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Do I Need A Dr.

MICHAELENE48

By MICHAELENE48
in Doctors

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MICHAELENE48 Newbie
MICHAELENE48
Posted

I WAS JUST DIGISNOSED WITH FAMILY DR. I THINK I'VE HAD THIS FOR YEARS THE FAMILY DOC. IS SENDING ME TO A GASTOR DR. THEY ACT LIKE THIS IS NOTHING IT HAS ME WORRIED SHOULD I BE :(

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ianm Apprentice
ianm
Posted

It is and it isn't. If you really do then you are going to make some lifestyle changes and they will be for the better. You did not list any symptoms that led your DR to believe you have celiac. For me I was forced to live a much healthier lifestyle and my life is drastically better now than it was over a year ago. This disease is not the end of the world and not as difficult to maintain as it first appears. We need more info about why the doctor suspects celiac. It is very rare to even find a doctor that even knows what it is.

MICHAELENE48 Newbie
MICHAELENE48
Posted
  • Author

I HAVE BEEN VERY ANEMIC FOR YEARS MY CALCIUM LEVELS ARE LOW AS WELL THEY DID THE BLOOD WORK AND I WAS VERY POSITIVE I HAVE HAD IBS AND FIBROMYALGIA FOR YEARS MY THYROID IS SCREWED UP ALSO SI I'M A MESS :rolleyes:

ianm Apprentice
ianm
Posted

Sounds like you got lucky and found a good doctor. All of the problems you listed are related to celiac. Read everything on this website to learn all you can. Ask as many questions as you can think of. We are here to help. This is the first step to a MUCH better life.

MICHAELENE48 Newbie
MICHAELENE48
Posted
  • Author

THE GASTRO DR. ACTS LIKE THIS IS NO BIG DEAL JUST GO ON A DIET IF YOU WANT OR NOT THATS ABOUT IT HE SAID HE NEVER HEARD OF SOMEONE WITH CELIAC HAVEING CANCER I HEARD 1 IN 15 CAN GET CANCER THATS SCARY TO ME :(

celiac3270 Collaborator
celiac3270
Posted

You're correct.....cancer is often associated with intestinal cancer. Your doctor is entirely wrong to think that there is no connection, cause there's a very strong one. I'm not sure the exact statistic, but your chances are greatly increased if you're a celiac not adhering to the gluten-free diet.

Welcome to the board :D

MICHAELENE48 Newbie
MICHAELENE48
Posted
  • Author

MY FATHER DIED OF INTESTANAUL CANCER SO IT WORRIES ME I THINK HE HAD CELIAC HE WAS DEBETIC AND LACTOS INTOLARANT :unsure:

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KaitiUSA Enthusiast
KaitiUSA
Posted

Its a good thing they found this now. If you do not follow the diet you will be at increased risks but not if you adhere to the diet. Also you mentioned your dad was diabetic? That also is linked with celiac. The only thing you really need to be concerned about is following the diet...this site is great for support and info. Good luck :D

ianm Apprentice
ianm
Posted

Just before I went gluten-free I was on the verge of full blown type II diabetes. Now there is no diabetes anywhere in sight for me. Diabetes, lactose intolerance and intestinal cancer are all signs of celiac. Since celiac is a genetic disease it is a good bet your dad had it too. Following the diet is not hard and is actually fun. I now eat foods that I would never have tried otherwise. Buckwheat has become a real favorite.

Rikki Tikki Explorer
Rikki Tikki
Posted

oh Ianm, I think great minds think alike! I have been sick the last couple of months with something other than celiac, but I had your signature going through my head yesterday at work and then saw it on your post today. Made me smile.

Michaelene: I think you need to get a new doctor, some of them just don't know much about it. I remember when the GI doctor told me, his exact words were "you will know more about it in a year than I ever will" I was like what? That was the end of it, I was on my own with a GP that does not have another patient with it. So, for the most part I am on my own. Watch your labels and you will learn a lot on the board here.

:D Welcome

ianm Apprentice
ianm
Posted

I completely agree with that Sally.

chelly1 Apprentice
chelly1
Posted

I know exactlly how you feel when my son was diagnosed i had never even heared of celiac disease and just hearing the word disease was enough to put any one over the edge. I was totally in over my head but not only that I had to look like I knew what I was doing for my sons sake and also make it look like there was nothing to it and every thing was fine. I didn't even know where to start and over 5 years later I am still learning but then so is my son, I am lucky that he was so young I suppose because he knows no different. We had 1 appointment at the hospital and we have never seen a dietician even to this day. But I will say this thank god for this sight and the lovley people on it after struggling on my own for so long at last there are people who understand and know what your talking about... now your on this sight you won't go wrong

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    • AlwaysLearning
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      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
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