Feeling Like Youre In A Dream?

[HelpinOhio]

Before you were diagnosed with Celiac Disease and went on a gluten free diet, did you ever feel like you were in a dream? or that life just didnt feel real?

Im not talking about a good feeling, Im talking about like in a bad dream or a nightmare that you cant wake up from while your life wastes away. I havent been officially diagnosed yet, so Im still eating a lot of gluten and I feel like this sometimes. Its like sleepwalking, or being half asleep.

Its almost all the time for me, but sometimes more intense than others. Theres a lot of times specifically that I remember when I actually thought I was dreaming, I thought I was going to wake up and never did. I remember I went on a supposed vacation, and the whole time I was there it felt like I was dreaming, but no matter how hard I tried I couldnt wake up or shake that feeling. Then theres the times that I felt like I was the only real person, and everybody else was fake and just put there for me to test me maybe. I find myself shocked at my life thinking things like "Who am I?", "How am I 18 already?", "Everybody looks different", "This cant be real", "Is this really me?". A lot of times when I wake up I forgot who I am or am shocked when the memories come back and think this must be a dream.

Anyone ever feel like that before or have a similar experience? Did it go away after you went on a completely gluten free diet?

[digmom1014]

This sounds like the brain fog I have felt most of my life. I actually have "pretended" to remember funny situations or gatherings, that I have no memory of taking place. I truely don't remember my honeymoon in Aruba!!

When I went totally gluten-free, I was able to remember things that have happened since going gluten-free but, the previous memories have not returned from b-4 diagnosis. I hope you are different.

You are young enough that you will remember a lot of important events, and I am glad for you. Are you awaiting a diagnosis before going gluten-free? After you try being totally gluten-free for a week, you may notice an improvement in the memory area.

Good Luck!

P.S. Also see the brain fog thread that is going on now or search brain fog.

[Lexi]

My life has felt like a bad dream ever since I got my Celiac Disease Diagnosis - I wish I could wake up!

[DingoGirl]

Anyone ever feel like that before or have a similar experience? Did it go away after you went on a completely gluten free diet?

Yes,

and

Yes. I was in a fog for the better part of 44 years. It didn't manifest quite the same as yours, but it was extremely awful, and I lost decades.

Stay strong, and hold on.....when are you planning on going gluten-free? Are you awaiting an official diagnosis?

Your life will change dramatically on a gluten-free diet. Just watch and see.

Gluten is an opioid polypeptide - google that and see what you find. It will make more sense to you then.

Let us know how things go!

[HelpinOhio]

For those who are wondering, Im going to be eating gluten at least until I get the last test done. Its the upper endoscopy in a few days.

I felt like I would give the official diagnosis one real try before going completely gluten free. I feel the actual diagnosis would make things a lot easier for me as far as it being official and people believing me and supporting me. Ive been eating a lot of gluten for nearly 2 months now (before that I had still been eating gluten normally for 6 months), and I got the blood tests for Celiac Disease done about a month ago, it came back negative. I have an upper endoscopy about 4 days from now.

Im hoping to get the positive diagnosis for that, but if I dont theres nothing else I can do get the actual diagnosis because I would have already had the blood tests done and the endoscopy. Whether it comes back positive or negative, I will be going gluten free as soon as I get the results back from it. So if all goes well, I should start my gluten free diet within 1 month from now. Im very much looking forward to it, getting the actual diagnosis would have just been a bonus for me, but I dont really need it. Im 95% sure that I do have Celiac Disease.