. I feel really good about how we are being treated. She is running a full celiac panel, thyroid panel, liver panel, and some other blood tests. She told me she doesn't want to leave a stone unturned. We should have results back by early next week.

Great news!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - MauraBue posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Have Tru Joy Sweets Choco Chews been discontinued??

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      how much gluten do I need to eat before blood tests?

    3. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

    4. - knitty kitty replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

    5. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,260
    • Most Online (within 30 mins)
      7,748

    MauraBue
    Newest Member
    MauraBue
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • MauraBue
      Help!  My 5 year old daughter just stopped eating dairy and gluten due to her EoE and Celiac.  Her favorite candy in the world is tootsie rolls.  I did some research, and it sounds like these are the only options for finding something similar, but I can't find them anywhere to actually purchase.  Have they been discontinued??  Does anyone have another recommendation for a gluten-free/DF tootsie roll option?
    • catnapt
      I wonder how long it usually takes and if it is dose dependent as well... or if some ppl have a more pronounced reaction to gluten than others   thanks again for all the great info    
    • suek54
      Wow KK, thank you so much for all your attached info. I had a very quick scan but will read more in depth later.  The one concerning corticosteroid use is very interesting. That would relate to secondary adrenal insufficiency I think , ie AI caused by steroids such as taken long term for eg asthma. I have primary autoimmune AI, my adrenals are atrophied, no chance if recovery there. But I am in touch with some secondaries, so something to bear in mind. .  Niacin B3 Very interesting too. Must have a good read about that.  Im sure lots of questions will arise as I progress with dermatitis herpetiformis. In the mean time, thanks for your help.
    • knitty kitty
      Welcome to the forum, @suek54, I have Dermatitis Herpetiformis, too.  I found taking Niacin B3 very helpful in clearing my skin from blisters as well as improving the itchies-without-rash (peripheral neuropathy).  Niacin has been used since the 1950's to improve dermatitis herpetiformis.   I try to balance my iodine intake (which will cause flairs) with Selenium which improves thyroid function.   Interesting Reading: Dermatitis herpetiformis effectively treated with heparin, tetracycline and nicotinamide https://pubmed.ncbi.nlm.nih.gov/10844495/   Experience with selenium used to recover adrenocortical function in patients taking glucocorticosteroids long https://pubmed.ncbi.nlm.nih.gov/24437222/   Two Cases of Dermatitis Herpetiformis Successfully Treated with Tetracycline and Niacinamide https://pubmed.ncbi.nlm.nih.gov/30390734/   Steroid-Resistant Rash With Neuropsychiatric Deterioration and Weight Loss: A Modern-Day Case of Pellagra https://pmc.ncbi.nlm.nih.gov/articles/PMC12532421/#:~:text=Figure 2.,(right panel) upper limbs.&text=The distribution of the rash,patient's substantial response to treatment.   Nicotinic acid therapy of dermatitis herpetiformis (1950) https://pubmed.ncbi.nlm.nih.gov/15412276/
    • suek54
      Thank you all for your advice and the dermatitis herpetiformis article. The latter made me realise I had stopped taking my antihistamine, which I will restart today. The Dapsone has cleared the rash entirely but I still get quite a bit itching, absolutely nothing to see though. I know its notoriously hard to clear and its still relatively early days for me.  The iodine issue is very interesting. I do eat quite a bit of salt because I have Addison's disease and sodium retention is an issue. I also have autoimmune hypothyroidism, not sure how a low iodine diet would play into that? Because of my Addison's I am totally steroid dependent, I take steroids 4 x daily and cannot mount any defence against inflammation. I need to increase my meds for that. Now that I know what is wrong I can do just that if Im having a bad day. Life is very sweet, just so damn complicated sometimes! Hey ho, onwards. Thank you again for your advice.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.