Whats Going On?

[Aeman56]

I have been trying VERY hard since my 14 month old's diagnoses to have a gluten-free home and all gluten-free meals.

His rash, which was said to be caused by gluten, comes and goes even though I have called companies, spent hours researching, consulted with a dr and even other celiacs.

Today he had rice cakes, ball park hot dogs, gluten-free noodles with cheese, strawberries, and for dinner he had a baked potato with butter, bacon, and sour cream and pork cooked in swanson's beef broth, sweet baby rays bbq sauce on gluten-free bread (all of which I researched and found to be gluten-free) and the only thing he currently drinks is water, milk, and great value gluten-free Apple punch juice blend.

About an hour or two after dinner his rash is back full force. WHY? Anyone have any idea??

Do any of your children get a rash from gluten? Could you show me a picture of your child's rash? I am starting to wonder if its something OTHER then gluten. I can't get it to go away, the drs are NO help what so ever, no one is sneaking him anything, I am lost and beginning to get depressed and feel like a failure!! I dont know what else to do.

[ravenwoodglass]

It can take a long time for the antibodies to leave the skin and even the tiniest amount of gluten may cause it to reappear. One issue he may have is a sensitivity to distilled gluten grains. Most of us are able to tolerate them but there are folks who can't, like myself. Thus I would suspect the BBQ sauce. It would be considered to be gluten free even if the vinegar is gluten derived but he may be one of the few that will react. In addition you mention food but you should also look at the stuff he plays with. Many clays and paints as well as glues are not safe.

[ang1e0251]

I thought Swanson broths were moved to the bad list. Am I wrong?

Have you tried ever removing him from dairy from a few days? I know I can't tolerate milk or sour cream.

[Aeman56]

  ravenwoodglass said:

It can take a long time for the antibodies to leave the skin and even the tiniest amount of gluten may cause it to reappear. One issue he may have is a sensitivity to distilled gluten grains. Most of us are able to tolerate them but there are folks who can't, like myself. Thus I would suspect the BBQ sauce. It would be considered to be gluten free even if the vinegar is gluten derived but he may be one of the few that will react. In addition you mention food but you should also look at the stuff he plays with. Many clays and paints as well as glues are not safe.

So even if this site says that sweet baby rays is safe, it may not be? And if I call and ask where the vinagar comes from?

Do you know of any absolutely safe BBQ sauce??

He is not yet old enough to play with paint or clay. He would only eat it. So I don't believe it could be that.

Thank you for this help. I am feeling a little helpless and VERY confused.

[Aeman56]

  ang1e0251 said:

I thought Swanson broths were moved to the bad list. Am I wrong?

Have you tried ever removing him from dairy from a few days? I know I can't tolerate milk or sour cream.

I read on here and few other sites that SOME of the broths were gluten free. I was careful to get the described can of 14oz plain beef broth.

I haven't tried removing milk as he was just put on milk at 12.5 months and is only 14 now. I was thinking of maybe stopping soy products....? Sour cream has soy in it and I believe thats the first time he had sour cream.

[swalker]

If the rash is on his chin and/or either side of his nose and comes and goes within a couple of days I'd say from your list it's either the strawberries and/or the tomato in the BBQ sauce. Both of those things cause a similiar rash on my grandson's face in addition to citrus of all sorts and all other berries. Gluten doesn't cause a rash for him, just seizures, and milk doesn't cause a rash, just meltdowns and bouncing on the spot.

[Aeman56]

  swalker said:

If the rash is on his chin and/or either side of his nose and comes and goes within a couple of days I'd say from your list it's either the strawberries and/or the tomato in the BBQ sauce. Both of those things cause a similiar rash on my grandson's face in addition to citrus of all sorts and all other berries. Gluten doesn't cause a rash for him, just seizures, and milk doesn't cause a rash, just meltdowns and bouncing on the spot.

Its on both his cheek bones, makes him look like he is that crazy lazy with 3lbs of blush on his face, and when it gets really bad looks like pimple bumps on his chin.

He had no berries yesterday in fact he had all veggies and no fruit I can think of. I didn't even realize the BBQ had tomato but I will try removing them from his diet. Thanks!

