Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Should I Do A Gluten Free Diet? Or Is The Dairy?


Mizyellow

Recommended Posts

Mizyellow Rookie

SO my son has a dairy intolerance and I thought perhaps he had a gluten problem too. ABout 6 weeks ago I started eating dairy (I BF) and he seemed fine for about 2 weeks- then he started having diahrrea. He hasn't been really growing since he was about 7 months (when we started giving him wheat products) He hans't gained any weight for 7 months but he just started having the diarrhea when I started eating dairy. I cut dairy out again and it has taken about 4 weeks but his stool is not quite as loose and his frequency is down. I don't know whether to cut out gluten or just chalk it up to dairy. I am so concerned about his growth problems?! Any advice?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ang1e0251 Contributor

At first I thougt from your post that he was eating gluten-free, then I reread it and now I don't know! Is he not gluten-free now? I would say you already have an answer for dairy as you have a positive dietary response to his being dairy free. If you aren't gluten-free you can try it again and I would keep so notes on his progress. Dr's really respond to the written word even if it's in your handwriting. Keep us posted.

Mizyellow Rookie
At first I thougt from your post that he was eating gluten-free, then I reread it and now I don't know! Is he not gluten-free now? I would say you already have an answer for dairy as you have a positive dietary response to his being dairy free. If you aren't gluten-free you can try it again and I would keep so notes on his progress. Dr's really respond to the written word even if it's in your handwriting. Keep us posted.

He is not gluten-free yet. I was going to start a gluten-free diet after we got the results from his pancreatic elastase test (still not in) but now I am not sure whether or not the growth problem and occasianal dairrhea is reason enough to go gluten-free?

ang1e0251 Contributor

Whether to keep eating gluten for testing or to just plunge in and try the diet, that is a very personal decision. I've read plenty of posts from parents whose child reagained growth going gluten-free. But that is not the only possible medical explanation. Some of the parents held out for testing and others didn't. I hope they will weigh in with you here.

If you are planning to have celiac disease testing, you do need to keep him eating gluten or it will sku the test. Tests are tricky with little ones, they often test with false negatives. I only say that so you can understand the nature of the test. I'm not discouraging you from having the tests. Your dr may want to check for other medical problems and that seems reasonable to me.

Good luck with your boy. He's lucky to have such a caring parent!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,166
    • Most Online (within 30 mins)
      7,748

    melindakathleen
    Newest Member
    melindakathleen
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...