Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Saw A Gi This Morning. . .

ptkds

By ptkds
in Doctors

Recommended Posts

ptkds Community Regular
ptkds
Posted

I saw a GI this morning because of some rectal bleeding, diarrhea, and stomach pain. I saw him a few years ago shortly before I was diagnosed with Celiac, but I didn't go back after my PCP told my I had celiac. I just didn't see the need.

I was discussing some of the symptoms of my kids, and mentioned how they vomit after they have had gluten. He told me that "vomiting is NOT a symptom of Celiac". I stayed very calm and told him that my kids (especially the littler ones) almost always vomit after they have been glutened, and he said "well, I'm not saying they don't have celiac, but vomiting is just not a symptom of celiac."

It is sad how little these doctors know about Celiac!

But on the other hand, he is running a whole bunch of tests, starting with a follow-through x-ray of my small intestines and a colonoscopy. He said he is looking for intestinal lymphoma. I am really worried about that now. I am really anxious to get the results.

Please pray that it is nothing serious! I looked up this cancer, and it has a very low survival rate.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

Praying for you that he does not find what he is looking for. But then, maybe he doesn't know a lot?? :lol: People with celiac don't vomit?? :rolleyes: Extra tests can't hurt in ruling out other diagnoses :P

ravenwoodglass Mentor
ravenwoodglass
Posted

Please let us know how you fare on the test. One word of caution, if they are using a bariun solution for this test make sure it is gluten free. The gluten free form is a thin liquid not thick and will have the consistancey of water.

LDJofDenver Apprentice
LDJofDenver
Posted

Oh please! (throwing up is not a sign!) My poor son was throwing up his entire childhood, and I've spent my adulthood frequently doing the same, especially the older I got. Just blows me away at how little our front line of doctors know about this disease! When is this going to change?

My GI doc ordered a CT scan of abdominal and pelvic areas, looking for the same. Apparently there's a small percentage of celiacs that get this specific type of lymphoma. My CT scan was normal, all was good, but I know how scary it is to just be sent for something like that. It's one thing to read about it (the possibility), but entirely another to be the one sent for a test for it! Hopefully everything will be fine with you, and you'll feel relieved that you had the tests done. Think of how many people are walking around with something unknown inside of them - - at least I now have the benefit of knowing, and that peace of mind.

ptkds Community Regular
ptkds
Posted
  • Author

Ok, I don't know if yall will believe this, but here goes.

Today the GI doctor CALLED ME to APOLOGIZE for telling me that vomiting is not a symptom. He said that after our conversation, he got to thinking and went and did a little research, and he found out that it IS a symptom. He said he wanted to apologize because he likes to tell patients about things that he knows for sure. He also said he didn't want me to lose confidence in him.

I couldn't believe he called me! That just blew my mind! I don't know if a doctor will EVER apologize like that to me agian! I now respect the man even more because this proves that he is willing to admit that he has made a mistake.

ravenwoodglass Mentor
ravenwoodglass
Posted
Ok, I don't know if yall will believe this, but here goes.

Today the GI doctor CALLED ME to APOLOGIZE for telling me that vomiting is not a symptom. He said that after our conversation, he got to thinking and went and did a little research, and he found out that it IS a symptom. He said he wanted to apologize because he likes to tell patients about things that he knows for sure. He also said he didn't want me to lose confidence in him.

I couldn't believe he called me! That just blew my mind! I don't know if a doctor will EVER apologize like that to me agian! I now respect the man even more because this proves that he is willing to admit that he has made a mistake.

I believe you and it sounds like a doctor who is willing to learn. Good for him. My GI did the same when I was finally diagnosed as he didn't even consider doing an endo because my blood work was negative. It is nice when doctors are willing to admit they are human.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified...
    2. trents
      - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you...
    3. Paulaannefthimiou
      - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Are Bobresmill gluten free oats ok for sensitive celiacs?
    4. jenniber
      - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks! i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me b...
    5. trents
      - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      High TTG-IgG and Normal TTG-IgA

      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,849
    • Most Online (within 30 mins)
      7,748
    Jadelucia
    Newest Member
    Jadelucia
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Bob red mill gluten free oats

      By trents · Posted

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Bob red mill gluten free oats

      By Paulaannefthimiou · Posted

      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      Disaccharide deficient, confusing biopsy results, no blood test

      By jenniber · Posted

      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      High TTG-IgG and Normal TTG-IgA

      By trents · Posted

      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.