Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Chronic Daily Migraines

Waiting

By Waiting
in Related Issues & Disorders

Recommended Posts

Waiting Newbie
Waiting
Posted

Hi everyone! I'm new here and new to Celiac. I have only been gluten-free since the very end of May (2009). My question is if anyone else suffers (or has suffered) from migraines, daily or otherwise. If so, has the gluten-free diet helped with the frequency or with the intensity? If so, how long was it before you noticed a difference? I'm so ready to say good-bye to this chronic pain!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


eringopaint Newbie
eringopaint
Posted

I had chronic migraines for 35 yrs - during that time I tried EVERYTHING! or so I thought.

I went totally gluten-free in April 08 after greatly reducing my gluten intake for a few years. I guess it was about 4 months into being completely gluten-free that I saw a real drop in frequency - and duration - of my migraines.

After 6-7 months I saw a radical change --- I started to go weeks and then months without any migraines. This was unheard of in my 35 yrs I had migraines!

What I have learned is that even a small trace of gluten (like cross-contamination or gluten-free food made on shared equipment) can trigger my migraines. If I stay vigilant, my migraines remain a thing of the past.

It is well worth the effort!!!

Make sure you are not getting traces of gluten in something.

Good luck!

erin

ang1e0251 Contributor
ang1e0251
Posted

I do not have migraines but my daughter, my assistant's son and other friends do. I helped my daughter when I read about the benefits of feverfew for migraines. I already had her on B6.

This helped her but not as much as another herbal combination called Migraliev. It has feverfew, magnesium and roboflavin. These give her great relief. Much fewer migraines and shorter in duration.

Others we have told about this product have found relief from it. But my assistant's 13 YO son missed most of 2 years of school from migraines. He really had an ongoing headache all the time. She had him to all kinds of specialists with really no relief. I had read "The Miracle of Magnesium" in the meantime. Dr. Dean said of migraines that many suffer very low magnesium. Her recommendations were to eliminate any allergies or food sensitivities, add feverfew, B vitamins and feverfew. He went on the Migraliev, increased magnesium and the other vitamins mentioned. He still had problems on rainy days. He tends to have sinus issues so we found online a nasal spray with capscacian (hot peppers) and feverfew. This has been the final puzzle piece for him. He uses this at the start of a headache and it melts away. Along with the supplements, he has had the migraines under control and looks forward to starting high school.

tarnalberry Community Regular
tarnalberry
Posted

I developed chronic migraines years after going gluten (and dairy) free. I took topamax (daily preventative) for a long time. Supplements helped, but didn't fix the problem, which I think is related to stress and poor neck alignment.

RideAllWays Enthusiast
RideAllWays
Posted

I get migraines after being glutened

lsolatka Newbie
lsolatka
Posted

Tiffany-I noticed your "aka" comment on chocolate and that you continue to have migraines. Have you ever considered chocolate as a cause of migraines? My husband will get a migraine if he eats even one M&M! Just a thought. Lisa

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

My neurologist actually recommended butterbur (similar effect as feverfew) as well as riboflavin and magnesium.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tarnalberry Community Regular
tarnalberry
Posted
Tiffany-I noticed your "aka" comment on chocolate and that you continue to have migraines. Have you ever considered chocolate as a cause of migraines? My husband will get a migraine if he eats even one M&M! Just a thought. Lisa

Yup - I tried dietary tests for all common food triggers (and food allergens) before I went on the daily meds. None of them triggered a migraine for me. Addressing the neck issue has definitely helped (I'm off my meds, for the past 6 weeks), though I can't do anything about the weather affect. (Some people appear to be triggered by sudden day-to-day changes in temperature (possibly due to barometric pressure). I'm pretty sure I'm one of them.)

Waiting Newbie
Waiting
Posted
  • Author

Thanks to all! I initially noticed a difference, but the migraines have returned. Tiffany -- what are you doing for your neck? Daily preventatives (Topomax, sectral, etc.) and migraine meds (imitrex, treximet, etc.) do not work on me; in fact, they all make mine worse. Magnesium has not helped either. So discouraging!

tarnalberry Community Regular
tarnalberry
Posted

besides the magnesium, I also take calcium, a vitB, and (rather a lot of) omega-3's. my neck - I'm working with a chiropractor to reduce the forward head posture and regain curve in the cervical spine. (so, posture exercises, posture awareness during the day, some adjustments (not manual ones, I do *not* like having my neck cracked), and traction (which helps the most, but I hate the most - still do it though, because it really does help)).

ang1e0251 Contributor
ang1e0251
Posted
Thanks to all! I initially noticed a difference, but the migraines have returned. Tiffany -- what are you doing for your neck? Daily preventatives (Topomax, sectral, etc.) and migraine meds (imitrex, treximet, etc.) do not work on me; in fact, they all make mine worse. Magnesium has not helped either. So discouraging!

