Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pernicious Anemia


prayin4achange

Recommended Posts

prayin4achange Newbie

I was just wondering if anyone on here has pernicious anemia and if you do.. how did you find out? I have a lot of the symptoms and would like to look further into it. Thanks! :)

Jenn


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

There are folks here who have PA but there are lots more who are B12 deficient because of the damage from the celiac. Your doctor can test you for PA and can also test your B12 levels. Many of us benefit from sublingual B12 taken daily even without having PA which is a failure of your body to produce something called the intrinsic factor.

gfb1 Rookie
I was just wondering if anyone on here has pernicious anemia and if you do.. how did you find out? I have a lot of the symptoms and would like to look further into it. Thanks! :)

Jenn

only adding to rwg's response... in general, B12 deficiencies are not common among RECOVERING celiacs on a gluten free (gluten-free) diet. however, undiagnosed/gluten-consuming celiacs commonly have B12 deficiencies due to malabsorption.

so... depending on where you are in the spectrum, you may be B12 deficient, or not. it is more likely, among recovering gluten-free celiacs that you would be B6 or folate deficient (since gluten-free foods tend to be deficient in these vitamins/cofactors...).

btw -- i dislike the terms 'common' or 'uncommon'; lets say (among friends) B12 deficiencies are >95% more likely among non-gluten-free celiacs and 95% celiacs recover from B12 deficiency amongst recovering gluten-free celiacs.... it may or may not refer to you specifically. just if you fall into those particular /dustbins/.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,031
    • Most Online (within 30 mins)
      7,748

    Julie433
    Newest Member
    Julie433
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Suze046
      Yeah I think my body is definitely telling me to lay off the alcohol I just don’t seem to agree with it right now but that might be because my gut is still trying to heal. 
    • Gwen myers
      We are a couple with celiac trying to find a concierge doctor in Palm Beach Gardens/West Palm/ Jupiter area that has knowledge of celiac .  Help!
    • Mettedkny
      Thank you so much for your validation. I completely agree with you that the crackers COULD be the culprit even with very small trace amounts (less than 20ppm) and accumulating over time - I am at the point where I am about to request that my son gets retested to make sure that my "control subject" is still testing perfectly lol. I have a meeting with my celiac disease doc tomorrow and will run the crackers by him to see if he is willing to retest in a few weeks. I have not had any of them for the past 3 weeks so far, so fingers crossed, we can retest and hopefully find out if it is them. And no - I have been scouring EVERYTHING to make sure nothing else has changed. Only use gluten-free lip products and toothpaste so not there either (but very good suggestion). Thank you for validating me. I feel like many are just saying "you are not being gluten-free enough - but I do have a perfect 16 year track record that proves otherwise - so has to be something sneaky.
    • Mettedkny
      OMG thank you so much for validating me in my "craziness" of being on the hunt for the culprit in my case. "Unfortunately" I do not eat any of the foods you mention, but have stopped eating the crackers that are labeled certified gluten-free to see if they might be the problem. I did NOT know about chicken being injected with gluten liquid - that is horrible!  Hoping my doc will agree to retest after I have been off the crackers for a while. My biggest mystery is - why do I not have ANY symptoms of being cross contaminated or glutened? There is no damage (thank godness) to my villi, and normally I will get canker sores the moment something is even the slightest bit cross contaminated... the hunt continues and I will follow up once I find the answer. Glad you found yours! 
    • Winnie-Ther-Pooh
      Fascinating, thanks! So Canada (at least in 2017) had changed the criteria for detection in oat products from 20 to 5ppm. If the regulation still stands in 2025 then that would mean that any product sold in Canada that contains oats and is claimed to be gluten-free must (theoretically) test less than 5ppm... 
×
×
  • Create New...