Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Chronic Daily Migraines

Waiting

By Waiting
in Related Issues & Disorders

Recommended Posts

Waiting Newbie
Waiting
Posted

Hi everyone! I'm new here and new to Celiac. I have only been gluten-free since the very end of May (2009). My question is if anyone else suffers (or has suffered) from migraines, daily or otherwise. If so, has the gluten-free diet helped with the frequency or with the intensity? If so, how long was it before you noticed a difference? I'm so ready to say good-bye to this chronic pain!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


eringopaint Newbie
eringopaint
Posted

I had chronic migraines for 35 yrs - during that time I tried EVERYTHING! or so I thought.

I went totally gluten-free in April 08 after greatly reducing my gluten intake for a few years. I guess it was about 4 months into being completely gluten-free that I saw a real drop in frequency - and duration - of my migraines.

After 6-7 months I saw a radical change --- I started to go weeks and then months without any migraines. This was unheard of in my 35 yrs I had migraines!

What I have learned is that even a small trace of gluten (like cross-contamination or gluten-free food made on shared equipment) can trigger my migraines. If I stay vigilant, my migraines remain a thing of the past.

It is well worth the effort!!!

Make sure you are not getting traces of gluten in something.

Good luck!

erin

ang1e0251 Contributor
ang1e0251
Posted

I do not have migraines but my daughter, my assistant's son and other friends do. I helped my daughter when I read about the benefits of feverfew for migraines. I already had her on B6.

This helped her but not as much as another herbal combination called Migraliev. It has feverfew, magnesium and roboflavin. These give her great relief. Much fewer migraines and shorter in duration.

Others we have told about this product have found relief from it. But my assistant's 13 YO son missed most of 2 years of school from migraines. He really had an ongoing headache all the time. She had him to all kinds of specialists with really no relief. I had read "The Miracle of Magnesium" in the meantime. Dr. Dean said of migraines that many suffer very low magnesium. Her recommendations were to eliminate any allergies or food sensitivities, add feverfew, B vitamins and feverfew. He went on the Migraliev, increased magnesium and the other vitamins mentioned. He still had problems on rainy days. He tends to have sinus issues so we found online a nasal spray with capscacian (hot peppers) and feverfew. This has been the final puzzle piece for him. He uses this at the start of a headache and it melts away. Along with the supplements, he has had the migraines under control and looks forward to starting high school.

tarnalberry Community Regular
tarnalberry
Posted

I developed chronic migraines years after going gluten (and dairy) free. I took topamax (daily preventative) for a long time. Supplements helped, but didn't fix the problem, which I think is related to stress and poor neck alignment.

RideAllWays Enthusiast
RideAllWays
Posted

I get migraines after being glutened

lsolatka Newbie
lsolatka
Posted

Tiffany-I noticed your "aka" comment on chocolate and that you continue to have migraines. Have you ever considered chocolate as a cause of migraines? My husband will get a migraine if he eats even one M&M! Just a thought. Lisa

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

My neurologist actually recommended butterbur (similar effect as feverfew) as well as riboflavin and magnesium.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tarnalberry Community Regular
tarnalberry
Posted
Tiffany-I noticed your "aka" comment on chocolate and that you continue to have migraines. Have you ever considered chocolate as a cause of migraines? My husband will get a migraine if he eats even one M&M! Just a thought. Lisa

Yup - I tried dietary tests for all common food triggers (and food allergens) before I went on the daily meds. None of them triggered a migraine for me. Addressing the neck issue has definitely helped (I'm off my meds, for the past 6 weeks), though I can't do anything about the weather affect. (Some people appear to be triggered by sudden day-to-day changes in temperature (possibly due to barometric pressure). I'm pretty sure I'm one of them.)

Waiting Newbie
Waiting
Posted
  • Author

Thanks to all! I initially noticed a difference, but the migraines have returned. Tiffany -- what are you doing for your neck? Daily preventatives (Topomax, sectral, etc.) and migraine meds (imitrex, treximet, etc.) do not work on me; in fact, they all make mine worse. Magnesium has not helped either. So discouraging!

tarnalberry Community Regular
tarnalberry
Posted

besides the magnesium, I also take calcium, a vitB, and (rather a lot of) omega-3's. my neck - I'm working with a chiropractor to reduce the forward head posture and regain curve in the cervical spine. (so, posture exercises, posture awareness during the day, some adjustments (not manual ones, I do *not* like having my neck cracked), and traction (which helps the most, but I hate the most - still do it though, because it really does help)).

ang1e0251 Contributor
ang1e0251
Posted
Thanks to all! I initially noticed a difference, but the migraines have returned. Tiffany -- what are you doing for your neck? Daily preventatives (Topomax, sectral, etc.) and migraine meds (imitrex, treximet, etc.) do not work on me; in fact, they all make mine worse. Magnesium has not helped either. So discouraging!

How much magnesium are you taking? Dr. Carolyn Dean who wrote the book I mentioned recommends around 600 mgs for normal adult patients. I notice I tend to need higher than average amounts of supplements to do the trick. I've built up to 660 mgs right now. That's the point where my bm's are soft. I don't want D so if I think I need more, I'll try the topical oil. It has helped a lot with my neck stiffness and I'm sleeping better as well.

Waiting Newbie
Waiting
Posted
  • Author

Hmmm...will try the higher magnesium. Also, I just found out that I glutened myself on Saturday, which is when my daily migraines (and joint aches) started again :o . DUH!! I guess it will take some time to get used to this ;) .

nasalady Contributor
nasalady
Posted
Hi everyone! I'm new here and new to Celiac. I have only been gluten-free since the very end of May (2009). My question is if anyone else suffers (or has suffered) from migraines, daily or otherwise. If so, has the gluten-free diet helped with the frequency or with the intensity? If so, how long was it before you noticed a difference? I'm so ready to say good-bye to this chronic pain!

I had major daily migraines until I went gluten free in November. Now I only have them when I've been glutened.

For me, it's been a long process to become completely gluten free. For example, yesterday I just realized that I may be glutening myself and my family (we all have gluten issues) by using my old Crockpot because the stoneware is porous. One more thing to replace..... :(

Waiting Newbie
Waiting
Posted
  • Author
I had major daily migraines until I went gluten free in November. Now I only have them when I've been glutened.

For me, it's been a long process to become completely gluten free. For example, yesterday I just realized that I may be glutening myself and my family (we all have gluten issues) by using my old Crockpot because the stoneware is porous. One more thing to replace..... :(

Oh, I know!! I just learned last night that I need different cookware. I bought I separate toaster for me today and replaced all of my cosmetics, lotions, soaps, shampoos, gels, and hairspray. Too bad I can't get back all of the money I spent on doctors!!! :lol: Oh geez, hadn't thought of the Crockpot...or the wok...or the....

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Related issues

      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from...
    2. Scott Adams
      0

      Gluten-Free Peanut Butter Cup Swirl Brownies

    3. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Related issues

      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate...
    4. MogwaiStripe
      - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks...
    5. knitty kitty
      - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine. Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes. HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc. Thiamine deficiency inside a cell triggers a...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,255
    • Most Online (within 30 mins)
      7,748
    BeccaLynn
    Newest Member
    BeccaLynn
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jmartes71
      Related issues

      By Jmartes71 · Posted

      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
    • Mari
      Related issues

      By Mari · Posted

      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      Airborne Gluten?

      By MogwaiStripe · Posted

      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Gluten Issues and Vitamin D

      By knitty kitty · Posted

      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Airborne Gluten?

      By knitty kitty · Posted

      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.