How much magnesium are you taking? Dr. Carolyn Dean who wrote the book I mentioned recommends around 600 mgs for normal adult patients. I notice I tend to need higher than average amounts of supplements to do the trick. I've built up to 660 mgs right now. That's the point where my bm's are soft. I don't want D so if I think I need more, I'll try the topical oil. It has helped a lot with my neck stiffness and I'm sleeping better as well.

Waiting Newbie
Waiting
Posted
  • Author

Hmmm...will try the higher magnesium. Also, I just found out that I glutened myself on Saturday, which is when my daily migraines (and joint aches) started again :o . DUH!! I guess it will take some time to get used to this ;) .

nasalady Contributor
nasalady
Posted
Hi everyone! I'm new here and new to Celiac. I have only been gluten-free since the very end of May (2009). My question is if anyone else suffers (or has suffered) from migraines, daily or otherwise. If so, has the gluten-free diet helped with the frequency or with the intensity? If so, how long was it before you noticed a difference? I'm so ready to say good-bye to this chronic pain!

I had major daily migraines until I went gluten free in November. Now I only have them when I've been glutened.

For me, it's been a long process to become completely gluten free. For example, yesterday I just realized that I may be glutening myself and my family (we all have gluten issues) by using my old Crockpot because the stoneware is porous. One more thing to replace..... :(

Waiting Newbie
Waiting
Posted
  • Author
I had major daily migraines until I went gluten free in November. Now I only have them when I've been glutened.

For me, it's been a long process to become completely gluten free. For example, yesterday I just realized that I may be glutening myself and my family (we all have gluten issues) by using my old Crockpot because the stoneware is porous. One more thing to replace..... :(

Oh, I know!! I just learned last night that I need different cookware. I bought I separate toaster for me today and replaced all of my cosmetics, lotions, soaps, shampoos, gels, and hairspray. Too bad I can't get back all of the money I spent on doctors!!! :lol: Oh geez, hadn't thought of the Crockpot...or the wok...or the....

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. tiffanygosci
      - tiffanygosci replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

      EDIT: I did find a monthly Zoom meeting for Celiacs through the Celiac Disease Foundation, so I'll be able to talk with some other people on January 15. And I also found a Celiac Living podcast on Spotify made by a celiac. I feel a little bit better now and I am still hoping I will find some more personal connections in my area.
    2. trents
      - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

      Welcome to the celiac.com community, @mamaof7! It means for the one celiac disease antibody test that was ordered, she tested negative. However, other tests should have been ordered, especially for someone so young who would have an immature immune system where there would be a high probability of being IGA deficient. The one test that was ordered...
    3. mamaof7
      - mamaof7 posted a topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

      For reference, daughter is 18 mths old. Was having painful severe constipation with pale stool and blood also bloating (tight extended belly.) Liver and gallbladder are normal. Ultrasound was normal. Dr ordered celiac blood test. We took her off gluten after blood draw. She is sleeping better, no longer bloated and stools are still off color but not painful...
    4. Dizzyma
      - Dizzyma replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Newly diagnosed mam to coeliac 11 year old

      Hi Trent and Cristiana, thank you so much for taking the time out to reply to me. My daughters GP requested bloods, they came back as showing a possibility of celiac disease, she advised me to continue feeding gluten as normal and wait on a hospital appointment. When we got that the doctor was quite annoyed that the gp hadn’t advised to go gluten free i...
    5. tiffanygosci
      - tiffanygosci posted a topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

      I have been feeling so lonely in this celiac disease journey (which I've only been on for over 4 months). I have one friend who is celiac, and she has been a great help to me. I got diagnosed at the beginning of October 2025, so I got hit with all the major food holidays. I think I navigated them well, but I did make a couple mistakes along the way regarding...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,955
    • Most Online (within 30 mins)
      7,748
    JodyBledsoe
    Newest Member
    JodyBledsoe
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • tiffanygosci
      Celiac support is hard to find

      By tiffanygosci · Posted

      EDIT: I did find a monthly Zoom meeting for Celiacs through the Celiac Disease Foundation, so I'll be able to talk with some other people on January 15. And I also found a Celiac Living podcast on Spotify made by a celiac. I feel a little bit better now and I am still hoping I will find some more personal connections in my area.
    • trents
      Help understand results

