Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newbie To Gluten-free


Yellow Rose

Recommended Posts

Yellow Rose Explorer

Okay first of all just ignore all the celiac info on my profile. I'm logged onto a family member who also has celiacs' account. I'm fourteen and I have celieac's disease. I've been misdiagnosed for almost a year now, and I thought that the unbearable pain was never gonna go away. But five members of my family also have celiac's and after telling them all my syptoms, they figured out I have it. I only found out about two days ago, no blood test yet. But today my family put me on a wheat free diet. I'm used to all of the pain coming right after I eat but I've been pain free for almost twelve hours!!! :D I know it's something weird to be happy about, but after a year of chronic and constant pain, I'm just tickled pink that it's been gone for twelve hours! Does anyone have any advice for me? What do I do?!

Ashley Lee


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



luvthelake21 Rookie

Hey Ashley, my daughter is thirteen and has had it for 3 years. She is doing great on the diet. She was so tired of the pain she was glad to change her diet. It was kind of hard at first not being able to eat a lot of teenagers munchy foods but since there is so much other food she is cool with it. It is good you came here to ask questions. Ask away somebody probley knows the answers.

mushroom Proficient

Yeah, what a joy to be pain-free after eating. Sure keeps the motivation going. :) Good luck!

Chef16 Apprentice

I know what you mean! It's so great to be pain-free! :D

The first thing to do is to not panic! You're probably at a loss of what to eat. Living Without magazine has great recipes, if you cook. You can get a lot on the website too. (www.livingwithout.com)

In the meantime, you can buy packaged food. However, there are rules:

1. Check the ingredients!!! If it contains any gluten ingredients, don't eat it, obviosly

Some gluten-containing ingredients/foods are wheat, barley, oats (not determined), rye, malt, coucous, triticale, semolina, graham, ect.

If you ever want to check an ingredient, you can check here: Open Original Shared Link

You also need to be careful of things in open containers and bins where people use scoops that could have been in something with gluten. Pretty much just don't eat anything unless you're sure it's safe.

2. Check the "processed with..." list. If it is processed with wheat/gluten, you can't eat it. This can usually be found under the ingredients list (aka cross-contamination)

To get you started, here are some basic foods that you can find at any grocery store:

Basics like most dairy products and all fresh fruit and vegetables

Fruity Pebbles, Bush's Vegetarian beans, Cocoa Puffs, Rice Chex, all Pamelas Products (www.pamelasproducts.com), all Glutino products (www.glutino.com).

A good meal is Trader Joes corn chips with Safeway Organics salsa and grated jack cheese. They're sort of like fresh nachos that are ready in minutes! You can also just eat heated Bush's Vegetarian beans.

If you have a health food store near you, you could probably find an abundance of gluten-free foods there too. For a HUGE list of gluten-free food and restaurants that you can eat at, buy the triumph dining books at Open Original Shared Link. They can be a real life saver!

You can also email me with any questions you have. I'd be happy to help! I'm 13 and I've been gluten-free for over 1 yr.

Here's my email address: Emmaliffick16@comcast.net

(Sorry, you might have to enter my email manually, I couldn't get the link to work.)

Esther Sparhawk Contributor

Ashley,

When my daughter was first diagnosed w/ celiac disease, I bought a book called, "Kids with Celiac Disease" by Danna Korn. It was a life-saver! It helps you plan ahead for any teen events that deal with food: pizza night, birthday parties, church youth group, summer camp, school lunches, etc...

I tried to attach a link to Amazon, where you could buy the book online (with a parent's approval/help), but the link wouldn't work for some reason. Health food stores sometimes carry "Kids with Celiac Disease" as well. It's a must-have.

FYI, I'm not just a parent of a kid with celiac disease, I'm also a public school teacher and author. My web site is found at Open Original Shared Link :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,998
    • Most Online (within 30 mins)
      7,748

    Wendy Jo
    Newest Member
    Wendy Jo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      If this applies geographically, in the U.K., physicians will often declare a diagnosis of celiac disease based on the TTG-IGA antibody blood test alone if the score is 10x normal or greater, which your score is. There is very little chance the endoscopy/biopsy will contradict the antibody blood test. 
    • JoJo0611
      TTG IgA reference range 0.0 to 14.9 KU/L
    • trents
      What was the reference range for that test? Each lab uses different reference ranges so a raw score like that makes it difficult to comment on. But it looks like a rather large number.
    • JoJo0611
      I have had the tTG-IgA blood test my result are >250.0  I am waiting for the appointment with the gastroenterologist for endoscopy and biopsies.    what are the chances it’s not coeliacs.  waiting and not knowing is so hard. Especially the eating of gluten knowing it may be causing you more harm and coping with the symptoms. 
    • knitty kitty
      @sleuth, Has your son been checked for nutritional deficiencies?  All of those symptoms can be caused by malnutrition.  I had severe malnutrition that went unrecognized by my doctors.  Intense fatigue, brain fog, depression, anxiety, and gastrointestinal distress are symptoms of deficiencies in the eight essential B vitamins, especially Thiamine B1, which becomes low first because the demand is higher when we're sick.     Celiac Disease causes inflammation and damage of the intestinal lining which inhibits absorption of essential nutrients.  Checking for nutritional deficiencies is part of proper follow up care for people with celiac disease.   Is your son taking any vitamin supplements?  Most supplements contain thiamine mononitrate which in not readily absorbed and utilized by the body.  Benfotiamine is a form of thiamine that is shown to promote intestinal healing.  Benfotiamine is available over the counter.  Benfotiamine is safe and nontoxic.   Is your son eating processed gluten-free foods?  Gluten-free processed foods are not required to be enriched with vitamins like their gluten containing counterparts.   Is your son following a low histamine diet?  Histamine is released as part of the immune response to gluten and other foods high in histamine.  High levels of histamine in the brain can cause anxiety, insomnia, and depression.  The body needs the B vitamins to make the enzyme Diamine Oxidase (DAO) to break down and clear histamine.  DAO supplements are available over the counter.  Vitamin C helps clear histamine as well.  Some people find over the counter antihistamines helpful as well, but they're not for long term use.   Nicotine has antihistamine-like properties, but can also irritate the gut.  Tobacco, from which nicotine is derived, is a nightshade (like tomatoes, potatoes, peppers and eggplant).  Nightshades contain alkaloids which affect gastrointestinal permeability, causing leaky gut syndrome.  Nicotine can cause gastrointestinal irritation and alter for the worse the microbiome. Safer alternatives to Nicotine that have antihistamine properties include Lemon Balm (Sweet Melissa),  Passion Flower, Chamomile, and Bilberry.  They can be taken as supplements, extracts, or tea.  These will help with the anxiety, insomnia and depression in a much safer way. Oolong tea is also helpful.  Oolong tea contains the amino acid L-Theanine which helps the digestive tract heal.  (L -Theanine supplements are available over the counter, if not a tea drinker.)  Tryptophan, a form of Niacin B3, also helps calm digestive symptoms.  Another amino acid, L-Lysine, can help with anxiety and depression.  I've used these for years without problems.   What ways to cope have you tried in the past?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.