Do Symptoms Get Worse?

[JustAGirl79]

I was diagnosed in mid-April with celiac, based on blood tests, though my IgA was a 3 (which I've been told is negative for celiac), my tTg was 200 (which I've been told is positive).

Leading up to the diagnosis, I was suffering from what the doctor thought was IBS. It wasn't unbearable, but I definitely got the sense that something wasn't right with my digestive system, which is why I pushed for blood work, etc.

I've largely been gluten-free since my diagnosis (a couple slip-ups, here and there) and generally have felt better - though not 100%. Now, it looks like I'm going to have the endoscopy and biopsy done, likely within the next 2 months, so I'm back on gluten for the time being. I'm trying not to overdo it and I don't think I am, but I felt rotten all weekend. I don't remember feeling this rotten when it was "just" IBS.

Is what I'm going through simply psychosomatic now that I know I have celiac or are my symptoms progressing/getting worse?

[MySuicidalTurtle]

All I know is that if I accidently eat gluten, it is way worse than it ever was before diagnosis. Probably because we heal and then destroy all that.

[ravenwoodglass]

What you are experiencing is common and an excellent indication that you do have an issue with gluten. Your body has been very relieved to not be getting what to you is a toxin. You have now added that toxin back into your diet and your body is telling you that it does not like it at all. Unfortunately if you want to a doctor derived diagnois you will need to keep poisoning yourself until the biopsy is done. One thing I would suggest is that you let your doctor know what your reaction to the gluten challenge has brought about. In some cases if the reaction is severe enough a doctor will stop the challenge and diagnose based on the severity of the reaction.