Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Opinions/advice?


lonewolf

Recommended Posts

lonewolf Collaborator

I'm not sure where to post this, so I hope this is okay.

My 14 year old son, who has been gluten-free for over 3 years but never officially diagnosed with celiac disease, has been having bowel problems for several months. He just told me a few weeks ago that he's been having bloody diarrhea and blood with bowel movements since April. He's lost 13 pounds in that time and his appetite has fallen way off, as has his energy. All the stool tests from the pediatrician came back negative - no parasites, infections or anything obvious.

We just went to the GI doc this afternoon and he wants to do an upper endoscopy with biopsies and a colonoscopy. It's scheduled for next week. He's looking for Crohn's and anything else that might show up.

Here's some background on my son. He had serious digestive issues when he was a toddler and we took him off dairy, which seemed to help a lot. When he was in 5th grade, he started having some problems at school (and home) with attention and irritability. To make a long story short, he went gluten-free and all the problems cleared up. After several months we reintroduced dairy and he seemed to be fine, until now. I'm wondering if the dairy has something to do with the symptoms.

So, does this sound familiar to anyone? Any ideas on what it could be? It does sound like Crohn's maybe?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lizard00 Enthusiast

So sorry to hear about your son. :( Hope they figure out what's going on soon... seems like I've read those same symptoms can go along with ulcerative colitis. I'm sure they'll probably check for that, but you know how these docs can be.

curlyfries Contributor

I used to bleed so bad all I had to do was sit on the toilet......didn't matter if I had a bowel movement or not. Two different colonoscopies showed nothing. I figured it out for myself. Sugar........especially fruit. No problems now.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    2. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

    3. - trents replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

    4. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,807
    • Most Online (within 30 mins)
      7,748

    Aron2
    Newest Member
    Aron2
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
    • trents
      @GlorietaKaro, your respiratory reactions to gluten make me wonder if there might also be an allergic (anaphylaxis) component at work here.
    • GlorietaKaro
      Thanks to both of you for your responses!  Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In the meantime, I will carry on has I have been— it’s working! Thanks also for the validation— sometimes I just feel crushed by disbelief. Not enough to make me eat gluten though—
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.