Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Do You Get Celiac

Guest gliX

Recommended Posts

Guest gliX
Guest gliX
Posted

I learned I had celiac 2 years ago and have been gluten-free since. Does that mean I was born with the disease? No one in my immediate family tested positive for celiac, except my aunt and most of my cousins recently tested positive. We suspect my grandpa might've had it but don't want to test him for it at this time, he is 90 and very weak. Can celiac be given from one person to another other than through genes. If so, how exactly? Can it be given through physical contact? Thanks.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KaitiUSA Enthusiast
KaitiUSA
Posted

Celiac disease is not contagious and can not be given to anyone through contact, kissing, etc.... You are born with the predisposition and genes for it but it may not be activated until something triggers it later in life. If there are family members who have it that shows it runs in the family. It is a genetic autoimmune disease. It can be triggered at any point in life. I was always healthy growing up then mono triggered my celiac. Celiac can be triggered by surgeries,stress, childbirth, viruses such as mono, and so forth. There is a small percentage of people without the gene.

Carriefaith Enthusiast
Carriefaith
Posted

Most people that have the gene for celiac are either born with celiac or they get it later in life. For those who get it later in life, I think the gene stays off until an environmental or physical stress triggers the gene on, resulting in celiac. I think there is a small percent of people that get celiac without the gene.

Celiac is not a virus or a bacterial infection, therefore, you cannot "catch" it. However, you can pass it on to your kids through your genes.

celiac3270 Collaborator
celiac3270
Posted

Yes...Celiac cannot be given to anyone else, except of course, through genes. You didn't necessarily have celiac a birth, but you had a genetic predisposition to it...HLA DQ2 and DQ8....then the celiac had to be triggered, such as with surgery or high-stress situations. Once triggered, of course, you have it. Of course, triggers aren't contained to a high-stress situation, surgery, etc.....

The fact that you have it means that someone else in your family had it before you. It could be a parent, it could be a grandparent on either side of your family, or even one of their parents....

Guest gliX
Guest gliX
Posted

Oh, I didn't think it could be sent through physical contact, just curious. Has gene therapy successfully been used to this point to cure celiac disease? (by correcting or replacing the gene that triggers celiec disease)

MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

Isn't it the symptoms which the triggers bring out?

KaitiUSA Enthusiast
KaitiUSA
Posted

It can trigger symptoms to start but it doesn't have to. Some people just don't get symptoms.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

Right, that's why I think all of us are born with it and then we see the symptoms.

Lesliean Apprentice
Lesliean
Posted

I always wonder when they say some people get Celiac disease who don't have the genes because there are documented cases, around 2%, who have HLA DQ1 or DQ3. While those with DQ1 and DQ3 generally present with neurological symptoms and often gastro symptoms, they often flunk the gold standard biopsy test. (If you look at gluten ataxia which is resolved with a gluten free diet and has positive serology for anti-glaindins, DQ2 is 70%, DQ8 is 10%, and DQ1 is 20% so there are a lot of gluten sensitive people out there who need to be on a gfd who are not DQ2 or 8).

So, I think we can pretty well trace all Celiac disease back to a genetic predisposition of DQ2 of 90%, DQ8 of 8%, and DQ1 of 2% and sometimes DQ3. If we take away the biopsy for the diagnosis and use gluten relieved symptoms and positive serology instead the numbers go way up and include more DQ 1 nd 3. I know I've had it all my life and I carry two copies of DQ1. Others have symptoms as children and it goes away till adulthood and others are triggered by a trauma, but all have the genetic markers for it. It even seems the symptoms you tend to get are most often typical of the genetic makeup you have. DQ2 and 8 are very sensitive gastro markers and 1 often is gluten ataxia, and 3 has its particular tendencies, and so on. This is cutting edge science.

brain.hastypastry.net has a posting for a immunization that may be coming out but their board is down right now so I can't add the link. Will try to add it tomorrow.

Leslie

Guest gliX
Guest gliX
Posted

What exactly would an immunization do? Is this a cure for the disease?

KaitiUSA Enthusiast
KaitiUSA
Posted

There is no cure for the disease as of now and there won't be one for a while. They are only in researching stages for things. The only thing is the gluten free diet.

ianm Apprentice
ianm
Posted

A pill or an immunization for this disease is just not the way to go. It is much better to live a healthy lifestyle. A drug just so I can eat crap is just plain wrong. At the risk of sounding like a consipiracy theorist a drug to cure this disease is not going to do you any good. All it will do is cover up the symptoms not treat the source of the disease. This way Pfizer gets rich because you buy their pill so you can eat ConAgra's genetically engineered crap :o . Not a good thing at all :angry: .

