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What Was It Like?

runningcrazy

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runningcrazy Contributor
runningcrazy
Posted

If your interested*, my history is basically explained in these two posts..if you want to read it.

https://www.celiac.com/gluten-free/index.php?showtopic=60112

https://www.celiac.com/gluten-free/index.php?showtopic=60276

What was your first appointment with the Gastroenterologist like? Im going in this Thursday and i'm very anxious.

What did they do for you? I know i probably wont have much done, which stinks because im in pain all day now. Its gotten worse each day, and I am now getting shooting sharp pains.

I am 13 by the way, so i dont know if that will affect what happens.

My pediatrician says my stomach pain may have earned me an endoscopy, but im unsure.

What was your experience like, and any advice or anything?

And also we are bringing in my bloodwork, xrays, list of questions and the meds im on.

Please share your experience and any advice.thanks!!

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runningcrazy Contributor
runningcrazy
Posted
  • Author

And also, did you ask about celiacs or did the GI suggest it? Were going to ask just to be sure.

How long did it take until you were diagnosed?

runningcrazy Contributor
runningcrazy
Posted
  • Author

Sorry to keep replying to my own post but i keep remembering questions...

Do most GI doctors know about celiacs. The GI im going to has a small profile on the offices website and he specializes in esophagus disorders, chronic abdominal pain. Nothing about celiacs..

shendler Rookie
shendler
Posted

For me, I didn't have a first appointment since I was constantly at the doctor. I always had bronchitis, migraines, rashes, abdominal pain, diarrhea..etc. I was suggested to go wheat free in September but I didn't understand enough about celiac to stick to a diet. Then on my own I went gluten free this year and I feel a lot better. I would still bring it up with your doctor though since a lot of other people out here have self diagnosed. Also celiac, it's not something many doctors will specialize in, so I'm not surprised it's not on their website.

OptimisticMom42 Apprentice
OptimisticMom42
Posted

My first and only appt. with the gastro was confusing. I didn't feel like he was listening to me very well. I told him that I wasn't having BM's, at all. So he checked and looked surprised when he found that I was right. He said that I had IBS due to allergies,unrelated to celiacs. He ordered a scope (not sure now what kind) and told me to go see my allergy Dr. I cancelled the scope, three times. I know I need to have that test done to check for cancer but at the time drinking a gallon of cold liquid to make me have lots of BM's sounded like torture.

I did go to the allergist. He diagnosed me with a bunch of allergies. When I took those foods out of my diet, I found that I was reacting very strongly to the few foods left in my diet that contained gluten. Oatmeal was giving me rashes and stomach aches. I went back to the allergist. He looked at my knees and elbows and said, "You have celiacs." as he walked me out to the receptionist. It was weird. He was acting like the problem was solved but I was really confused. I knew what celiacs was, basically, but had no idea what to do next.

Thank goodness for this website!

Hope you're feeling better soon. RA

runningcrazy Contributor
runningcrazy
Posted
  • Author

Thanks for your help. It's nice to know what to *somewhat* expect=)

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      TTG IgA and IGA elevated mildy

      By thejayland10 · Posted

      my ttg iga was 16.5 3 months ago and jumped to 30.1 last week. my iga was 415 and jumped to 455. This was done at a different lab though than the first test for ttg iga one had units as ml the other as cu... so not sure if they really jumped as much as shown. i am so strict on my diet and have no clue why this is happening  thank you for attaching this, could this happen randomly even after being gluten-free for so long ? my ttg iga was 16.5 3 months ago and jumped to 30.1 last week. my iga was 415 and jumped to 455. This was done at a different lab though than the first test for ttg iga one had units as ml the other as cu... so not sure if they really jumped as much as shown. i am so strict on my diet and have no clue why this is happening 
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