Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Disease


toxictwinkie

Recommended Posts

toxictwinkie Newbie

Hello I'm New Here

Basically, I am in the process of seeing if I do have Celiac Disease because I have been getting severe upper stomach pain that lasts for a 1 week. Its so bad I have to take a week off from TAFE and life basically; and no tablets relieve it. I have been to the doctors numerous times and stomach specialsts but they have no idea either. I am pretty much crippled with this pain to the point where I am crying and on the verge of screaming. I also lose my appetite during that time. I got this stomach problem in my teens.

However what I'm confused about is, that I can eat all the gluten and wheat products all year round with no symptoms or pain, but then every 6-12 months I suddenly get the severe upper stomach pain. I have a feeling that I get this pain from me eating gluten, wheat products and it builds up every 6- 12 months up to the point when I suddenly get this horrible severe upper stomach pain. Not sure though?

However when I look at the Symptomsof Celiacs Disease I do not display 95% of the Symptoms:

Gas, abdominal swelling, and bloating - NO, however I have upper stomach pain but no gas or swelling (5%)

"The Toilet One" - NO

Weight loss - NO

Fatigue and weakness - NO

Vomiting - NO

Frequent respiratory infections. - NO

Problems with memory and concentration. NO

Irritability in children. And adults may show signs of depression. - NO

So I have no idea if it is Celiac Disease or some other stomach disorder. Also when people have celiacs does the pain last all week or only when eating the wheat and gluten products and the pain subisdes after a few hours?. Any help will be greatly appreciated though =)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

Hi,

Celiacs have lots of different symptoms and reactions. So one person can react totally different from another person. We are not all the same. It seems unusual for the symptoms to only occur once a year. You could ask your doctor to do the blood antibody tests.

It sounds to me like a gastroenterologist might be good person to talk to about your symptoms. One of the tests they do for celiacs is an endoscopy, where they insert a tube down the throat and can examine the esophagus, stomach, and upper intestine condition.

You could always try the gluten-free diet also and see what happens. But if you really want a diagnosis you need to get tested before going gluten-free.

I don't see how the gluten would build up and then get flushed out once a year if you are still eating gluten all the time. Some testing might help.

toxictwinkie Newbie

Wow thank you for the advice. :P

The annoying thing is I went to the doctors/hospitals numous times over the years and I had pretty much all the tests under the sun and they have no idea what it is. But I won't give up. I also had the endoscopy thing twice, and they found nothing wrong (I wasn't tested for celiac on those times, I don't think), however I think I may go again to the endoscopy place and be tested properly for celiac just to make sure.

Anyway, thanks for the reply ^-^

GFinDC Veteran

Yeah, definitely don't give up. Many of us have gone years looking for a diagnosis. There have been a few people posting about gallbladder problems, that cause them a lot of pain. Maybe try a search on gallbladder? I seem to remember people saying they had intermittent pain with it.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,095
    • Most Online (within 30 mins)
      7,748

    Tammy B
    Newest Member
    Tammy B
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • jeffpine
      WOW WOW WOW, your site did it for me: like this, i saw the ads for GliadinX and followed the product. There were several knockoffs. my engineer friend seperated them and found one at the local CVS at a bargain price. So yesterday I tried it. Twice. Lunch and dinner. works fine. Much obliged, 
    • Jmartes71
      I am actively dealing with a ray of issues, my skin, eyes and digestive even though not eating wheat.Menopuase has activated so much right now, considering its getting worse with my health. I have learned so much thanks to this website.I wasn't properly told of my celiac disease which was confirmed by colonoscopy and endoscopy in 1994 the same year I gave birth to my first son, my tolerance level was horrible. After being diagnosed and staying away from wheat continued problems. My chiropractor at the time in 2007 had my blood work sent off and turns out I have more food allergies. I told my primary of my celiac disease in 2000 and continued to see that doctor up until May if this year 2025 considering my celiac disease was ignored, disregarded and what Im currently going through and been through. I assumed my celiac disease was " registered " at the time in 1994 just as pregnancy and other ailments are reported. I was shocked to learn that its not a mandated reportable disease not documented by the state from hospitals which I for one think it should be considering all the medical gaslighting im dealing with which is causing depression. Im told not worry about other, well I am and its NOT right.It needs to be documented so others don't suffer and go through this nightmare. Im seriously ready to go down to the mayors office and make some noise. Thoughts?
    • Wheatwacked
      With all the bloodwork, have they checked your vitamin D?  What is it?  Celiac Disease causes malabsorption, so vitamin deficiencies are common.  Doctors rarely mention this. B1 Gastrointestinal beriberi, a severe thiamine deficiency, is characterized by symptoms including anorexia (loss of appetite), abdominal discomfort and pain, nausea, and vomiting. Other potential symptoms like abdominal fullness, indigestion, and constipation can also occur. These gastrointestinal issues may resist standard treatments, signaling a need to consider thiamine deficiency.  It is commonly believed that thiamine deficiency is not an issue in the western cultures, so rarely address by doctors. Doses of thiamine above 100 mg several times a day will quickly show improvement.  Borderline deficiency will come and go depending on what your eat.  Carbs use it up faster, so for example if you eat a lot of carbs today, tomorrow you may have symptoms.  Thiamine (Benfothiamine is a synthetic fat soluable thiamine) is water soluable, we only store maybe a weeks worth, and there is no upper limit on how much you consume.  Excess is stored or peed away.   For them it isn't a oroblem.  LOL.  They just say some people are like that and see the next patient.  
    • sillyac58
      I used the cream for 4 days as prescribed 3 years ago. While I cannot be sure it triggered these problems, the timing is very suspicious. Yes, the oats are gluten free, and while I knew some celiacs have a problem with oats, I only just thought to eliminate them.  I just read about corn on this website, which I do eat plenty of. I do eat dairy, and would be so terrible sad to give it up, but..... Thank you for the diary suggestions. I'll start one today. Thanks for responding!
    • trents
      Welcome to the forum, @sillyac58! Are you still using this topical medication for this precancerous spot on your lip? If not, are you saying you used it for a limited time and believe it triggered additional ongoing immune system reactions with unpleasant symptoms? I'm not clear on this. Are the oats you use certified gluten free? You may know this already, but even if they are certified gluten free, the oat protein avenin is similar enough to gluten to cause reactions in some celiacs. The development of other food intolerances is also common in the celiac community. Common offenders in addition to oats are dairy, eggs corn and soy. Dairy and oats are the most common, however. You might do well to keep a food diary and check for patterns.
×
×
  • Create New...