Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Self-testing


JBaby

Recommended Posts

JBaby Enthusiast

Any thoughts or suggestions on how to test for casein and lactose intolerance individualy by consuming foods that have either casein or lactose but not both simultaneously. Also for wheat. Is there a way to test for wheat without the gluten or is that one in the same. I am trying to determine if this is just an intolerance or maybe celiac with out the biopsy/doctor involvement. I been back in forth with doc for almost 2 years and i have now found the "cause" of my misery on my own but now trying to pinpoint myself exactly what I have. At one point i was accused of being preganant and in denial about it. I have not been back since.

I did eat wheat crisp wheat thins(100 calorie pack) with heathly choice soup, I got sick. The soup or the crisps the culprit, is it the wheat or the gluten?

I had a few spoonfulls of Wendys chocolate frosty and got some tummy pain.

I can eat deviled eggs and prepackaged omelets(walmart) with no problem. Minimal cheese in omelet.

After eating natural cheeddar cheese(sargento) had some issuses and bloating.

I dont drink milk, gets on my tongue, i want to barf, same with yogurt.

I know there is a diff in casein and lactose, one is a protein and the other a sugar. I want to find out which I am reacting to. How can I do with no blood tests?

Thanks

JBaby


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MySuicidalTurtle Enthusiast

Hello! First off, wheat will always have gluten but gluten won't always have wheat. As for casein and lactose. . .you can't really separate those since they are both in milk.

Try keeping a food journal and doing an elimination diet.

JBaby Enthusiast
Hello! First off, wheat will always have gluten but gluten won't always have wheat. As for casein and lactose. . .you can't really separate those since they are both in milk.

Try keeping a food journal and doing an elimination diet.

Thank you. I suspected that. So, I guess Whey protein would be out of the question for supplemental protein. Whey has lactose, I think.

MsModelSara Rookie
Thank you. I suspected that. So, I guess Whey protein would be out of the question for supplemental protein. Whey has lactose, I think.

Most Whey protein containers will have an "Allergen Information" space below the ingredients that will tell you if it contains milk/soy ingredients etc.. ANd I would guess most Whey Protein products contain milk products, but you should deffinately read the ingredients list and check for the allergen info on the container or call the manufacturers to ask.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,029
    • Most Online (within 30 mins)
      7,748

    Nancy N Rosen
    Newest Member
    Nancy N Rosen
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.