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What Has Casein But No Lactose


JBaby

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JBaby Enthusiast

Any thoughts on foods that have casein but no lactose? Trying to figure out my problem here. Maybe its both but if i can test myself and get the answer correct rather than pay out of pocket(no insurance) for someone to screw up test results for me i would rather make my own diagnosis.

JBaby


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Jestgar Rising Star

I believe hard, aged cheeses like cheddar have low or no lactose. Also yogurt.

You could try to find some of those weird cheeses that have added casein, but no other milk products. Those might not be the best choice for figuring out a problem since I think they are made of soy and you might have a small issue with soy that would be magnified if you were eating big chunks of soy as cheese.

GFinDC Veteran

I think hard cheese also. You can also take come lactaid rand pills with the cheese and see if you still have a reaction. The Lactaid digests the lactose sugar, so it you take 3 or so Lactaid pills and eat a small amount of cheese that should be a good test. Around DC they have Lactaid milk in stores also but I don't know how much lactose is left in them. You could probably write the manufacturer of some brands and find out.

I think you could also check out nutrition stores. I think body builders sometimes use pure casein supplements.

tarnalberry Community Regular

no dairy products can be certain to have *NO* lactose. if you want to do a test, eat something low lactose (harder cheeses or yogurt) WITH lactaid. if you find you have some variety of reaction, it's almost certainly from the casein.

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    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
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