Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free Oats


Roda

Recommended Posts

Roda Rising Star

I was wondering if anyone has problems with some brands of gluten free oats but can tolerate other brands. I am leaning on the fact that I probably can't tolerate oats and that sucks! I know some celiacs can't tolerate them, but also alot do. I figured I would be one who could. Just goes to show you never know. Would trying a different brand make any difference?

I decided to try oats for the first time in 7 1/2 months. I have been feeling great and my ttg was negative two months ago. I bought Bobs Red Mills certified gluten free oats. I made apple spice cookies. I have to admit I was a glutten and ate about 7 cookies. They tasteted soooo good. About a half and hour or so later I felt like my stomach was full. Then I started belching all evening long. I didn't have the burning sensation just sour when I would burp. My intestines were rumbling also. I took a couple of tums and went to bed. I used to eat oats before gluten free and seemed fine with them. I ate them occasionally and never had any problem with the fiber. To me this seems a little more than not being used to the fiber. For example if I eat black beans they cause me to get bloated and gassy and I know the brand is gluten free. It is just me not used to that amout of fiber in the beans. I don't get heartburn or burp with them either. There was alot of cinnamon in the recipe and it is large quanties can give me heartburn. However, I find it a little suspicious that I felt fine all day and after eating the cookies I had this problem. I don't feel too bad this morning just a little burping and rumbling in my tummy. I am probably going to try just eating a bowl of the oatmeal in another couple of days to see if the same thing happens and then I'll know for sure. Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



hasail Rookie

I have only tried the Bob's Red Mill Oats as you did, and I wasn't impressed, to tell you the truth. Although I can't say that I noticed any adverse reactions, I will say that I did not like the taste of the oats. Admittedly, I haven't had oats since my diagnosis, which was over ten years ago, but I don't remember oats tasting like Bob's Oats. They had a funny taste that I cannot put my finger on........the best way I can describe it, is that they taste very "earthy" at not much like oats.

I might have simply gotten a bad batch, but the taste alone, made me think that I'm not THAT desperate to have oatmeal in the morning!

sixtytwo Apprentice

Oh, man, I tried regular Quaker Oatmeal a while ago and did I ever get sick. I like the BRM oats okay, but they take a long time to cook. I decided maybe just to be oat free to be safe. I am gluten intolerant and can get away with some French fries that have been cooked with other things and low risk stuff like that if I don't do it often, so was surprised at the reaction to the oatmeal. I get neurological problems as a reaction to the oats.

However, if you like cream of wheat, then try cream of buckwheat, it is wonderful in the winter. Buckwheat is actually a berry, so no problem for us that eat gluten-free.

  • 2 weeks later...
buxschot Newbie
I was wondering if anyone has problems with some brands of gluten free oats but can tolerate other brands. I am leaning on the fact that I probably can't tolerate oats and that sucks! I know some celiacs can't tolerate them, but also alot do. I figured I would be one who could. Just goes to show you never know. Would trying a different brand make any difference?

I decided to try oats for the first time in 7 1/2 months. I have been feeling great and my ttg was negative two months ago. I bought Bobs Red Mills certified gluten free oats. I made apple spice cookies. I have to admit I was a glutten and ate about 7 cookies. They tasteted soooo good. About a half and hour or so later I felt like my stomach was full. Then I started belching all evening long. I didn't have the burning sensation just sour when I would burp. My intestines were rumbling also. I took a couple of tums and went to bed. I used to eat oats before gluten free and seemed fine with them. I ate them occasionally and never had any problem with the fiber. To me this seems a little more than not being used to the fiber. For example if I eat black beans they cause me to get bloated and gassy and I know the brand is gluten free. It is just me not used to that amout of fiber in the beans. I don't get heartburn or burp with them either. There was alot of cinnamon in the recipe and it is large quanties can give me heartburn. However, I find it a little suspicious that I felt fine all day and after eating the cookies I had this problem. I don't feel too bad this morning just a little burping and rumbling in my tummy. I am probably going to try just eating a bowl of the oatmeal in another couple of days to see if the same thing happens and then I'll know for sure. Thanks

buxschot Newbie

I get the same reaction when I eat those oats...I tried the Rolled oats and the Steel cut oats...Same reaction to both...I never used to have a problem (pre - celiac) with oats (Quaker)...I keep tryin to eat the Red Mill because I like them...but I just cant stand the misery they bring to my gut..

Roda Rising Star

I have decided I am going to continue to be oat free. I had another reaction to them. I was really hoping I could eat them. Oh well! :(

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - JoJo0611 replied to JoJo0611's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      CT with contrast.

