Full Test Results Posted

[SLB5757]

Hello all =)

This is just a follow up to a previous post. I picked up my blood test results (in entirety) today. It looks as though I do not test positive at all for Celiac Disease. This has been a very frustrating process as I was sure that this was the cause of my issues. I am going to post all of the results I have and see if anyone has any suggestions - as the doctors have just told me "you have IBS" and let me go. If anyone has had any of these results and tried something that worked - I would appreciate any comments. This may be more for a food intolerance board rather than a Celiac forum - so I appologize in advance if I am posting somewhere I should not. I am mainly wondering if anyone here would try an elimination diet based on teh Allergy results alone. My GP said absolutely do not eliminate Wheat and so did the Gastro. My Allergist who is an ENT said to eliminate Wheat for sure - and to only eat the other allergen foods without any other allergen. He said that small quantities of the level "II" allergens and if the allergen were only eaten every 4th day would be OK. He stated that if I have any level over a "I" then I am positive for an allergy to that particular allergen. Why would the Gastro and GP feel that I SHOULDNT listen the the Allergist here considering my multitude of allergens?

Thanks everyone ~

Celiac Panel

Reticulin Abs, S - Negative, Reference Value 11:17 Negative...Mayo Clinic

Tissue Transglutaminase Ab, IgA, S - .3 u/ml, Reference Value <4.0...Mayo Clinic

Tissue Transglutaminase Ab, IgG, S - .609 u/ml, Reference value <6.0...Mayo Clinic

IGA, 266, Flar Reference 66-436 MG/DL...Local Hospital Diagnostic lab

Endomysial IGA, Negative...Mayo Clinic

Gliadin IGG AB, 1.6, Flag Reference 0.0-30.0 U...Mayo Clinic

Gliadin IGA AB, 2.5, Flag Reference 0.0-30.0 U...Mayo Clinic

** These are super low values...so Im sure Celiac isn't what we are dealing with. Dr is unavailable for a week.

Allergy Testing

F/N Scoring System from Serolab

Class Counts

0 <500

0/1 500-749

I 750-1600

II 1601-3600

III 3601-8000

IV 8001-18000

V 18001-40000

My results:

( I am just posting the few foods we picked to test for. I chose foods that give me trouble...and they did a RAST test for them. Cultivated Corn Pollen, Cultivated Wheat Pollen, Ragweed, and Dandelions are all showing as a "V" for me. Cat Hair and numerous Trees and Grasses are a "IV" and could very well lead to some issues.)

Banana, I

Carrot, II

Celery, 0/I

Corn, II

Lettuce, 0/I

Oat, I

Peanut, II

Soybean, II

Strawberry, I

Tomato, I

Watermelon, I

Wheat, III

"0" or "negative" values for Cheese, Chocolate, Egg, Melons, and Milk.

[ravenwoodglass]

I would go with your allergists advice and see how you feel. It is not going to be harmfull to give the diet a good strict try. What have you got to lose?

[SLB5757]

I would go with your allergists advice and see how you feel. It is not going to be harmfull to give the diet a good strict try. What have you got to lose?

I am going to have to try elimination diets and forgo what the general physician has said. I can't go on this way. Last night I had a dinner that consisted of noodles (just egg noodles and chicken broth), mashed potatoes, and corn and I have been bloated/distended/gassy and feeling "full" since. That was at 5:00 P.M and it is 8 A.M the next day and I still feel like I just ate a very large meal. It is so very uncomfortable. If I would have had plain grilled chicken and steamed white rice I would be in no pain. It seemed like a fairly simple dinner - but something really has my tummy in a tailspin. I am going to do gluten free for a while and see how it goes.

[ravenwoodglass]

I am going to have to try elimination diets and forgo what the general physician has said. I can't go on this way. Last night I had a dinner that consisted of noodles (just egg noodles and chicken broth), mashed potatoes, and corn and I have been bloated/distended/gassy and feeling "full" since. That was at 5:00 P.M and it is 8 A.M the next day and I still feel like I just ate a very large meal. It is so very uncomfortable. If I would have had plain grilled chicken and steamed white rice I would be in no pain. It seemed like a fairly simple dinner - but something really has my tummy in a tailspin. I am going to do gluten free for a while and see how it goes.

Your allergist would be the one to go to for help with the elimination diet if you decide to do one. Mine literally saved my life. your allergist can give you the correct 5 starting foods to make sure that it is nutritionally balanced. I added in potatoes first, good little Irish girl that I am and after that wheat. 3 days into the challenge with my cream of wheat we had our answer. Doing an elimination diet is a bit tedious and extremely boring at first but gets better as you are able to add more stuff back in.

[SLB5757]

Your allergist would be the one to go to for help with the elimination diet if you decide to do one. Mine literally saved my life. your allergist can give you the correct 5 starting foods to make sure that it is nutritionally balanced. I added in potatoes first, good little Irish girl that I am and after that wheat. 3 days into the challenge with my cream of wheat we had our answer. Doing an elimination diet is a bit tedious and extremely boring at first but gets better as you are able to add more stuff back in.

I unfortunatley live in a small town and it is difficult to get solid answers/guidance. My allergist is in an extremely busy practice - and just told me to "eliminate wheat for 6 mos then add it back in slowly every 4 days" The nurse practitioner and nurses looked at my results and said I needed an allergy bracelet, and were the ones to give me the literature about staying off of corn, soy, peanuts and oats as well. I am making an appointment with a dietician who can hopefully guide me. I may look into getting a different allergist who can be more hands on as well as I agree with you that this is probably the route I need to follow. Thanks for your advice - I truly appreciate it.

[ravenwoodglass]

I unfortunatley live in a small town and it is difficult to get solid answers/guidance. My allergist is in an extremely busy practice - and just told me to "eliminate wheat for 6 mos then add it back in slowly every 4 days" The nurse practitioner and nurses looked at my results and said I needed an allergy bracelet, and were the ones to give me the literature about staying off of corn, soy, peanuts and oats as well. I am making an appointment with a dietician who can hopefully guide me. I may look into getting a different allergist who can be more hands on as well as I agree with you that this is probably the route I need to follow. Thanks for your advice - I truly appreciate it.

Ask when making the appointment if they do help with elimination diets as not all do. Once I had the initial appointment where mine did the skin testing and set up the diet I didn't have to see him again in person during the elimination diet. I would call in once a week to tell them what food I added and if I reacted to it. I was instructed to call if I had a severe reaction, which I did when I added back in wheat. I hope you are able to get some assistance and are feeling better soon.

[SLB5757]

Ask when making the appointment if they do help with elimination diets as not all do. Once I had the initial appointment where mine did the skin testing and set up the diet I didn't have to see him again in person during the elimination diet. I would call in once a week to tell them what food I added and if I reacted to it. I was instructed to call if I had a severe reaction, which I did when I added back in wheat. I hope you are able to get some assistance and are feeling better soon.

There is another allergist in my town who travels here two days a week from a larger city =) I specifically told them before scheduling that I need to be sure that the Dr. is familiar with and able to assess multiple food allergies or possible intolerances, and asked if they work with elimination diets and what have you and she assured me they did. She said they just did an elimination diet with a woman this past week -so we will see how this Apt. goes. I will see them on 5/19, so it's not too long of a wait to get in either. I was going to request that they do a full RAST blood draw and request that we try the elimination diet as well. I am sure I could do one on my own at home if I googled it...but would feel better if I had guidance from a doctor. Ill post back after that appointment. Thanks so much for your comments. I hope everything is going well for you with your allergies/intolerances as well =)