Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help -- Is It To Late For A Biopsia For A 18 Months Old ?

bellotas.mom

Recommended Posts

bellotas.mom Newbie
bellotas.mom
Posted

Hi all, I am new here (but so glad to be here, I am full of questions !)

My 18 months old baby boy probably has coeliac disease.

Last december (on his birthday) he tested intollerant, on a blood test, to wheat and milk.

His anti-tranglutaminase IgA level were high (the other two came out normal.).

He was put in a gluten free diet. The vomiting/diarrhea stopped, but he have gained almost

no weight since last September (his weight as a 9 months old was the same as his current

one: 18.5 lb)

Last month we repeated the testing. Now the anti-gliadine IgA level became "weak positive"

(the other two came out normal.). Obviously we were doing something wrong on his diet.

We also tested intollerant to pork. We were sent to see an specialist.

He asked to doule check for all posible surces of gluten-contamination in his diet. The baby

is not longer attending his daycare and we are being even more careful with is diet now

(we already were !). The specialist ordered more testing including a genetic testing HLA-DQ2

(one positive one nonpresent) and 8 (nonpresent).

Now we are waiting for an appointment to perform a biopsia. But I worry that he has been

gluten--free for too long (at least a month) and he is to young.

Do you think that is worth doing the biopsia ?

Is it worth it to give the baby gluten again ? -- He will spend those 4 weeks vomiting and he is

not putting any weight. Honestly, I feel like if I were poisoning him.

PLEASE HELP !!

thanks, BM

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Genna'smom Apprentice
Genna'smom
Posted

Not sure if I can be helpful or not but my 22 mo old daughter stopped eating and drinking and no one knew why and we ended up in several hospitals before a biopsy was done to rule of her esopgus being damaged from acid reflux when they stumbled upon early warning stages for celiac disease when everythng else said no. She has lost weight and was down to 18 lbs at 2 years old at that time...

with being gluten free I am not sure if that will scew the results we are now pursuing genetic testing to see as we still do not know for sure...

Bonnie

bellotas.mom Newbie
bellotas.mom
Posted
  • Author
Not sure if I can be helpful or not but my 22 mo old daughter stopped eating and drinking and no one knew why and we ended up in several hospitals before a biopsy was done to rule of her esopgus being damaged from acid reflux when they stumbled upon early warning stages for celiac disease when everythng else said no. She has lost weight and was down to 18 lbs at 2 years old at that time...

with being gluten free I am not sure if that will scew the results we are now pursuing genetic testing to see as we still do not know for sure...

Bonnie

Thanks for your replay Bonnie. And I wish you and your daughter the best. It is so hard to see your baby having trouble. BM

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,171
    • Most Online (within 30 mins)
      7,748
    kyle68j
    Newest Member
    kyle68j
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • DAR girl
      Celiac and allergic to common subs and adds in prepared foods

      By DAR girl · Posted

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      Disregarded

      By Scott Adams · Posted

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Oldturdle · Posted

      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By plumbago · Posted

      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...