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Any Body Near Indianapolis..i Am Newly Diagnosed...

ME AND ME

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ME AND ME Newbie
ME AND ME
Posted

JUST LOOKING FOR SOMEONE TO TALK TOO....FAMILY DOESNT UNDERSTAND AND MOST OF THE SO CALLED FRIENDS DONT CARE...

DONT REALLY WANT TO WHINE ABOUT IT (BOO HOO..LOL) BUT I FEEL KINDA ALONE WITH ALL THIS...

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Darn210 Enthusiast
Darn210
Posted

Hi ME&ME,

Indy has a local support group. Here is there website:

Open Original Shared Link

Take a look around, there is a lot of good information. They also hold beginner's meetings (schedule is on the site). They meet on the north side (Carmel) in the new Clarion building at 116th and Meridian.

In addition, this forum is also a great place for info.

  • 1 month later...
Momoftwo Newbie
Momoftwo
Posted
JUST LOOKING FOR SOMEONE TO TALK TOO....FAMILY DOESNT UNDERSTAND AND MOST OF THE SO CALLED FRIENDS DONT CARE...

DONT REALLY WANT TO WHINE ABOUT IT (BOO HOO..LOL) BUT I FEEL KINDA ALONE WITH ALL THIS...

I was recently diagnosed with celiac disease and I feel the same way. Are you in Indianapolis?

  • 11 months later...
shayre Enthusiast
shayre
Posted

I'm newly diagnosed too. I'm in Indy (Fishers). I just met a neighbor who has it as well. My hubby and I are planning a nice night out tomorrow for our anniversary. We are going downtown to eat and stay at the Conrad, so I've been online trying to research accomodating restaurants. I ran across this board, and I was already a member of celiac.com. Nice to meet you! Always good to stay in touch with local people. Are any of you intolerant of everything? I really don't know how I'll eat anything...or drink anything. I wish now that it was JUST gluten that I had a problem with. Hang in there dude! I wish that I could go back to when I just had to avoid gluten, so if that's all that you have to avoid...PLEASE count your blessings! There are a lot of people on this site who can't eat anything without feeling sick. I know that doesn't help right now, and believe me...I go through my angry phases!!! Just realize that it could always be worse! If you guys want to talk, I will try to stay on here more!

  • 5 months later...
Asianmom Newbie
Asianmom
Posted

Hello! I am from the Carmel area and have had Celiac for 12+ years now! I know how frustrating it can be, especially right now, as I am 7 1/2 weeks pregnant and SO sick anyways, and it actually takes me back to the days before being diagnosed with the constant stomach aches, and nausea. UGH! I hope you are able to find some people to reach out to and have talked to them...if not sounds like there are a few of us around here!!! Share your frustrations and vent away! It is hard when people do not understand! Nice to see you on here!

Financialman Newbie
Financialman
Posted

Hello from Southern Indiana. Hang in there. You have lots of friends on this forum who have gone through the same thing. Just stay in touch and keep posting and you will get through this.

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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thanks @Scott Adams. Do you know if Kirkland Signature supplements share facility and production lines with other products containing gluten?  I'm worried that I'll react to this brand just like I did with other gluten-free labelled supplement brands. 
    • Matthias
      Unexpected gluten exposure risk from cultivated mushrooms

      By Matthias · Posted

      Many thanks!
    • Scott Adams
      Unexpected gluten exposure risk from cultivated mushrooms

      By Scott Adams · Posted

      This is a really common area of confusion. Most natural cheeses (cheddar, Swiss, mozzarella, Parmesan, brie, camembert, and most blue cheeses) are inherently gluten-free, and you’re right that the molds used today are typically grown on gluten-free media. The bigger risks tend to come from processed cheeses: shredded cheese (anti-caking agents), cheese spreads, beer-washed rinds, smoke-flavored cheeses, and anything with added seasonings or “natural flavors,” where cross-contact can happen. As for yeast, you’re also correct — yeast itself is gluten-free. The issue is the source: brewer’s yeast and yeast extracts can be derived from barley unless labeled gluten-free, while baker’s yeast is generally safe. When in doubt, sticking with whole, unprocessed cheeses and products specifically labeled gluten-free is the safest approach, especially if you’re highly sensitive.
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