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Eating Out In General


phakephur

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phakephur Apprentice

That's good to know. Thanks a lot, Richard. :)

Sarah


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jenvan Collaborator

i have had great luck with pf changs. i went there this weekend and the manager came out and said they double check everything about 3 times to me :)

but i do always walk away from a restuarant and go "was it really gluten-free?" i guess we have to go for it and trust. it would only take one person who doesn't care to mess up the order.

i would probably hardly ever eat out, but i feel an unspoken pressure from my husband, and feel like i don't want to be thought of as a "stick-in-the-mud" about yet another thing...

jenvan Collaborator

oops-hit the wrong button....

...but i will say i certainly don't enjoy eating out as i did before. in the back of my mind i dread it when it happens. but i do agree with the earlier post that we should try and go out and make ourselves visible, otherwise, the food industry would feel even less pressure to evolve to our needs :rolleyes:

  • 3 years later...
glutenfreebaker Newbie

I know this is going to make me unpopular, but you guys need to stop being so damn shy. Restaurant staff are paid to wait on you. They are paid to answer questions, and help you decide on a meal that won't make you sick.

Better more upscale places actually train their staff on various food allergies and which products to avoid.

If the staff refuses to help or seems somewhat less than knowledgeable then LEAVE!!

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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