Mouth Sores

[Guest jhmom]

20-30 sores???? Wow, you poor thing, I feel for you. I usually only get 1-3 at a time and that is painful enough. It's good that your husband is a dentist and your pain is being relieved with meds. Thanks for the suggestion on the meds, I will keep that in mind next time.

[SadiesMomma]

Well, here they come again..

I get these blister like canker sore kind of things in my mouth occasionally. Thing is, when I get them its not just one normally. I usually get them all over in my mouth and they are terribly painful. Sometimes they "break" and get even worse and spread more, causing me far more pain. It gets so bad sometimes I cant even talk or eat. I get cracks and blisters on the sides of my mouth....

I read something about this being related to Celiac, but at the time I had never had it quite as sever as this last year. I had these sores all the time when I was a kid but my dad teased and said it was cause i kissed too many boys and left it at that.

..... Do any of you have this sort of condition? Is this something I should talk to my doctor about?

Thanks.....

[seeking-wholeness]

Heather,

I used to have a couple of canker sores all the time as a child. I've never had a whole mouthful before, though! Ouch!

I know there are at least a couple of others on this message board who have had this problem, and yes, it does seem to be related to celiac disease.

I hope you feel better soon!

[Guest jhmom]

Hi SadiesMomma

I get those nasty mouth sores too and we had a good thread on it here, it's under "Related Disorder". A lot of people had some very good suggestions, take a look and I hope you feel better soon!

[SadiesMomma]

This forum thingy is so weird sometimes.. I mad this entry about the sores as a new topic not knowing one was already open... and I think they moderators or someone moved it. neat-o.

Anyway..... Im hoping theyll go away but now I have 2 huge ones and feel like i may be getting more. Uuuugh! I cant think of anythig I ate that wasnt gluten-free but must have been something I suppose.

Thanks!

[whitelacegal]

im new and waiting on my biopsy results, my doctor said that my villi was flat and he thinks i have this disease, I first noticed something was wrong with me when i got a ulcer in my mouth, does anyone else have this problem? What did they give you to help you with your mouth problems? Im not on any medication at this time except Benytl for stomach pains. Any information would be a help cause im lost at this point and trying to switch my diet.

[Guest Cher2]

Hi!

I would also get some mouth sores and my dentist suggested that instead of brushing with toothpaste which in some people can cause mouth sores you might want to try brushing with listerine. I get flouride treatments at the dentist so I do get some flouride, it also seems to make my teeth white. I use the citrus flavored so it is not as strong.

Chery

[outthere39]

I have had several bouts with sores, and I have found some things out that may or may not help. I started using an inhaler, just an otc menthol one. Simply because it helps in destroying bacteria where it starts, in the back throat. It really helped with the pain aspect, I am not 100% sure why, but it did. If you already have not, make sure all oral ingredients are gluten-free. I use Toms, which seems to available in any grocery store. Good Luck.

Richard

[whitelacegal]

I was diganosed with Celiac last week and continue to have mouth sores but am on the gluten free diet, is there anything else the doc can give me to help me with these sores? Im not taking anything but Benytl for stomach pain and dont see the doc again for 2 weeks?

[SadiesMomma]

YAY, my sores finally went away...

Sad thing is that it is only a metter of time before they appear again and make me miserable siome more!

[zippyten]

I found all this stuff about mouth sores very interesting. I've been having them my whole life (although never 30 or 100 at once, I don't know how people live through that when even 2 of them make me miserable) and since I'm new to celiac disease and the diet I am just finding out about the link between celiac disease and canker sores.

Years ago I tried to do a little research on them because I had them so often & found outthat nobody seemed to have definitive answers. The most common theories were that they were caused by a virus, such as herpes simplex, or vitamin deficiencies (of course, I never saw any link to celiac disease).

I, too, have another outbreak of mouth sores even after being gluten-free for a month. There seems to be no rhyme or reason to them, because even with a gluten-filled diet there were long periods of time when I never had sores.

I remember reading that those who ate yogurt high in acidophilus could head off outbreaks. Also, my younger daughter is equally prone to canker sores and I am planning to have both my children tested for celiac by blood test soon. I use an over-the-counter oral antiseptic cleanser called Gly-oxide on the sores which doesn't really hurt and seems to accelerate the healing. I found any lidocaine or benzocaine application hurt as much as the sores themselves.

Ellen

[whitelacegal]

I called my GI doctor yesterday about the mouth sores and he told me to call the dentist to help me with the mouth sores, then the nurse told me that the mouth sores i had are not realated to celiac disease, i couldnt belive it! My dentist can not help me because i have been there before and all she gave me was oraljel or something like this. Im getting really upset cause i have lived with these for 7 months off and on. Im on the gluten-free diet and have noticed some changes in my mouth but not enough good changes, i dont know where to go next and thinking of changing my gi doc.

[gf4life]

I'm having a breakout right now. I've had them for about 4 days. I've got 4-5 sores in both the top and bottom, left and right, so eating is awful. I've been using the oragel, but it only helps for a few minutes. I know I had a gluten accident two weeks ago, but would it take more than a week for a breakout to occur after an accident?? I also noticed that the pain is worse at night. Why is that? I thought maybve because of all the bacteria building up through out the day, but I've tried brushing my teeth more often and it doesn't seem to help.

