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Newbie To Gluten-free

Yellow Rose

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Yellow Rose Explorer
Yellow Rose
Posted

Okay first of all just ignore all the celiac info on my profile. I'm logged onto a family member who also has celiacs' account. I'm fourteen and I have celieac's disease. I've been misdiagnosed for almost a year now, and I thought that the unbearable pain was never gonna go away. But five members of my family also have celiac's and after telling them all my syptoms, they figured out I have it. I only found out about two days ago, no blood test yet. But today my family put me on a wheat free diet. I'm used to all of the pain coming right after I eat but I've been pain free for almost twelve hours!!! :D I know it's something weird to be happy about, but after a year of chronic and constant pain, I'm just tickled pink that it's been gone for twelve hours! Does anyone have any advice for me? What do I do?!

Ashley Lee

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luvthelake21 Rookie
luvthelake21
Posted

Hey Ashley, my daughter is thirteen and has had it for 3 years. She is doing great on the diet. She was so tired of the pain she was glad to change her diet. It was kind of hard at first not being able to eat a lot of teenagers munchy foods but since there is so much other food she is cool with it. It is good you came here to ask questions. Ask away somebody probley knows the answers.

mushroom Proficient
mushroom
Posted

Yeah, what a joy to be pain-free after eating. Sure keeps the motivation going. :) Good luck!

Chef16 Apprentice
Chef16
Posted

I know what you mean! It's so great to be pain-free! :D

The first thing to do is to not panic! You're probably at a loss of what to eat. Living Without magazine has great recipes, if you cook. You can get a lot on the website too. (www.livingwithout.com)

In the meantime, you can buy packaged food. However, there are rules:

1. Check the ingredients!!! If it contains any gluten ingredients, don't eat it, obviosly

Some gluten-containing ingredients/foods are wheat, barley, oats (not determined), rye, malt, coucous, triticale, semolina, graham, ect.

If you ever want to check an ingredient, you can check here: Open Original Shared Link

You also need to be careful of things in open containers and bins where people use scoops that could have been in something with gluten. Pretty much just don't eat anything unless you're sure it's safe.

2. Check the "processed with..." list. If it is processed with wheat/gluten, you can't eat it. This can usually be found under the ingredients list (aka cross-contamination)

To get you started, here are some basic foods that you can find at any grocery store:

Basics like most dairy products and all fresh fruit and vegetables

Fruity Pebbles, Bush's Vegetarian beans, Cocoa Puffs, Rice Chex, all Pamelas Products (www.pamelasproducts.com), all Glutino products (www.glutino.com).

A good meal is Trader Joes corn chips with Safeway Organics salsa and grated jack cheese. They're sort of like fresh nachos that are ready in minutes! You can also just eat heated Bush's Vegetarian beans.

If you have a health food store near you, you could probably find an abundance of gluten-free foods there too. For a HUGE list of gluten-free food and restaurants that you can eat at, buy the triumph dining books at Open Original Shared Link. They can be a real life saver!

You can also email me with any questions you have. I'd be happy to help! I'm 13 and I've been gluten-free for over 1 yr.

Here's my email address: Emmaliffick16@comcast.net

(Sorry, you might have to enter my email manually, I couldn't get the link to work.)

Esther Sparhawk Contributor
Esther Sparhawk
Posted

Ashley,

When my daughter was first diagnosed w/ celiac disease, I bought a book called, "Kids with Celiac Disease" by Danna Korn. It was a life-saver! It helps you plan ahead for any teen events that deal with food: pizza night, birthday parties, church youth group, summer camp, school lunches, etc...

I tried to attach a link to Amazon, where you could buy the book online (with a parent's approval/help), but the link wouldn't work for some reason. Health food stores sometimes carry "Kids with Celiac Disease" as well. It's a must-have.

FYI, I'm not just a parent of a kid with celiac disease, I'm also a public school teacher and author. My web site is found at Open Original Shared Link :)

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

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    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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