Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dh Can It Go Away Eventually?


hippo33

Recommended Posts

hippo33 Apprentice

ive had the symptoms for the last 6 years and no one knew what i had.finally after seeing my 3rd dermo he sed try staying away from beer for 3 weeks,mayby its the barley he sed.so i did my own research and what he failed to tell me was that there is wheat,barley,rye in almost everything i eat.my sores are on my face and a bit on my skalp,i should have did the reasearch earlier and now i probly have to do the gluten-free thing for ever.my diet has gone well for the past 7 days but 2 nights ago i had some whiskey and sprite zero and i have a little break out i dont know if its that or somthing else that i missed,it is hard lol.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular
ive had the symptoms for the last 6 years and no one knew what i had.finally after seeing my 3rd dermo he sed try staying away from beer for 3 weeks,mayby its the barley he sed.so i did my own research and what he failed to tell me was that there is wheat,barley,rye in almost everything i eat.my sores are on my face and a bit on my skalp,i should have did the reasearch earlier and now i probly have to do the gluten-free thing for ever.my diet has gone well for the past 7 days but 2 nights ago i had some whiskey and sprite zero and i have a little break out i dont know if its that or somthing else that i missed,it is hard lol.

If you are 100% gluten free, then yes, DH goes away. But eventually. For a while, you may also need to eliminate sources of iodine from the diet. But it can take months for everything to clear up. (The DH is caused by IgG deposits under the skin, which require iodine to form. It takes a while for those deposits to be cleaned out.)

hippo33 Apprentice
If you are 100% gluten free, then yes, DH goes away. But eventually. For a while, you may also need to eliminate sources of iodine from the diet. But it can take months for everything to clear up. (The DH is caused by IgG deposits under the skin, which require iodine to form. It takes a while for those deposits to be cleaned out.)

can u give me an example of what has iodine in it,im kinda fortunate i only get 1-4 spots at a time but sometimes i can get a big one that looks like a cigarett burn its kinda gross i wonder y on the face it dont get as rashy as th ones on the knees ans elbows is it because they scratch them a lot?

lovegrov Collaborator
can u give me an example of what has iodine in it,im kinda fortunate i only get 1-4 spots at a time but sometimes i can get a big one that looks like a cigarett burn its kinda gross i wonder y on the face it dont get as rashy as th ones on the knees ans elbows is it because they scratch them a lot?

Lots of things have iodine but a couple of the bigger ones are iodized table salt and shellfish. You cat'y completely eliminate iodine nor would you want to. You need it to live.

richard

hippo33 Apprentice
Lots of things have iodine but a couple of the bigger ones are iodized table salt and shellfish. You cat'y completely eliminate iodine nor would you want to. You need it to live.

richard

maybe u are right i just started back up a couple days ago on my glucosamine and it has sulphate from shell fish mayby i should stop taking it for a while

JillianLindsay Enthusiast

Also, if you've only been completely gluten-free for a week then it will take time for your body to start repairing itself. I've also only been on the diet for 6 days. I am feeling a bit better but am told it takes 2weeks to 2months for your body to be back to "normal". Good luck :)

ive had the symptoms for the last 6 years and no one knew what i had.finally after seeing my 3rd dermo he sed try staying away from beer for 3 weeks,mayby its the barley he sed.so i did my own research and what he failed to tell me was that there is wheat,barley,rye in almost everything i eat.my sores are on my face and a bit on my skalp,i should have did the reasearch earlier and now i probly have to do the gluten-free thing for ever.my diet has gone well for the past 7 days but 2 nights ago i had some whiskey and sprite zero and i have a little break out i dont know if its that or somthing else that i missed,it is hard lol.
tarnalberry Community Regular
Lots of things have iodine but a couple of the bigger ones are iodized table salt and shellfish. You cat'y completely eliminate iodine nor would you want to. You need it to live.

richard

Yup, you can't eliminate iodine (and as richard said, you don't want to), but you can - until the DH heals, not consume extra iodine - so eliminated iodized sald, shellfish, regular fish, seaweed, dairy, and eggs.

Once you no longer are having DH outbreaks (and are gluten free, consistently, the whole time), then you would allow more of those foods back in. But it isn't an intolerance thing - it's not a "avoid wholesale". It's just a reduction, so you're not getting *a lot* of it. (Most of us, in the US, get more than enough iodine, if you're eating dairy, meats, and sea-originated items.)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ang1e0251 Contributor

My DH took about 6-8 weeks to completely heal. I didn't know anything about iodine at the time so didn't reduce it. Maybe mine would have cleared up sooner if I had.

mysecretcurse Contributor

I have been gluten free for going on 2 years (only occasional accidents) and my DH still is really bothering me. I haven't yet eliminated dairy and other grains such as corn. Should I? I don't understand it, because within 6 months of first going gluten free my skin got crystal clear, but then the DH began returning. I have no idea what is triggering me and I'm really confused and sad. :( I can't get testing to see what is bothering me, no job and no health insurance. :(

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lil-oly replied to Jmartes71's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Gluten tester

    2. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    3. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    4. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,156
    • Most Online (within 30 mins)
      7,748

    mike101020
    Newest Member
    mike101020
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • lil-oly
      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye. 
    • JudyLou
    • knitty kitty
      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.