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I Was Careless...

hannahp57

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hannahp57 Contributor
hannahp57
Posted

Okay today i made calzones for my husband and I for dinner. I usually make dinner and on nights that he works i drive up to the fire station and eat with him. Today i made them and i took them up there. about ten minutes after we ate i began feeling stomach cramps. at first i thought maybe its just a bit of gas...then i got really tired so i told him i wanted to sit. as soon as i sat down it got worse so i told him i needed to leave earlier than i normally do. he asked if it was gluten and i told him i didnt think so because it started so quickly after i ate. nevertheless, when i got home i looked through my ingredients. i checked the pizza sauce and the cheese but nothing looked questionable. then i remembered that a few weeks back i had bought a small bag of wheat flour while my sister was visitng (she doesnt like gluten free :lol: ) so i looked at my bags of gluten free flours to see if they had gotten contaminated. upon opening the bag i thought had been brown rice flour, i smelled at and no way was that rice flour. whats really is when i used it earlier i looked at it and smelled it to make sure because i hadnt labeled either bags of flour, and when i looked at it looked exactly like brown rice flour. butmy nose must have been stuffy or something because it smells like wheat now!!

anyone ever done anything like this? ive been kicking myself since i got home because i am almost three years gluten free and should know better!

also, has anyone ever been glutened and gotten sick with five to ten minutes of a meal? it was like my stomach didnt even try to digest it, it was so fast!

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cyberprof Enthusiast
cyberprof
Posted

Some people get immediate reactions, some don't.

I can sometimes tell within 5 minutes of eating. I start burping and my stomach may make noices and I feel nauseous.

Sorry about your mix-up and hope you feel better soon.

camoflauge Newbie
camoflauge
Posted

My personal experience is that the longer you are gluten free, the more sensitive you become to just a minute amount of gluten. I used to use makeup that contained wheat protein and never broke out at all-I never even thought about wheat being in makeup. I just happened to buy a makeup a few months ago that was gluten free. Just the other night I was invited to a mary kay party and we tried on some makeup. I decided to buy the concealer because i loved it so much. The next morning I put on the concealer and went on my way, but by 6 pm that night my face broke out with so many little bumps and my face started feeling like it was "burning". so i hurried up and took my makeup off and tried to figure out anything different I had tried. All I could come up with was the concealer. So I found the package and low and behold, in the middle of the ingredient list was the wheat protein. I had been mostly gluten free for 2 years-except the hidden things and cross contamination so I didn't react as harshly as I am now.

Hopefully someone else will chime in-I react but it usually takes me a few days for it to get into my system.

hannahp57 Contributor
hannahp57
Posted
  • Author

thanks for that. i never thought about becoming more sensitive. that makes sense though!!! i guess it is easy to feel so confident that you slip up. it certainly doesnt happen very often

i wont be doing this again. well not like this anyways..

darkhorse Apprentice
darkhorse
Posted

I'm sorry about getting glutened. I am just getting over two back-to-back glutenings. The first happened at a restaurant and I didn't feel it until the next morning. The second one happened due to using a cast iron skillet that was previously used for gluten containing food and I felt it before I was even done with my meal, so less than half an hour. I think it may depend on your sensitivity level and the amount of gluten consumed. I know I am more sensitive now than I was before because of going on again off again gluten free due to testing for Celiac. I hope you feel better soon.

mattathayde Apprentice
mattathayde
Posted

well if it makes you feel better i was using kellogs corn flake crumbs for 8 months before i realized it had malt in it, i had been making a meat loaf with it all the time at school and wondered why i was getting sick all the time.

i also kept using heinz 57 steak sauce that i didnt realize had malt vinegar in it. when i went gluten-free i think i had assumed those were gluten-free and never checked.

-matt

hannahp57 Contributor
hannahp57
Posted
  • Author

thanks for the encouragement all! i am feeling it so much better. i went through the worst of last night. the D and then fatigue and fogginess. then cramps...like even my legs and arms. i told my sister who is also Celiac and she has gotten sick that fast too. her i laws made beer chicken and didnt let her know. they pretend its all in her head so when she asked about ingredients thye lied to her. it makes me so sad that people do that...

and i used kellogs flakes for a long time before i caught on too! back when i was first diagnosed i thought malt was okay... three years later though and im good about reading labels. i have been kicking myself today though. that was a big mistake!

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mattathayde Apprentice
mattathayde
Posted
thanks for the encouragement all! i am feeling it so much better. i went through the worst of last night. the D and then fatigue and fogginess. then cramps...like even my legs and arms. i told my sister who is also Celiac and she has gotten sick that fast too. her i laws made beer chicken and didnt let her know. they pretend its all in her head so when she asked about ingredients thye lied to her. it makes me so sad that people do that...

and i used kellogs flakes for a long time before i caught on too! back when i was first diagnosed i thought malt was okay... three years later though and im good about reading labels. i have been kicking myself today though. that was a big mistake!

i will be blatantly honest, i would kick their butt (going to stay pg here but i am thinking more pg 13 or rin my head). if some one knowingly glutened me they would learn real fast to never think about it again

-matt

cyberprof Enthusiast
cyberprof
Posted
thanks for the encouragement all! i am feeling it so much better. i went through the worst of last night. the D and then fatigue and fogginess. then cramps...like even my legs and arms. i told my sister who is also Celiac and she has gotten sick that fast too. her i laws made beer chicken and didnt let her know. they pretend its all in her head so when she asked about ingredients thye lied to her. it makes me so sad that people do that...

and i used kellogs flakes for a long time before i caught on too! back when i was first diagnosed i thought malt was okay... three years later though and im good about reading labels. i have been kicking myself today though. that was a big mistake!

Hannah, hope you're better soon.

Do you have two sisters, one celiac and one not?

hannahp57 Contributor
hannahp57
Posted
  • Author

cyperprof- yes i have two sisters, one celiac, and one not. ironically my twin is the healthy one :lol: my older sister was diagnosed right after i was

and matt- i completely agree. i have tried to tell her to quit taking her kids over there, because her youngest is showing signs of celiac. and if she wont prtect herself she needs to keeo the little one from it. she needs to grow!

mattathayde Apprentice
mattathayde
Posted
cyperprof- yes i have two sisters, one celiac, and one not. ironically my twin is the healthy one :lol: my older sister was diagnosed right after i was

and matt- i completely agree. i have tried to tell her to quit taking her kids over there, because her youngest is showing signs of celiac. and if she wont prtect herself she needs to keeo the little one from it. she needs to grow!

are you identical twins or fraternal ?

if she identical she probably just doesnt have noticeable symptoms or hasnt triggered it yet, heck even if she is fraternal i would be she falls in that category

-matt

hannahp57 Contributor
hannahp57
Posted
  • Author

matt-

haha she is my fraternal twin...and the only symptom i would guess she's ever shown is extreme moodiness :P

i've suggested she get tested but she is quite stubborn. she loves her fast food. i personally don't miss it!

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    • catnapt
      how much gluten do I need to eat before blood tests?

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      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
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