Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could I Just Be Monosodium Glutamate Intolerance ( As I Hope)

Serversymptoms

Recommended Posts

Serversymptoms Contributor
Serversymptoms
Posted

I now know that I'm monosodium glutamte intolerance. After remembering recent history, and observing myself... monosodium glutamate really kicked in my symtoms. The lump on the back of my head seem to have swell, I got headaches in the area of the lump, felt drowsyness etc..... and notice all of this happen during a few hours later ( sometimes minutes) consuming monosodium glutamate. I also feel as if I'm celiac also ( blood test came back negative, though I had went on a two week diet before test... consuming wheat only 3 times for testing). My hairtexture seems to be improving etc.... my health seems to be getting better avoding monosodium glutamate and gluten. I know it's been said that many celiacs are msg intolerance also.... so it pushes me even more to the thought that I may be celiac. How should I go about knowing whether I'm msg and gluten intolerance, or just one? Ofcourse, I'm hoping it's just msg intolerance... though I think it's both.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


leadmeastray88 Contributor
leadmeastray88
Posted
I now know that I'm monosodium glutamte intolerance. After remembering recent history, and observing myself... monosodium glutamate really kicked in my symtoms. The lump on the back of my head seem to have swell, I got headaches in the area of the lump, felt drowsyness etc..... and notice all of this happen during a few hours later ( sometimes minutes) consuming monosodium glutamate. I also feel as if I'm celiac also ( blood test came back negative, though I had went on a two week diet before test... consuming wheat only 3 times for testing). My hairtexture seems to be improving etc.... my health seems to be getting better avoding monosodium glutamate and gluten. I know it's been said that many celiacs are msg intolerance also.... so it pushes me even more to the thought that I may be celiac. How should I go about knowing whether I'm msg and gluten intolerance, or just one? Ofcourse, I'm hoping it's just msg intolerance... though I think it's both.

I really don't know anything about MSG intolerance, and I don't know how severe the symptoms can be.

As far as I know, MSG is mostly gluten-free in the US and Canada, but I could be wrong. It could definitely be an additional intolerance you may have in addition to gluten intolerance.

To do an elimination diet, you need to eliminate 1 thing at a time so you know which is causing your problems. Why not just go MSG free at first for atleast a month, and see what happens. If you're still having problems, then go gluten free for a month. It's easier to pinpoint it this way, but you need to absolutely avoid it, which means no eating out and eating very simple foods, and eliminating any cross contamination issues.

Sorry it wasn't much help, but I hope you feel better soon :)

Serversymptoms Contributor
Serversymptoms
Posted
  • Author
I really don't know anything about MSG intolerance, and I don't know how severe the symptoms can be.

As far as I know, MSG is mostly gluten-free in the US and Canada, but I could be wrong. It could definitely be an additional intolerance you may have in addition to gluten intolerance.

To do an elimination diet, you need to eliminate 1 thing at a time so you know which is causing your problems. Why not just go MSG free at first for atleast a month, and see what happens. If you're still having problems, then go gluten free for a month. It's easier to pinpoint it this way, but you need to absolutely avoid it, which means no eating out and eating very simple foods, and eliminating any cross contamination issues.

Sorry it wasn't much help, but I hope you feel better soon :)

Already started a gluten free diet ( consuming wheat about 3-5 times during so), and feel healthier, and seeing improvements in symptoms. Though I did notice recently, when I eat something with msg I sorta experience a kick in my symptoms.

Serversymptoms Contributor
Serversymptoms
Posted
  • Author

I seem to report my symptom reactions when eating things with monosodium glutamate.... though a day free of monosodium glutamate and my symptoms are extremly low, or not present at all. So I recently started to avoid monosodium glutamate after noticing I would experience symptoms when eating things with it. Though now I'm questioning can I just be celiac free, and monosodium glutamate intolerance? When reporting reactions with things I've tested ( that has wheat), it may have contained monosodium glutamate... though unable to find the product packages that gave me high allergic reactions. I'm also well introduced that many celiacs ( as I've read) are monosodium glutamate intolerance... which makes me question even more if I'm also gluton intolerance. How should I go about deciding between whether I'm gluten and monosodium glutamate intolerance... or if I'm just msg intolerance ( as I would hope).

Serversymptoms Contributor
Serversymptoms
Posted
  • Author

Urgent

I'm debating on whether I'm just monosodium glutamate intolerance, or also likely gluten intolerance as well. I did get a blood test and my doctor called in with the results, saying everything tested was negative and I'm not celiac. Though I also should mention I was on a 2-3 week diet ( gluten free, within 2-3 weeks I only consumed gluten 3-5 times). I do remember experiencing symptoms with most, while others appeared to be minor. How likely could these results be false, due to my gluten free diet?

I do notice everytime I eat something with monosodium glutamate, I experience symptoms ( such as lump on back of head may swell, etc...). Though recently ( a few days ago) when I ate things consuming wheat but no monosodium glutamate I did not experience symptoms that I can recall. I happen not to experience symptoms from eating wheat shortly after as I do with monosodium glutamate ( mainly chips I guess). Since eliminating monosodium glutamate my health seems like it's getting even better, and my rash appears to be going away and other symptoms/ skin conditions ( though I'm also taking vitamins). I have heard of many people who have been misdiagonose as being celiac when it was only monosodium glutamate.

I'm wondering if my symptoms seem to have been improving some when I was not eating things with gluten/ wheat since I also eliminated a large intake of monosodium glutamate?

Are most celiacs intolerance to monosodium glutamate?

Most who are celiac experience allergic like symptoms when intaking wheat/ gluten?

Being allergic to monosodium glutamate basically limits you away from many things that contain wheat, and almost the same diagnoses?

(Any other information you think I woudl like to know base off my question, I'm interested)

______________________________________________________________________

lizard00 Enthusiast
lizard00
Posted

An MSG intolerance is not that uncommon, among celiacs and non celiacs. That's why many restaurants advertise when they're MSG free... My mom doesn't have celiac, but MSG gives her terrible headaches.

A very easy way to test yourself would be to try one thing without the other for a couple of days. So, MSG while gluten-free, then eat gluten while MSG free. Keep a diary and keep track of what you find. Try each for a week if you can, that way you get a clearer picture. Sometimes reactions are not immediate, so it's important not to try one scenario one day, and the other one the next. Give yourself some time to truly test out whether you'll react or not.

Serversymptoms Contributor
Serversymptoms
Posted
  • Author

Well I've been seeing slow improvements when staying away from gluten, though when I decided to eliminate monosodium glutamate from my diet, I started to see more vast improvements, with my rash almost gone.... I question could this part of my long gluten free diet. Which I did consume gluten within those weeks, and more recently a day or two ago. I can really point out my symptoms when I eat something that says msg with ingrediants.... mainly chips. I also hear msg is in many foods etc.... If it's all just msg then why did I see slow improvements in symptoms?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 5 months later...
Estahrita Newbie
Estahrita
Posted

Hi-

Can you please let me know how you are doing now? I am going through the same issue- though I am 100% sure about MSG- it makes me really sick- I also would get a bump on my head, hives, digestive problems within a couple hours of eating something with MSG or its derivatives.

Did you worsen when eating gluten?

Hope you are better now!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,332
    • Most Online (within 30 mins)
      7,748
    Nicolah
    Newest Member
    Nicolah
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.