Dentist? Will Just Any Do?

[g1gg1e]

One issue with our YDD is she has low enamel...we noticed last night ( at tooth inspection ) that she has a cavity on a molar.

What do you look for in a pediatric dentist? Do you have any tips for going to one with a child with Celiacs?

[Foxfire62]

One issue with our YDD is she has low enamel...we noticed last night ( at tooth inspection ) that she has a cavity on a molar.

What do you look for in a pediatric dentist? Do you have any tips for going to one with a child with Celiacs?

I recommend bio dentists.

[g1gg1e]

I recommend bio dentists.

I found a holistic Dentist , he normally sees adults but said he would see her because of her condition

Wish us luck!

[Rondar2001]

I would send her to a dentist that specializes in kids. Try checking with your own dentist for any recommendations.

[g1gg1e]

I would send her to a dentist that specializes in kids. Try checking with your own dentist for any recommendations.

Yeah....I haven't been in 10 + years...Ive never had a cavity or any issues LOL that would be a great place to start though.

Every one that Ive talked to on the phone either had not ever seen a child with Celiacs OR my friends had said they have had there issues blamed on nursing , bad diet etc...the kid hardly ever has refined sugar , colorings , eat whole foods , out of the garden etc...I'm just wanting someone experienced.

I'm thinking we will go with the guy I called and had 2 recommendations for and then if she needs any work I may then take her for a 2nd opinion...not sure..

Dentist make me nervous.

[Roda]

We have always had great experiences with dentists and we go faithfully every 6 months. I started taking both my boys to my regular 6 month checkups even before they started going themselves. The dentist would let them sit in the chair and show them the tools. They also watched me get my cleaning and check ups. By the time they were both two they were very comfortable and let them do anything. We see a regular dentist and not a pediatric one. My oldest(8yo) is having issues with cavities between his teeth. Our dentist is aware of me having celiac and is great. I asked her if my oldest had enamal problems and she said his teeth are good and that his teeth are very tight together for baby teeth. My youngest (4yo) had some cavities come up on his 2 year molars. Since he was only three at the time she was not confortable filling his and we were referred to a pediatric dentist. They were great and my youngest one did great. They did not let me go with him and he did it all by himself. This year he had to have the other two finaly filled and I told our regular dentist that he did so well for the other one and asked if she would consider filling them. She did and I again sent him back by himself and he did wonderful. If you have not had any dealing with a dentist in a long time yourself, then I would go with the ped dentist since your child is so young, having issues, and has never had a previous experience.

[g1gg1e]

Well we have been to two dentists now. The first did not charge us and wanted to see Celiac teeth AND educate himself more. He referred us to a Ped dentisit ( #2). That one was not for us ( he kept saying her allergy was a "factor" , but that it was because she was eating to often etc. ) , He didn't know what Celiac was nor do I feel the urge to educate or argue with him further.

We are going now to Dentist #3. YDD has 4 cavities that we know of now

Wish us luck and support finding someone to work with that doesn't think she eats candy all day!

[DentalMom]

Well we have been to two dentists now. The first did not charge us and wanted to see Celiac teeth AND educate himself more. He referred us to a Ped dentisit ( #2). That one was not for us ( he kept saying her allergy was a "factor" , but that it was because she was eating to often etc. ) , He didn't know what Celiac was nor do I feel the urge to educate or argue with him further.

We are going now to Dentist #3. YDD has 4 cavities that we know of now

Wish us luck and support finding someone to work with that doesn't think she eats candy all day!

As a dental hygienist I am sadden to say that my profession is not well versed in celiac enamel defects. When my daughter's teeth erupted severely decalcified neither my dentist employer or the pediatric specialist (and instructor at MD Dental School) that I took her to even mentioned celiacs as a possibility. My own employer accused me of feeding her candy!!! I am a hygienist for goodness sakes!! My other children have no dental issues. It was not until her intestinal issues had her on daily meds that I began researching this link. Interestingly, I spoke to her pediatrician and she also had no knowledge in the area. I think you should consult a registered dietitian and ask him/her if they know of a dentist that has a special interest in this.