Ellen, I'm going to check into using the Gly-oxide rinse. Viadent used to work for me when I was having sores, and also gum inflamation. But I don't know if Viadent is gluten-free, does anyone else know if Viadent is safe??

God bless,

Mariann

[Rikki Tikki]

I don't know if these are what would be called mouth sores. But I have these cuts on my tounge and it hurts to eat or drink even chew gum. Has anybody ever heard of this? My dr. thinks it may be due to a lack of vitamins.

[plantime]

I never thought that celiac disease could cause the sores in my mouth. They are very small, at the back on the roof, and sometimes on the sides of my tongue. I have one now, but I also had a gluten accident right before getting it! I am so glad all of you are here!

[whitelacegal]

Yes, thanks for the information, im going to the dentist today and going to find out if they can atleast try me on some medicine for these sores in my mouth, hopefully he can help me!

[hayvenhurst]

I am wondering if the teeth whitening products are gluten-free. Also, have you heard of being gluten-free but having a discolored (yellowish) tongue.

[Guest Sarabi7]

I was recently diagnosed, in June, with celiac disease through an endoscopy. My blood tests confirmed the diagnosis.

Since becoming gluten-free several weeks ago, I have noticed positive changes in my system. However, one of my chief complaints is that I have SEVERE mouth pain due to ulcerations on my tongue, corners of my mouth, inside of my cheeks, and my gums. It is so hard to eat. I've always loved to cook, and I know that I will be a great gluten-free cook, however, I can't even test most of the recipes that I've found, because I'm afraid they will scratch the blisters aka ulcers in my mouth.

The doctors have tried me on several different mouthwashes, including lidocaine with Mylanta, which helps only until I eat or drink something. It's okay for the pain AFTER I've eaten, but in the meantime, I can't eat anything that has much texture due to the pain it causes.

Anyway, if anyone has any information, i.e., vitamins, or ANY ideas of what I might try, I am desperate to get rid of this problem.

Thank you all so very much!

[kabowman]

I realize this is an old topic but since going gluten-free, my mouth sores have actually increased! My internist (PCP) suggested B vitamins so I am trying B, Mega, Complex (gluten-free and corn free) - so far, a week and now help.

-Kate

[ryeanddiet]

Stacie,

I get a lot of cankers when on gluten as well. When I went gluten-free, some of the symptoms - abdominal pains, went away immediately but some took until the 5 month mark - cankers and mouth ulcers were one of them.

I'm back on gluten for biopsy prep and that was the first thing to pop-up again when I started.

good luck!

jen

[GEF]

I have a question in regards to mouth sores as well. I never thought I'd post under this topic as a question, because I've never had the 100 sore breakouts that many of you have had. I have had canker sores, now and then... usually one at a time and then not very frequently (maybe a few times a year)... is even that more than should be normal (non-celiac normal, that is)?

Sometimes I get sores on my tongue as well.. still they're infrequent.

I'm just wondering if I should ring the "celiac alarm" even for my few and infrequent.

Thanks!

Gretchen

[tarnalberry]

I believe that's well within normal, though I don't know very much about tounge _sores_ specifically. (As opposed to an inflammed taste bud that is annoying and painful, but not a sore.)

[lisajm]

...newbie here... be gentle! lol

I've had canker sores all my life (37 y/o) and I've been gluten-free for 2 months (no diagnosis - my intuition only). Considering my will-power isn't at 100%, I've had two binges and one canker after each binge. Which I have to say is an improvement - before gluten-free, I would get 3 at a time.

Last year, I had two really bad cankers in a row in the same spot. My dentist applied Debacterol. Hurt like heck, but it helped.

Smiles from NH~ Lisa

[kabowman]

I have had problems on-and-off my whole life, one-four at at time and my new doc suggested I try taking B vitamins suplements and after a couple of months, it has helped me...doesn't mean they won't come back but right now, I am enjoying a sore-free mouth.

-Kate

[Guest cowboy]

Wow, this whole topic got me started thinking about this old boyfriend I had in college. He had an outbreak of like "100 sores" in his mouth and they gave him lidocaine to swish with, it barely took the edge off long enough for him to eat! He was irish and I now wonder if he may have had celiac disease. He certainly had many other symptoms as well...

Mariann

Let me preface this by saying I am new to this site and that although my wife has not officially been diagnosed with celiac disease (She has been battling Crohn's for 20+ years...diagnosed at age 6, and is going for a biopsy in November to test for celiac disease) she too suffers from mouth sores. Mariann - you mention that your boyfriend was Irish. Is celiac disease common for Irish people? That would be just another symptom/factor that seems to lead me to believe her biopsy will come back positive. (as she is Irish)

A little unrelated here, but has anyone out there known somebody with many of the symptoms of celiac disease, and it NOT come back positive? Just curious if there could be something else I am yet to learn about.

Thanks.

Matt