Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Desparate And Itching Again


skyyblues

Recommended Posts

skyyblues Newbie

Hello - I am desparate and hoping to find answers.....

Symptoms: Dishydrotic Exzema - Mainly hands but also arms, legs, chest, and recently face.

Diarrhea - 10 - 15min after eating - sometimes stabbing pains

Arthritis in knee

Leg cramps

Throat closes - Occaisonally happens when swallowing (unknown trigger)

Steroids: Prednisone - Nov and Dec 08 / Apr 09

Kenalog - Shots 2x in Jan 09

Medications: Omeprazole 20mg 2x day - Indestion 3/09

Simvastin 40 mg 1 day - Cholestoral 3/09

Ranitidine 150mg 2x day - trying to reduce acid in body to help exzema

Fexofenadine 180mg 2x day - allergy symptoms exzema

Singular 10mg 1 day - allergy symptoms exzema

Hydroxyzine 10mg up to 3 at bedtime - for severe itching at night to sleep

Benadryl - itching

I had some allergies as a child. Exzema on back of thighs never diagnosed cleared up. 2 1/2 yrs ago while changing jobs had new carpet and linoleum installed at which time I started to break out on legs and hands, spreading to arms. Kept seeing dr's none of which had any clue. June 07 had allergy tests which showed cabbage, formaldehyde, and several other perservatives. Got allergy somewhat under control in 08 until I had a root canal in Sept. Started to break out again. Allergy doc put me on prednisone(hate it). Had severe breakout and staph infection on hand in Jan. At that time they did a biopsy of my hand and I just inquired and it was not DH. Had just finished prednisone so they shot me with kenalog twice within a week and a half. Hands got somewhat better. March thighs broke out, hands worse, arms and chest also broke out. Saw my GP for regular check up and when he saw me he asked if anyone ever tested for Celiac Sprue. I said no, so he ordered blood tests. I did research. Wow could this be it??? Blood tests came back negative, but told that can happen (would steroids affect test results?). Doc said go ahead and try gluten free. Stomach is better than it has ever been!! Yeah. Was out of town 1st week of gluten free and arms and legs started to fade and couldn't see new blisters on hands!! On Thurs nite eye itching. Friday still itching starts swelling.... Friday nite when lips started to numb went to ER. Prednisone and Benadryl again... I am weaning off prednisone as quickly as possible and doc has sent me for consult with Gastro doc to do enoscopy for biopsy. I know I will have to go back to eating "poison" for correct testing. Thought of running to bathroom with pain not pleasant but I am willing to do anything at this point.

I am sorry for such a long post but am feeling at my wits end. Doctors call me a freak, friends and family are somewhat supportive but think I am just going to get a shot and be fine. My hands are cycling horribly, my thighs are broke out a little and I just want to cry at my own private pity party..... :( ......Any suggestions or help would be greatly appreciated.

Becky - Racine, WI


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ang1e0251 Contributor

You are Not a freak. You are sick. People, dr's included, are judgemental. Gluten can cause all the symptoms you described. It might not be your only problem but your dietary response is dramatic. It is affecting you.

Keep us posted. No one else might understand but we do.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - yellowstone posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Cold/flu or gluten poisoning?

    2. - Churro replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

    3. - Wheatwacked replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

    4. - trents replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,062
    • Most Online (within 30 mins)
      7,748

    JTL1976
    Newest Member
    JTL1976
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • yellowstone
      Cold/flu or gluten poisoning? Hello. I've had another similar episode. I find it very difficult to differentiate between the symptoms of a cold or flu and those caused by gluten poisoning. In fact, I don't know if my current worsening is due to having eaten something that disagreed with me or if the cold I have has caused my body, which is hypersensitive, to produce symptoms similar to those of gluten poisoning.        
    • Churro
      I'm no longer dealing with constipation. I got my liver test last month and it was in normal range. Two years ago I did have a vitamin D deficiency but I'm know taking vitamin D3 pills. Last month I got my vitamin D checked and it was in normal range. I don't believe I've had my choline checked. However, I do drink almond milk eat Greek yogurt on a daily basis. 
    • Wheatwacked
      Non-Celiac Gluten Sensitivity (NCGS) can be associated with low ferritin and iron deficiency. Once Celiac Disease (1% of the population affected) has been ruled out by tests the next step is to check for Non Celiac Gluten Sensitivity (10% of the population affected) by eliminating gluten for a trial period, then re-introduce Gluten Challange. Have you been supplementing Iron? How are your liver enzymes? Low levels of ferritin indicate iron deficiency, while  59% transferrin saturation indicates high iron levels.  Possibly indicating Fatty Liver Disease.  Choline is crucial for liver health, and deficiency is a known trigger for Non-Alcoholic Fatty Liver.  Some experts say that less than 10% eat the the Food and Nutrition Board established Adequate Intake that are based on the prevention of liver damage. Severe constipation and hemorrhoids may be linked to a bile or choline deficiency.  "Ninety-five percent of phospholipids (PLs) in bile is secreted as phosphatidylcholine or lecithin."  Fatty acid composition of phospholipids in bile in man   Deficiency of these bile salts causes the bile to get thick. Some people with Celiac Disease are misdiagnosed with Gall Bladder bile issues.  Removal of the gallbladder provides only temporary relief. Whether or not celiac disease or NCGS are your issues you need to look at your vitamin D blood level.   
    • Churro
      Thanks for your input. 
    • trents
      If you have hemorrhoids 1x weekly I don't see how you have time to heal from one episode before you experience another one, unless each one is a very minor event. Have you consulted a physician about your hemorrhoid issue? It's not normal to be having an episode every week unless it is really one episode that is not completely healing between weekly flareups.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.