Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pre/post Celiacs?


Jackie927

Recommended Posts

Jackie927 Rookie

I am 3 weeks new to being diagnosed with possibly Celiacs. Previously diagnosed with IBS, Stroke, EEG shows signs of Possible Seizures, severe depression, foggy thinking and the list goes on. I hear a few stories where some of you have had deeper testing for Celiacs and food allergies. Is there a certain procedure the doctor is supposed to follow to figure this out. I only had blood work done and test show IGA deficient, Vitamin D deficient, Homocysteine Nutritional deficient (Which the doctor did not know what that was and I still do not know) and she said they think I am Celiacs. Does this sound like my doctor covered all bases? She sent me home and said follow a gluten, milk and cheese free diet and come back in 3 months. Are there guidelines to follow to ask your Dr. the correct questions? Is there a list somewhere of questions to ask when I return in 3 months? I have my own list but do not know enough yet to understand all of the questions I should be asking? I've read many of your post on here and am thankful for all of your questions and answers. I'm one whom has gained weight quickly........I'm guessing due to Celiacs. I gained 60 pounds and had tried everything to no avail. Is this normal that the Dr.'s THINK I have Celiacs? I've been strictly staying on my new way of eating but have found that a few things at different times had the wrong things in them and quickly stopped eating them. I know I can do this..........I just hope I start to feel better soon. I realize everyone is different. I have almost totally secluded myself from society except to buy groceries due to feeling so bad and not wanting to be around people..........which is read is possibly a symptom. I also feel loopey, foggy thinking, I'm sure their are other lables for how I feel. Forgive me for spouting off...........I just wish I had more information from my physician. I'm not one to speak up. Thank you for your time.

Sincerely,

Jackie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

Hi Jackie,

There is a list of tests about 1/2 way down this page on the CSA website.

Open Original Shared Link

You can also find articles about testing on the homepage of celiac.com.

Jackie927 Rookie
Hi Jackie,

There is a list of tests about 1/2 way down this page on the CSA website.

Open Original Shared Link

You can also find articles about testing on the homepage of celiac.com.

Thank you so much for taking the time to help me. I sincerely appreciate your answer. I'm going there now.

Jackie

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,340
    • Most Online (within 30 mins)
      7,748

    Rachel Hill
    Newest Member
    Rachel Hill
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      My reaction to a gluten bolus exposure is similar to yours, with 2-3 hours of severe abdominal cramps and intractable emesis followed by several hours of diarrhea. I don't necessarily equate that one large exposure to gluten with significant intestinal lining damage, however. I think it's just a violent reaction to a what the body perceives to be a somewhat toxic substance that I am no longer tolerant of because I have quit exposing myself to it regularly. It's just the body purging itself of it rather than an expression of significant damage. Before diagnosis, when I was consuming gluten daily, I had little to no GI distress. I was, for the most part, a "silent celiac". The damage to my small bowel lining didn't happen all at once but was slow and insidious, accumulating over a period of years. The last time I got a big shot of gluten was about three years ago when I got my wife's wheat biscuits mixed up with my gluten-free ones. There was this acute reaction after about two hours of ingestion as I described above. I felt washed out for a few days and fully recovered within a week or so.  Now, I'm a 74-year-old male. So, I'm not worried about being pregnant. And I don't want to contradict your physicians advice. But I just don't think you have done significant damage to your small bowel lining by one episode of significant gluten ingestion. I just don't think it works that way.
    • Skydawg
      Wondering about some thoughts on how long to wait to try to get pregnant after a gluten exposure?  I have been diagnosed for 10 years and have followed the diet strictly. I have been cross contaminated before, but have never had a full on gluten exposure. I went to a restaurant recently, and the waiter messed up and gave me regular bread and told me it was gluten free. 2 hours later I was throwing up for the whole evening. I have never had that kind of reaction before as I have never had such a big exposure. My husband and I were planning to start trying to get pregnant this month. My dr did blood work to check for electrolytes and white blood cells, but did not do a full nutritional panel. Most of my GI symptoms have resolved in the past 2 weeks, but I am definitely still dealing with brain fog, fatigue and headaches. My dr has recommended I wait 3 months before I start to try to get pregnant.   I have read else where about how long it can take for the intestine to fully heal, and the impacts gluten exposure can have on pregnancy. I guess I am really wondering if anyone has had a similar experience? How long does it take to heal after 1 exposure like that, after following the diet so well for 10 years? Is 3 months an okay amount of time to wait? Is there anything I can do in the meantime to reduce my symptoms? 
    • ShadowLoom
      I’ve used tinctures and made my own edibles with gluten-free ingredients to stay safe. Dispensary staff don’t always know about gluten, so I double-check labels or just make my own.
    • Scott Adams
      It's great to hear that there are some good doctors out there, and this is an example of why having a formal diagnosis can definitely be helpful.
    • RMJ
      Update: I have a wonderful new gastroenterologist. She wants to be sure there’s nothing more serious, like refractory celiac, going on. She ordered various tests including some micronutrient tests that no one has ever ordered before.  I’m deficient in folate and zinc and starting supplements for both. I’m so glad I decided to go to a new GI!
×
×
  • Create New...