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Gluten Free - Various Questions

chantaspell

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chantaspell Newbie
chantaspell
Posted

Hi, It is my first post here and I hope I am not covering too much old ground...I've had a search and can't find the answer to my question...

I recently took a celiac test (one of the do-it-yourself ones you can buy in a pharmacy) which showed that I didn't have celiac. The thing is though, I have many of the symptoms and am fairly convinced I react badly to wheat and other gluten containing products...

Therefore I am going to try and eliminate those foods and see if it makes a difference. But first I have a few questions:

1. How long should I eliminate the foods for? Assuming that I do have some kind of gluten intolerance how long will it be before i notice a difference? One of my main presenting symptoms anxiety/breathlessness after gluten meals and low mood/depression.

2. Do I need to cut out all gluten, including oats? or is a radical reduction enough at this experimental stage.

Many Thanks in advance for your help, this forum is great and with so much good advice from friendly people!

T

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MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

I have never heard of an over the counter test. What did it involve?

If you want to try being gluten-free, then you need to be 100% gluten-free. No cheating, no regular oats, etc. To see results, it depends. It may be over night or a few weeks or even two months, You just have to stick with it. Plus, there will be slip ups. It took my family and me months to figure our new diets out.

Good luck!!

chantaspell Newbie
chantaspell
Posted
  • Author
I have never heard of an over the counter test. What did it involve?

Hi, and thanks for the info.

The over the counter test I took was the Biocard Test which is available in paharmacies like Boots here in the uk: Open Original Shared Link

It is supposed to be very accurate, returning false negatives only 2 % of the time, although I can't quite remember where I heard that statisitic!

So, looks like I ned to try 2 months with not even a gram of gluten!

MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

Ah, thanks for the link! Maybe it is just a UK thing, then!

OptimisticMom42 Apprentice
OptimisticMom42
Posted

It won't be - 60 days no gluten and then a doughnut.

You'll get sick when you were sure there was no gluten in your diet, you'll look back, read the label, look it up on the internet and find that others have had reations to the same item.

After this happens several times and you can't blame it on the flu or your Aunts potato salad, you'll realize you won't be needing that doughnut test.

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    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
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    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
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