Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Was It The Rice Krispie Bars Or


The Kids Folks

Recommended Posts

The Kids Folks Apprentice

Hi- needing some help here... quick background. Our DS ge 8 went gluten-free in October due to digestive, no growth, sleep issues etc. Our house went gluten-free as well. DD age 4 was gluten-free at home exculsively, but allowed to have gluten at school etc. By January she went totally gluten-free as well.

She had been on prevacid for reflux and gerd since she was 2. Once gluten free - no reflux and gerd issues! Yea!

The doctor diagnosed her with a gluten/wheat intolerance based on her reaction to the diet. (note: this was our previous peds, who thought that I was one of "those crazy moms - if you know what I mean... but that's for another post).

Yesterday was possibly the worst day ever... DS now 5 had the most major meltdown tantrum in Wallmart - it was just like the people that you see on the Nanny or some other show where they act like the mom is inept at raising her kid. She was screaming, hitting me, pulling my hair, trying to pull things off the racks - I ended up sitting on the floor with her trying to calm her down enough so that we could leave. She continued acting out in the parking lot and in the van, where after getting her buckled in she unbuckled and we had to sit in the parking lot for a while. Once we finally got home, this continued like this on and off with her hitting, bitting, screaming, being incredibly angry until 9pm when she finally wore out (never mind that the walmart incident began around 12:30)

We had a similar incident a few weeks ago, otherwise she is a pretty sweet girl, singing throughout the day - generally happy. So finally my question - the only thing that we can think happened was that she ate a rice krispie bar at VBS two days in a row for snack. The other time that this happened a few weeks ago, she ate a bowl of rice krispies at my in-law (who are still trying to understand the gluten free thing).

I'm trying to figure out if the rice krispies are enough to cause such a huge reaction. Not that I'm planning on giving them to her again anytime soon or ever. The other things that changed prior to this - her schedule was super busy with lots going on during the day and later than normal bed times. So could this be the food or just a 5 year old tantrum thing?

If anyone has experienced anything like this or has anywords of wisdom, that would be great I am totally wiped out from yesterday!

The Kids Folks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



flourgirl Apprentice

I'm not sure if I can really be a help...except to share some of the things I've read. As far as I know Rice Krispies contain barley malt.......and therefor a nono. I steer clear of them.

From personal experience and from reading, I understand that by going on the gluten-free diet and ridding the body of the "poisons" a person becomes (often), much more sensitive to gluten. I do believe that a tiny amount can set off a huge reaction...like any "allergen" or poisons. The body reacts....differently for different people. Your immune system is largely in the gut.....the whole body is linked....reactions can affect any part of you. If you've done much reading, you'll find that there is a suspected link of gluten to things like ADD, Autism, and other personality/brain disorders. And why not? A meltdown could very well be a direct result of glutening.

Hope this is helpful. I wish you luck :)

flourgirl Apprentice

BTW......Krispie treats are very easy to make with gluten-free Rice Twice cereal, marshmallows and a little butter/marg or whatever spread you use! Home made is always safer because you know what is in there! :)

Darn210 Enthusiast

If she had the same (tantrum) type of reaction when she had the rice krispies at your in-laws, then I would say yes, it could be a reaction. Something else to consider . . . it could be her reaction to barley . . . just in case you know she may have gotten wheat but didn't react this way. I've read on here where people have differenct reactions depending on what the source of the gluten was.

. . . and I hear ya . . . lot's of people (even my mom) thought it was OK to give my daughter rice krispies . . . luckily, she was old enough to tell them she couldn't have that brand of cereal.

taweavmo3 Enthusiast

Yes! You just described my son and daughter perfectly if gluten sneaks in somewhere. Right down to the major meltdown at Walmart, lol!!!!!

My 5 year old doesn't get GI symptoms like my daughter....his main symptom is in his behavior. He gets SO mean....the last tantrum, at Walmart (what is it about that place?) had me in tears. He was so out of control, he was yelling and screaming at me, and said he wished I wasn't his mother and that I would go to heaven. My dh made me laugh, and said "well, it could have been worse, at least he said heaven!". Anyway, this is a kid that is normally super sweet natured, very affectionate to everyone he meets,and comes up to me a million times a day to give me a hug and to tell me he loves me. Gluten and milk transform him into a completely different child.

So, I think you are right on to think that the Rice Krispies caused this. And the good news is that soon you will have your sweet little girl back!

laurac Newbie

Since Rice Krispies and Rice Krispie treats are not gluten free I would say that it probaby is the culprit. Seems like she does well when not glutened.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,163
    • Most Online (within 30 mins)
      7,748

    Estee
    Newest Member
    Estee
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...