    2. - Scott Adams replied to Ginger38's topic in Related Issues & Disorders
      2

      Shingles - Could It Be Related to Gluten/ Celiac


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,398
    • Most Online (within 30 mins)
      7,748

    Megannnnn
    Newest Member
    Megannnnn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • JoJo0611
      I didn’t know there were different types of CT. I’m not sure which I had. It just said CT scan with contrast. 
    • Scott Adams
    • Scott Adams
      I had the same thing happen to me at around your age, and to this day it's the most painful experience I've ever had. For me it was the right side of my head, above my ear, running from my nerves in my neck. For years before my outbreak I felt a tingling sensation shooting along the exact nerves that ended up exactly where the shingles blisters appeared. I highly recommend the two shot shingles vaccine as soon as your turn 50--I did this because I started to get the same tingling sensations in the same area, and after the vaccines I've never felt that again.  As you likely know, shingles is caused by chicken pox, which was once though of as one of those harmless childhood viruses that everyone should catch in the wild--little did they know that it can stay in your nervous system for your entire life, and cause major issues as you age.
    • trents
    • Clear2me
      Thanks for the info. I recently moved to CA from Wyoming and in that western region the Costco and Sam's /Walmart Brands have many nuts and more products that are labeled gluten free. I was told it's because those products are packaged and processed  in different  plants. Some plants can be labeled  gluten free because the plant does not also package gluten products and they know that for example the trucks, containers equipment are not used to handle wheat, barely or Rye. The Walmart butter in the western region says gluten free but not here. Most of The Kirkland and Members Mark brands in CA say they are from Vietnam. That's not the case in Wyoming and Colorado. I've spoken to customer service at the stores here in California. They were not helpful. I check labels every time I go to the store. The stores where I am are a Sh*tshow. The Magalopoly grocery chain Vons/Safeway/Albertsons, etc. are the same. Fishers and Planters brands no longer say gluten free. It could be regional. There are nuts with sugar coatings and fruit and nut mixes at the big chains that are labeled gluten free but I don't want the fruit or sugar.  It's so difficult I am considering moving again. I thought it would be easier to find safe food in a more populated area. It's actually worse.  I was undiagnosed for most of my life but not because I didn't try to figure it out. So I have had all the complications possible. I don't have any spare organs left.  No a little gluten will hurt you. The autoimmune process continues to destroy your organs though you may not feel it. If you are getting a little all the time and as much as we try we probably all are and so the damage is happening. Now the FDA has pretty much abandoned celiacs. There are no requirements for labeling for common allergens on medications. All the generic drugs made outside the US are not regulated for common allergens and the FDA is taking the last gluten free porcine Thyroid med, NP Thyroid, off the market in 2026. I was being glutened by a generic levothyroxin. The insurance wouldn't pay for the gluten free brand any longer because the FDA took them all off their approved formulary. So now I am paying $147 out of pocket for NP Thyroid but shortly I will have no safe choice. Other people with allergies should be aware that these foreign generic pharmaceutical producers are using ground shellfish shell as pill coatings and anti-desicants. The FDA knows this but  now just waits for consumers to complain or die. The take over of Wholefoods by Amazon destroyed a very reliable source of good high quality food for people with allergies and for people who wanted good reliably organic food. Bezos thought  he could make a fortune off people who were paying alot for organic and allergen free food by substituting cheap brands from Thailand. He didn't understand who the customers were who were willing to pay more for that food and why. I went from spending hundreds to nothing because Bezo removed every single trusted brand that I was buying. Now they are closing Whole foods stores across the country. In CA, Mill Valley store (closed July 2025) and the National Blvd. store in West Los Angeles (closed October 2025). The Cupertino store will close.  In recent years I have learned to be careful and trust no one. I have been deleberately glutened in a restaurant that was my favorite (a new employee). The Chef owner was not in the kitchen that night. I've had  a metal scouring pad cut up over my food.The chain offered gluten free dishes but it only takes one crazy who thinks you're a problem as a food fadist. Good thing I always look. Good thing they didn't do that to food going to a child with a busy mom.  I give big tips and apologize for having to ask in restaurants but mental illness seem to be rampant. I've learn the hard way.          I don't buy any processed food that doesn't say gluten free.  I am a life long Catholic. I worked for the Church while at college. I don't go to Church anymore because the men at the top decided Jesus is gluten. The special hosts are gluten less not gluten free. No I can't drink wine after people with gluten in their mouth and a variety of deadly germs. I have been abandoned and excluded by my Church/Family.  Having nearly died several times, safe food is paramount. If your immune system collapses as mine did, you get sepsis. It can kill you very quickly. I spent 5 days unconscious and had to have my appendix and gall bladder removed because they were necrotic. I was 25. They didn't figure out I had celiac till I was 53. No one will take the time to tell you what can happen when your immune system gets overwhelmed from its constant fighting the gluten and just stops. It is miserable that our food is processed so carelessly. Our food in many aspects is not safe. And the merging of all the grocery chains has made it far worse. Its a disaster. Krogers also recently purchased Vitacost where I was getting the products I could no longer get at Whole Foods. Kroger is eliminating those products from Vitacost just a Bezos did from WF. I am looking for reliable and certified sources for nuts. I have lived the worst consequences of the disease and being exposed unknowingly and maliciously. Once I was diagnosed I learned way more than anyone should have to about the food industry.  I don't do gray areas. And now I dont eat out except very rarely.  I have not eaten fast food for 30 years before the celiac diagnosis. Gluten aside..... It's not food and it's not safe.  No one has got our backs. Sharing safe food sources is one thing we can do to try to be safe.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.