Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Possible Misdiagnosis


glutengal

Recommended Posts

glutengal Contributor

Was wonder if it is possible to be misdiagnosed with hypothyroidism and actually have celiac? Also had negative blood test and negative biopsy for celiac but biopsy showed gastritis, could this also be a misdiagnosis? Decided to try gluten free diet 2 months ago and feeling much better. Headaches, stomach aches, congestion and runny nose have cleared up. Has anyone else been diagnosed with hypothyroidism or gastritis and later found out they actually had celiac?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor
Was wonder if it is possible to be misdiagnosed with hypothyroidism and actually have celiac? Also had negative blood test and negative biopsy for celiac but biopsy showed gastritis, could this also be a misdiagnosis? Decided to try gluten free diet 2 months ago and feeling much better. Headaches, stomach aches, congestion and runny nose have cleared up. Has anyone else been diagnosed with hypothyroidism or gastritis and later found out they actually had celiac?

Here are some articles on Thyroid Disease in association with Celiac:

https://www.celiac.com/categories/Celiac-Di...Celiac-Disease/

nasalady Contributor
Was wonder if it is possible to be misdiagnosed with hypothyroidism and actually have celiac? Also had negative blood test and negative biopsy for celiac but biopsy showed gastritis, could this also be a misdiagnosis? Decided to try gluten free diet 2 months ago and feeling much better. Headaches, stomach aches, congestion and runny nose have cleared up. Has anyone else been diagnosed with hypothyroidism or gastritis and later found out they actually had celiac?

As Lisa pointed out, it's very common for someone with celiac disease to have an autoimmune thyroid disease as well. In fact, celiac disease, which causes increased production of the cytokine zonulin, has been fingered as the possible culprit in the development of many other autoimmune diseases:

Open Original Shared Link

I very much doubt that you have been misdiagnosed with hypothyroidism. You likely have both problems....as do I. In fact I have seven distinct autoimmune diseases! :(

Good luck with everything!

JoAnn

glutengal Contributor
As Lisa pointed out, it's very common for someone with celiac disease to have an autoimmune thyroid disease as well. In fact, celiac disease, which causes increased production of the cytokine zonulin, has been fingered as the possible culprit in the development of many other autoimmune diseases:

Open Original Shared Link

I very much doubt that you have been misdiagnosed with hypothyroidism. You likely have both problems....as do I. In fact I have seven distinct autoimmune diseases! :(

Good luck with everything!

JoAnn

Thanks to you and Lisa

I also have asthma that came on as an adult and runs in my family, as well as my mother also has hypothyroidism. Daughter has hypothyroidism that was brought on from radiation treatments due to brain tumor as a child. No know family history of celiac but daughter also has many problems with digestion and I have tried the gluten-free diet with her also and it seems to be helping. Just can't get a definite diagnosis as to celiac disease. Don't know what has caused myself and my mother to be hypothyroid. I found out when I had blood work done and routine checkup. Really had no signs physically to indicate being hypothyroid as I wasn't feeling any different.

This is kind of uncomfortable to talk about ... but I did have an incident about six months ago where I felt nauseous and had diarrhea (a whole lot) that had alot... of blood in it that only lasted about an hour and then cleared up. I have not had anymore blood since. I was then constipated with no BM for 14 days and becoming concerned went to Dr. who told me to take Miralax and finally about 2 days later started having small BM's that were very narrow but no signs of blood at all. Lower back ached very badly where I could not stand for very long. Had a CT done and Dr. said everything looked OK. After using Miralax about a week BM's started to return to normal and no problems since. Very strange thing with the amount of blood and I do know for sure in was not due to menstrual cycle (as I had that 2 weeks before) and the blood was coming out anal not vaginal. Could any of this be due to possible celiac?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,035
    • Most Online (within 30 mins)
      7,748

    bostonbell
    Newest Member
    bostonbell
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.