Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Horrible Digestive Symptoms - Celiac Disease? Doctors Dismiss It!


sunlightsonata

Recommended Posts

sunlightsonata Newbie

Hello!

I am 24yr/female. :lol: I experience diarrhea about 4x/week... and lately, it's all been GREEN! Yuck.

I burp a lot, my stomach is always gurgling... and I have SEVERE abdominal pains. I think it's just gas issues. I get nauseous all the time, and vomit occasionally. Coffee and generally caffeine are big no-no's for me. I get sick literally like 5 minutes after a sip.

It seems it's some sorta GI problem. I'm trying to narrow it down from Crohn's, Celiac, or IBS...

Oh it's super embarrassing! And my doctor seems to think I "need to get a hobby" to take my "mind off being worried".

ARGH! Any help is appreciated. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



OptimisticMom42 Apprentice

Are you being tested for celiacs?

sunlightsonata Newbie
Are you being tested for celiacs?

No, doctor doesn't want to test... he wants to start me on some sorta medication for GERD, and see what happens. I was tested for autoimmune though, and my ANA came back elevated slightly... but that's it!

The Fluffy Assassin Enthusiast
Hello!

I am 24yr/female. :lol: I experience diarrhea about 4x/week... and lately, it's all been GREEN! Yuck.

I burp a lot, my stomach is always gurgling... and I have SEVERE abdominal pains. I think it's just gas issues. I get nauseous all the time, and vomit occasionally. Coffee and generally caffeine are big no-no's for me. I get sick literally like 5 minutes after a sip.

It seems it's some sorta GI problem. I'm trying to narrow it down from Crohn's, Celiac, or IBS...

Oh it's super embarrassing! And my doctor seems to think I "need to get a hobby" to take my "mind off being worried".

ARGH! Any help is appreciated. :)

Why not try going gluten free for a week or two and see if anything changes? Regardless, get a different doctor. The correct response to "get a hobby" is "get a different career."

The poop on green poop from the Mayo Clinic: Open Original Shared Link

It just means you have diarrhea, which you knew already.

Good luck, and welcome to the board.

OptimisticMom42 Apprentice

You should really read up on the elimination diet. Your health problems could be due to a combination of a lot of intolerances happening all at once. If that is the case as it has been for many of us just eliminating gluten will not seem to fix the problem.

You may have to eliminate

■Milk

■Eggs

■Peanuts

■Tree nuts (such as almonds, cashews, walnuts)

■Fish (such as bass, cod, flounder)

■Shellfish (such as crab, lobster, shrimp)

■Soy

■Wheat

these are "the big eight" allergens. I'm allergic to three of them.

You just have to find your "safe foods" and then test other foods one at a time until you have found the ones that are causing your reactions. And don't overlook spices. Celery seed is a very common allergen.

My safe foods are chicken breast, rice, and green foods (lettuce,broc, peas, green beans).

Hope this helps

eringopaint Newbie

I agree it is time for a new Doctor.

One that will test for a disease that you believe you might have.

i have learned through years of Dr visits not to stay with a doc that doesn't listen to their patients or that dismisses your concerns.

I found out that I had celiac disease through an elimination diet like OptimisticMom is talking about.

Good luck.

erin

sunlightsonata Newbie

Thank you eringopaint, optimisticmom42, and the fluffy assassin!

You may have to eliminate

■Milk

■Eggs

■Peanuts

■Tree nuts (such as almonds, cashews, walnuts)

■Fish (such as bass, cod, flounder)

■Shellfish (such as crab, lobster, shrimp)

■Soy

■Wheat

So... haha, basically I have to eliminate everything I am eating. :lol: Perhaps this IS the issue. Do any of you experience persistent nausea? Or at least, did you before you changed your diet and were diagnosed? I absolutely hate it. I've been avoiding most foods these days, and drinking water and more water. I'm hungry, but I don't wanna feel nauseous!!

I always thought I ate healthy, because my diet consists of nothing but a gamut of fruits/veggies, fish, some poultry, nuts, and tons of soy. I love the stuff... soy milk, soy energy bars, soy "meat".

Quick question... are gummy bears toxic to Celiacs?? I just ate a handful about an hour ago, and feel as though I am going to retch.

Thanks all!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sunlightsonata Newbie

Urgh, I should specify... I had this candy called WineGums and then some sorta chocolate covered cinnamon gummy bear thing (which I wouldn't recommend anyway, ha).

I should live by that rule to not accept candy! Though it was from a friend, not stranger. :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,336
    • Most Online (within 30 mins)
      7,748

    VanessaC
    Newest Member
    VanessaC
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.