      By trents · Posted

      Welcome to the celiac.com community, @mamaof7! It means for the one celiac disease antibody test that was ordered, she tested negative. However, other tests should have been ordered, especially for someone so young who would have an immature immune system where there would be a high probability of being IGA deficient.  The one test that was ordered was an IGA-based antibody test. It is not the only IGA antibody test for celiac disease that can be run. The most common one ordered by physicians is the TTG-IGA. Whenever IGA antibody tests are ordered, a "total IGA" test should be included to check for IGA deficiency. In the case of IGA deficiency, all other IGA tests results will be inaccurate. There is another category of celiac disease antibody tests that can be used in the case of IGA deficiency. They are known as IGG tests. I will attach an article that gives an overview of celiac disease antibody tests. All this to say, I would not trust the results of the testing you have had done and I would not rule out your daughter having celiac disease. I would seek further testing at some point but it would require your daughter to have been eating normal amounts of gluten for weeks/months in order for the testing to be valid. It is also possible she does not have celiac disease (aka, "gluten intolerance") but that she has NCGS (Non Celiac Gluten Sensitivity, or just "gluten sensitivity" for short) which is more common. The difference is that celiac disease is an autoimmune disorder that damages the lining of the small bowel whereas NCGS does not autoimmune in nature and does not damage the lining of the small bowel, though the two conditions share many of the same symptoms. We have testing to diagnose celiac disease but there are no tests for NCGS. To arrive at a diagnosis of NCGS, celiac disease must first be ruled out. A gluten free diet is the solution to both maladies.   
    • mamaof7
      Help understand results

      By mamaof7 · Posted

      For reference, daughter is 18 mths old. Was having painful severe constipation with pale stool and blood also bloating (tight extended belly.) Liver and gallbladder are normal. Ultrasound was normal. Dr ordered celiac blood test. We took her off gluten after blood draw. She is sleeping better, no longer bloated and stools are still off color but not painful.    "GLIADIN (DEAMID) AB, IGA FLU Value  0.84 Reference Range: 0.00-4.99 No further celiac disease serology testing to be performed. INTERPRETIVE INFORMATION: Deamidated Gliadin Peptide (DGP) Ab, IgA A positive deamidated gliadin (DGP) IgA antibody result is associated with celiac disease but is not to be used as an initial screening test due to its low specificity and only occasional positivity in celiac disease patients who are negative for tissue transglutaminase (tTG) IgA antibody."   Anyone know what in the world this means. She isn't scheduled to see GI until late April. 
    • Dizzyma
      Newly diagnosed mam to coeliac 11 year old

      By Dizzyma · Posted

      Hi Trent and Cristiana, thank you so much for taking the time out to reply to me.  My daughters GP requested bloods, they came back as showing a possibility of celiac disease, she advised me to continue feeding gluten as normal and wait on a hospital appointment. When we got that the doctor was quite annoyed that the gp hadn’t advised to go gluten free immediately as she explained that her numbers were so high that celiac disease was fairly evident. That doctor advised to switch to a gluten-free diet immediately which we did but she also got her bloods taken again that day as it made sense to double check considering she was maintaining a normal diet and they came back with a result of 128. The hospital doctor was so confident of celiac disease that she didn’t bother with any further testing. Cristiana, thank you for the information on the coeliac UK site however I am in the Rrpublic of Ireland so I’ll have to try to link in with supports there. I appreciate your replies I guess I’ll figure things as we go I just feel so bad for her, her skin is so sore around her mouth  and it looks bad at an age when looks are becoming important. Also her anxiety is affecting her sleep so I may have to look into some kind of therapy to help as I don’t think I am enough to help. thanks once again, it’s great to be able to reach out xx   
    • tiffanygosci
      Celiac support is hard to find

      By tiffanygosci · Posted

      I have been feeling so lonely in this celiac disease journey (which I've only been on for over 4 months). I have one friend who is celiac, and she has been a great help to me. I got diagnosed at the beginning of October 2025, so I got hit with all the major food holidays. I think I navigated them well, but I did make a couple mistakes along the way regarding CC. I have been Googling "celiac support groups" for the last couple days and there is nothing in the Northern Illinois area. I might reach out to my GI and dietician, who are through NW Medicine, to see if there are any groups near me. I cannot join any social media groups because I deleted my FB and IG last year and I have no desire to have them back (although I almost made a FB because I'm desperate to connect with more celiacs). I'm glad I have this forum. I am praying God will lead me to more people to relate to. In my opinion, celiac disease is like the only food- related autoimmune disease and it's so isolating. Thanks for walking alongside of me! I'm glad I know how to help my body but it's still not easy to deal with.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.