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2-year Old Grandson--sick Since December

Betty Boop

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Betty Boop Rookie
Betty Boop
Posted

I was just diagnosed with celiac disease. I'm new to the forum. This is probably not even possible, but I'm wondering if my 2-year old grandson might have celiac disease. The doctor told me it runs in families. They just took him to the hospital today for more blood tests. He's been sick off and on since December, and they don't know what's up. He's had flu, colds, coughs, and vomiting over and over and over. He is a happy little kid, but just can't stay healthy.

I'd love to know if anybody out there has had an experience like this--and if it could be celiac disease.

Thanks...

Betty Boop :P

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JustME2009 Newbie
JustME2009
Posted
I was just diagnosed with celiac disease. I'm new to the forum. This is probably not even possible, but I'm wondering if my 2-year old grandson might have celiac disease. The doctor told me it runs in families. They just took him to the hospital today for more blood tests. He's been sick off and on since December, and they don't know what's up. He's had flu, colds, coughs, and vomiting over and over and over. He is a happy little kid, but just can't stay healthy.

I'd love to know if anybody out there has had an experience like this--and if it could be celiac disease.

Thanks...

Betty Boop :P

My 4 year old grandson was sick for 6 months. At first his pediatrician said he had a virus, but he couldn't seem to shake it. Sometimes he'd be so sick he'd end up in the ER. His color was horrid and he was just lethargic most days. He'd lost 10lbs off his already thin body. Many tests showed nothing wrong. Finally he was sent to a GI specialist. His colonoscopy showed some lesions that she believed were from the prep. His bloodwork showed a genetic predisposition but not that he had any active disease. In desperation, my daughter put him on a gluten free diet. Within just a few days, he was feeling better, eating better and keeping his food down. In 2 months he had more energy then I ever remember him having and he's gained some weight. His GI doctor then diagnosed him with gluten intolerance. It would probably be worthwhile to have your grandson tested.

swalker Newbie
swalker
Posted

It could definately be gluten intolerance. Testing is very inaccurate and time consuming so I'd suggest removing gluten to see if it helps. As intolerance effects absorption, he would no doubt benefit from a good multistrain probiotic to replentish his flora and a good multivitamin.

  • 2 months later...
Betty Boop Rookie
Betty Boop
Posted
  • Author
I was just diagnosed with celiac disease. I'm new to the forum. This is probably not even possible, but I'm wondering if my 2-year old grandson might have celiac disease. The doctor told me it runs in families. They just took him to the hospital today for more blood tests. He's been sick off and on since December, and they don't know what's up. He's had flu, colds, coughs, and vomiting over and over and over. He is a happy little kid, but just can't stay healthy.

I'd love to know if anybody out there has had an experience like this--and if it could be celiac disease.

Thanks...

Betty Boop :P

Betty Boop Rookie
Betty Boop
Posted
  • Author
I was just diagnosed with celiac disease. I'm new to the forum. This is probably not even possible, but I'm wondering if my 2-year old grandson might have celiac disease. The doctor told me it runs in families. They just took him to the hospital today for more blood tests. He's been sick off and on since December, and they don't know what's up. He's had flu, colds, coughs, and vomiting over and over and over. He is a happy little kid, but just can't stay healthy.

I'd love to know if anybody out there has had an experience like this--and if it could be celiac disease.

Thanks...

Betty Boop :P

Betty Boop Rookie
Betty Boop
Posted
  • Author

Well, my son and daughter-in-law called from a trip yesterday. The tests came back positive. My little grandson does have celiac disease. When they get back, they'll test him for a dairy allergy. How often do kids have both allergies?

elle's mom Contributor
elle's mom
Posted

How wonderful that your grandson will have you supporting him on his gluten-free diet! We have no support..........to my knowledge at starting the diet there will be an "allergy" or intolerance to dairy, but this could be short term. I have seen lots of people list they are dairy, egg, soy etc. free along with gluten but I don't know how they found out. Please share........

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Amyleigh0007 Enthusiast
Amyleigh0007
Posted
How wonderful that your grandson will have you supporting him on his gluten-free diet! We have no support..........to my knowledge at starting the diet there will be an "allergy" or intolerance to dairy, but this could be short term. I have seen lots of people list they are dairy, egg, soy etc. free along with gluten but I don't know how they found out. Please share........

When my son had blood taken for Celiac testing they also did food allergy testing. That is how we found out about his many allergies. Many people are lactose intolerant because the villi are damaged as a result of the Celiac. The enzymes that digest lactose are located on the tips of the villi. That's why they say to eliminate dairy when you are first diagnosed. After the villi have healed many people can begin consuming dairy again.

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    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
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      Anti-endomysial Antibody (EMA) Testing

      By Scott Adams · Posted

      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
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