[ang1e0251]

I don't have anything to add except that I'm thinking of you. It's hard enough to understand what I'm reacting to let alone a toddler. I just wanted to say he's a lucky child to have a mom who cares so much about him and has to watch every piece of food he eats. It isn't always easy to understand every reaction and what it is to. He's just so lucky you are his mom.

[TES]

Unless it is stated on the contaner, gluten free, I would not use it. I know I used a can of Swansons beef broth and it made me sick. Swansons does have gluten free, but it is printed on the label. There is a difference.

[daphniela]

  Aeman56 said:

I have been trying VERY hard since my 14 month old's diagnoses to have a gluten-free home and all gluten-free meals.

His rash, which was said to be caused by gluten, comes and goes even though I have called companies, spent hours researching, consulted with a dr and even other celiacs.

Today he had rice cakes, ball park hot dogs, gluten-free noodles with cheese, strawberries, and for dinner he had a baked potato with butter, bacon, and sour cream and pork cooked in swanson's beef broth, sweet baby rays bbq sauce on gluten-free bread (all of which I researched and found to be gluten-free) and the only thing he currently drinks is water, milk, and great value gluten-free Apple punch juice blend.

About an hour or two after dinner his rash is back full force. WHY? Anyone have any idea??

Do any of your children get a rash from gluten? Could you show me a picture of your child's rash? I am starting to wonder if its something OTHER then gluten. I can't get it to go away, the drs are NO help what so ever, no one is sneaking him anything, I am lost and beginning to get depressed and feel like a failure!! I dont know what else to do.

It could be eczema.

[ravenwoodglass]

You also may want to give him a simpler diet for a while. For example make his pork chop plain without the sauces, give him a baked potato with just butter, and a minimum of processed foods. For many of us the simpler the better at first as it reduces the chance of cross contamination issues and speeds up the healing. As to the BBQ what you can do is to call the company and simply ask what the distilled vinegar is derived from. That works better than asking if it is gluten free since many places consider distilled gluten to be gluten free, although some of us will react.

[nasalady]

  Aeman56 said:

Do you know of any absolutely safe BBQ sauce??

My husband has a really bad case of DH and the rash takes so long to heal that it would be a disaster if he had any gluten (not to mention gluten gives me headaches, diarrhea, mouth sores, and neurological symptoms). So I've been making my own gluten free BBQ sauces:

Basic gluten-free BBQ Sauce:

Ingredients:

1 medium onion, grated or finely chopped

1-2 T butter

1 1/2 C gluten free ketchup

1/2 C packed brown sugar

1/4 C gluten free worcestershire sauce

2 T lemon juice

1 T liquid smoke

Directions:

In a sauce pan melt butter. Add onion and saute until tender. Add all remaining ingredients and heat 2 to 3 minutes or until sugar dissolves. Makes 3 cups.

If that doesn't have enough of a kick for you, add the following ingredients to the basic sauce above; this makes a Sweet-Hot BBQ Sauce. Start with smaller amounts of honey and brown sugar if you don't like BBQ sauce sweet. Just make certain that all of your ingredients are gluten-free:

1 C honey

2 tsp paprika

2 tsp chili powder

1 tsp garlic powder

4 T Old Bay Seasoning

1 tsp onion powder

1/2 tsp celery salt

2/3 - 1 C dark brown sugar

1/2 tsp fresh ground pepper

1/4 C white or apple cider vinegar (gluten free)

[Aeman56]

  daphniela said:

It could be eczema.

I asked 2 drs about that and psoriasis (spelling?) both have told me No, it is gluten related. One was a pediatrician and one is the GI dr who recently diagnosed and is treating my son for celiacs.

[Aeman56]

  ravenwoodglass said:

You also may want to give him a simpler diet for a while. For example make his pork chop plain without the sauces, give him a baked potato with just butter, and a minimum of processed foods. For many of us the simpler the better at first as it reduces the chance of cross contamination issues and speeds up the healing. As to the BBQ what you can do is to call the company and simply ask what the distilled vinegar is derived from. That works better than asking if it is gluten free since many places consider distilled gluten to be gluten free, although some of us will react.

Thank you, from now forward I will call and ask about the vinegar.

[Skeet]

Sounds like my son. He gets really rosy cheeks if I have too much dairy. (I'm still BF)

He breaks out into eczema when I have gluten.

If I cut out dairy & gluten he has no skin problems whatsoever.

Hope that helps!