I treated my daughter with a low sugar diet, using sweeteners like Splenda and Xylitol. Splenda is easier to handle then artifical sweeteners and Xylitol has cavity fighting properties. Three month fluoride varnishes and frequent check ups would be helpful. Most importantly, daily brushing by mom or dad with a fluoride paste (if she can rinse and spit if not MI Paste which is a calcium supplement) and FLOSSING are the best you can do to cut her risks down drastically.

GOOD LUCK, and sorry we have been so clueless... I am working on it.

[margie]

One issue with our YDD is she has low enamel...we noticed last night ( at tooth inspection ) that she has a cavity on a molar.

What do you look for in a pediatric dentist? Do you have any tips for going to one with a child with Celiacs?

[margie]

I find myself educating my child's pediatric dentist about Celiac. She has been great once getting hip to our reality. DS has had loads of work, poor babe. However, the permanent teeth are coming in strong and hard. Like I said, the dentist gets it now. I remember the day she told me she'd only seen such enamel issues like my son's in children adopted from China. I have friends who adopted from China and they dealt with the teeth issue, too. Still, I admit, after hearing this I went home, found a private place, and sobbed. But his permanent teeth seem to be developing well as of two days ago when we went in for a check up. Sealants next month on the incoming molars just to be on the safe side.

I would suggest not putting up with any dentist who denies the fact that our kids have soft teeth due to their autoimmune disease. Educate them, let them know that pediatric dentists are often the first to point out to parents that they might test their kids for celiac when they find these issues. I've only read this myself, but once the dentists I speak with do their research they seem very interested. I admit it would be cool to have health practitioners whom we dont have to educate, but until that day...

[g1gg1e]

Well the paperwork came in the mail for dentist #3 and I already feel better about this one ( watch me eat my words ) it was addressed to my youngest and wanted more family history and habit info... so I stand by my feelings that dentist #2 was a he had a nice office in a fancy part of town but I guess that doesn't mean he is the most educated

I'm going to go back to the xylitol tooth paste we used before..we don't use fluoride we have fluoridated water again and when we had well water last year her teeth actually looked allot better....

I'm also going to work on getting her a medical ID bracelet in the next week or so. I found one small enough to fit her tiny wrist....I hope it cuts down on the family members trying to poison her.

[DentalMom]

Well the paperwork came in the mail for dentist #3 and I already feel better about this one ( watch me eat my words ) it was addressed to my youngest and wanted more family history and habit info... so I stand by my feelings that dentist #2 was a he had a nice office in a fancy part of town but I guess that doesn't mean he is the most educated

I'm going to go back to the xylitol tooth paste we used before..we don't use fluoride we have fluoridated water again and when we had well water last year her teeth actually looked allot better....

I'm also going to work on getting her a medical ID bracelet in the next week or so. I found one small enough to fit her tiny wrist....I hope it cuts down on the family members trying to poison her.

Glad to see you have someones attention.

The reason I recommended fluoride toothpaste in addition to your fluoridated water is because our kids' teeth need additional mineralization. Fluoride is a negative ion that sticks to the calcium in the enamel, making it harder. Some staining can occur from fluoride but at least the teeth will be more resistant to decay.

I have a meeting on next Thursday with the pediatric chair of the dental school at University of Maryland where I teach. I hope to convince him to add Celiac's to our screening list.

[g1gg1e]

Glad to see you have someones attention.

The reason I recommended fluoride toothpaste in addition to your fluoridated water is because our kids' teeth need additional mineralization. Fluoride is a negative ion that sticks to the calcium in the enamel, making it harder. Some staining can occur from fluoride but at least the teeth will be more resistant to decay.

I have a meeting on next Thursday with the pediatric chair of the dental school at University of Maryland where I teach. I hope to convince him to add Celiac's to our screening list.

Hope you Celiac screening makes the list.

I'm glad the dentist drama is over for the most part.... I informed dentist #3 we had been to others before and to stay on my good side She helped me check the tooth paste for gluten ( it says its gluten free). She also does "happy" pills ( a.k.a valium) I feel much better about that then gas or putting her out...she has 6 cavities ( all facial) confirmed and I think I just saw a new one this week...still have to figure out the insurance issue also..I'm going to schedule the appointment for Sept and work the paper work out later I think...there goes $1000!

now I still need to find a supportive primary Dr.