Lesliean Apprentice
Lesliean
Posted

Kaiti is right, the GFD is the only cure and I didn't mean to imply otherwise. I shouldn't be allowed to use a computere after 10PM! Still can't get the brain.hastypastry.net to open so I'll let you know what this far off dream note says when I get a chance to copy it over for you.

I'm just glad there is a cure-the diet- and that I am not taking a medicine with side effects for the rest of my life.

PS-Even my asthma is going away now that I am gluten-free. Wow.

Leslie

skbird Contributor
skbird
Posted

I'm with Ianm on this one - I guess the only benefit I can see is for the "oops!" factor (accidental glutening) but then again as lazy as most people are (myself included) if I didn't react anymore I'd probably eat a lot more junk. Though at this point I may be selling myself short, I have been eating great food for 3 years now and loving it! When people ask me how I can stand going to three different stores for groceries, spending extra money, etc, I say hey, this is my life-long hobby and I LOVE it! :)

And as you can see in my signature, I'm a DQ1/DQ3 so maybe I don't have true Celiac but I'm definitely paying for having an "oops" this last weekend... :( Hopefully it will be over soon...

Stephanie

KaitiUSA Enthusiast
KaitiUSA
Posted

I do agree with Ian....the gluten free diet is just a healthier and better way to go even when they discover something years off.

Guest gfinnebraska
Guest gfinnebraska
Posted

I could eat anything until giving birth to my sons. That triggered the celiac for me. It took me YEARS to discover the celiac. I always tease my boys that if it weren't for them I would be enjoying donuts with my coffee!!! :D:D:D

MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

You still had the disease, though. It's just that you didn't have reactions. You are better off knowing than not having symptoms and eating it.

tarnalberry Community Regular
tarnalberry
Posted

From the research I've read, no - she might not actually have had the disease. Not all genetic conditions are active from birth because not all genes are always expressed. You CAN go through some (or all) of your life with the genes that predispose you to getting the damage that is celiac disease, but not have them expressed, so that your immune system does not respond to gluten - hence you don't have the disease. You just have the genetic propensity to develop it.

Guest gfinnebraska
Guest gfinnebraska
Posted

My understanding is the same as yours, Tiffany. Hence why I tease my sons! So far I am the only one in my family that has it. I hope it remains that way!!!

MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

I know we have talked about this before and I still go with that you always have it.

celiac3270 Collaborator
celiac3270
Posted
You still had the disease, though.  It's just that you didn't have reactions.  You are better off knowing than not having symptoms and eating it.

That doesn't mean she had the disease before. She had a predisposition to it, but it might never have developed into full-blown celiac. Certain things can trigger celiac disease, such as surgery or major stress....but it doesn't just bring out symptoms of a disease that was already there.

I know we have talked about this before and I still go with that you always have it.

Sorry, but I'm with Tiffany and Kimberly on this one. You do have to have certain genes to develop celiac: the HLA DQ2 or HLA DQ8..... Without these genes you cannot develop celiac disease under any circumstances, which is why in relatives of celiacs who do not have the gene, follow up testing is unnecessary. Anyway, my point is that the gene is always there, but the celiac disease is not.

Oh, Dr. Green also thinks so :P

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. cristiana
      - cristiana replied to Ginger38's topic in Related Issues & Disorders
      15

      Shingles - Could It Be Related to Gluten/ Celiac

      Thank you for your thoughtful contribution, @Tazfromoz. I live in the UK and the National Health Service funds free vaccines for people deemed to be at heightened risk. I was pleasantly surprised to discover that as a coeliac in my 50s I was eligible for this vaccine, and didn't think twice when it was offered to me. Soon after diagnosis I suffered...
    2. Tazfromoz
      - Tazfromoz replied to Ginger38's topic in Related Issues & Disorders
      15

      Shingles - Could It Be Related to Gluten/ Celiac

      My understanding, and ex I erience is that we coeliacs are likely to suffer more extreme reactions from viruses. Eg we are more likely to be hospitalised with influenza. So, sadly, your shingles may be worse because you are coeliac. So sorry you had to go through this. My mother endured shingles multiple times. She was undiagnosed with coeliac disease until...
    3. hjayne19
      - hjayne19 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Celiac Screening

      Hi all, Looking for some advice. I started having some symptoms this past summer like night sweats and waking at 4 am and felt quite achy in my joints. I was training heavily for cycling for a few weeks prior to the onset of these symptoms starting. I have had low Ferratin for about 4 years (started at 6) and usually sits around 24 give or take. I was...
    4. yellowstone
      - yellowstone posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Cold/flu or gluten poisoning?

