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Views On Camera Pill Endoscopy


MM5079

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MM5079 Rookie

Hello, All

My bloodword tested positive for Celiac about three weeks ago. I had an upper endoscopy last week, and right after the procedure my doctor reported that she saw "blunted" and "less prominent" villi. I went for a follow up today for the official results of the biopsy she took of my duodenum and she now says that the pathologist or whoever reads the biopsy reported that there was not enough damage or evidence to officially diagnose Celiac. So now the doctor says because of my symptoms and dramatic weight loss, and because you can't get a thorough view of the small intestines by an upper endoscopy, she wants to do a full small intestine endoscopy by way of a pill. She says that the camera magnifies everything eight times large and that this will indefinitely tell her if I'm celiac or not.

Has anybody even been diagnosed this way? At this point, I'm ready to just go by the blood test and forget everything else!


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Lisa Mentor

Sometimes I feel like we're lab rats! :angry:

You DO have a diagnosis with positive blood work and you were lucky enough to catch your Celiac before more severe damage could occur. Biopsies can be very unreliable and miss effected areas.

Yes, the pill cam is one of the most useful tools to diagnose because it can offer a full view of the entire intestinal track.

You can continue to test, or begin the diet and look forward to recovery. ;)

lizard00 Enthusiast

My doc wanted to bypass the whole endoscopy and just do the pill cam, as he says it is much more reliable and a complete picture can actually be seen, whereas with an endoscopy, it can be hit or miss. From what it sounded like, insurance doesn't cover the pill cam until an EGD has first been done to warrant further examination... :huh:

For you, it just depends on how much longer it will prolong the process. Sounds like celiac will be the outcome either way.

MM5079 Rookie

Thanks! This makes me feel better! I told myself after today's followup that maybe it's all in my head!

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    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
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