      Cold/flu or gluten poisoning? Hello. I've had another similar episode. I find it very difficult to differentiate between the symptoms of a cold or flu and those caused by gluten poisoning. In fact, I don't know if my current worsening is due to having eaten something that disagreed with me or if the cold I have has caused my body, which is hypersensitive...
    5. Churro
      - Churro replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

      I'm no longer dealing with constipation. I got my liver test last month and it was in normal range. Two years ago I did have a vitamin D deficiency but I'm know taking vitamin D3 pills. Last month I got my vitamin D checked and it was in normal range. I don't believe I've had my choline checked. However, I do drink almond milk eat Greek yogurt on a daily...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,076
    • Most Online (within 30 mins)
      7,748
    Monica L
    Newest Member
    Monica L
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • cristiana
      Shingles - Could It Be Related to Gluten/ Celiac

      By cristiana · Posted

      Thank you for your thoughtful contribution, @Tazfromoz. I live in the UK and the National Health Service funds free vaccines for people deemed to be at heightened risk.  I was pleasantly surprised to discover that as a coeliac in my 50s I was eligible for this vaccine, and didn't think twice when it was offered to me.  Soon after diagnosis I suffered mystery symptoms of burning nerve pain, following two separate dermatomes, and one GP said he felt that I had contracted shingles without the rash aka zoster sine herpete.  Of course, without the rash, it's a difficult diagnosis to prove, but looking back I think he was completely spot on.  It was miserable and lasted about a year, which I gather is quite typical. For UK coeliacs reading this, it is worth having a conversation with your GP if you haven't been vaccinated against shingles yet, if you are immunosuppressed or over 50. I have just googled this quickly - it is a helpful summary which I unashamedly took from AI, short for time as I am this morning!   My apologies. In the UK, coeliac patients aren't automatically eligible for the shingles jab unless they're severely immunosuppressed or over the general age for vaccination (currently 50+) but Coeliac UK recommends discussing the vaccine with a GP due to potential splenic dysfunction, which can increase risk, even if not routine for all coeliacs. Eligibility hinges on specific criteria like weakened immunity (chemo, certain meds) or age, with the non-live Shingrix vaccine offered in two doses to those deemed high-risk, often starting from age 18 for the immunocompromised.
    • Tazfromoz
      Shingles - Could It Be Related to Gluten/ Celiac

      By Tazfromoz · Posted

      My understanding, and ex I erience is that we coeliacs are likely to suffer more extreme reactions from viruses. Eg we are more likely to be hospitalised with influenza. So, sadly, your shingles may be worse because you are coeliac. So sorry you had to go through this. My mother endured shingles multiple times. She was undiagnosed with coeliac disease until she was 65. Me at 45. I've had the new long lasting vaccine. It knocked me around badly, but worth it to avoid shingles.
    • hjayne19
      Celiac Screening

      By hjayne19 · Posted

      Hi all,  Looking for some advice. I started having some symptoms this past summer like night sweats and waking at 4 am and felt quite achy in my joints. I was training heavily for cycling for a few weeks prior to the onset of these symptoms starting. I have had low Ferratin for about 4 years (started at 6) and usually sits around 24 give or take. I was doing some research and questioned either or not I might have celiac disease (since I didn’t have any gastric symptoms really). My family doctor ran blood screening for celiac. And my results came back: Tissue Transglutaminase Ab IgA HI 66.6 U/mL Immunoglobulin IgA 1.73 g/ My doctor then diagnosed me with celiac and I have now been gluten free for 3 months. In this time I no longer get night sweats my joint pain is gone and I’m still having trouble sleeping but could very much be from anxiety. I was since referred to an endoscopy clinic to get a colonoscopy and they said I should be getting a biopsy done to confirm celiac. In this case I have to return to eating gluten for 4-6 weeks before the procedure. Just wanted some advice on this. I seem to be getting different answers from my family physician and from the GI doctor for a diagnosis.    Thanks,  
    • yellowstone
      Cold/flu or gluten poisoning?

      By yellowstone · Posted

      Cold/flu or gluten poisoning? Hello. I've had another similar episode. I find it very difficult to differentiate between the symptoms of a cold or flu and those caused by gluten poisoning. In fact, I don't know if my current worsening is due to having eaten something that disagreed with me or if the cold I have has caused my body, which is hypersensitive, to produce symptoms similar to those of gluten poisoning.        
    • Churro
      Celiac disease symptoms

      By Churro · Posted

      I'm no longer dealing with constipation. I got my liver test last month and it was in normal range. Two years ago I did have a vitamin D deficiency but I'm know taking vitamin D3 pills. Last month I got my vitamin D checked and it was in normal range. I don't believe I've had my choline checked. However, I do drink almond milk eat Greek yogurt on a daily basis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.