Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Positive Blood Test Results--what Does It Mean?


mom26boys

Recommended Posts

mom26boys Apprentice

Hi! Last week I saw my doctor and asked him to run a test to rule out celiac. I just received my copy in the mail and it says its positive. Here is what the result says:

ENDOMYSIAL AB SCREEN (IGA)

REFLEX TO TITER

ENDOMYSIAL AB(IGA) SCREEN Positive

ENDOMYSIAL AB TITER 1:5

Can anyone tells me what this means? My doctor is on vacation so I have no idea how long it will be before the office calls me about the results. In the meantime, I'm curious to know what this result means. Does it mean I have celiac? Thanks for your help! This is a great forum!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

A postive test result means it is likely that you do have celiac. If you plan on having a biopsy keep eating gluten. If your not having a biopsy then start the diet.

mom26boys Apprentice
A postive test result means it is likely that you do have celiac. If you plan on having a biopsy keep eating gluten. If your not having a biopsy then start the diet.

Thank you. I was afraid of that. I have an appt. with a ge on the 19th, but I dont' know when they will schedule the endoscopy for. I've been gluten-free for about 2 weeks now, and I'm deathly afraid of eating any gluten. I'm even having dreams that I eat a little and then realize it was gluten. LOL Will being gluten-free for a few weeks still make a difference in my endoscopy results, or do you still think I should go back to eating gluten again? Thanks for your help! :)

leadmeastray88 Contributor
Thank you. I was afraid of that. I have an appt. with a ge on the 19th, but I dont' know when they will schedule the endoscopy for. I've been gluten-free for about 2 weeks now, and I'm deathly afraid of eating any gluten. I'm even having dreams that I eat a little and then realize it was gluten. LOL Will being gluten-free for a few weeks still make a difference in my endoscopy results, or do you still think I should go back to eating gluten again? Thanks for your help! :)

Going gluten free for any period of time is not a good idea when you're planning on getting a biopsy.

The biopsy is valuable for many reasons, the most important being determining how much damage you may have, as well as ruling out any other conditions. Then if you have a negative biopsy, you may always wonder "what if I hadn't gone gluten free", and be kicking yourself in the hiney for it :)

If you plan on getting that biopsy, please keep eating gluten until it's done, and hopefully it won't take you too long to get in for the procedure :) Good luck!

tarnalberry Community Regular

Yes, eating gluten free for a couple of weeks could affect your testing. If you plan to go through with an endoscopy, you should indeed go back to eating gluten.

mom26boys Apprentice

Thank you everyone! I really appreciate your input! I will go back to eating gluten until my test results. You are right. If I'm going to go through the process of testing, then I might as well get the most accurate result I can.

ravenwoodglass Mentor
Thank you everyone! I really appreciate your input! I will go back to eating gluten until my test results. You are right. If I'm going to go through the process of testing, then I might as well get the most accurate result I can.

If you have been gluten free for a couple weeks you may have a more intense reaction when you add it back in. If you should become severely ill from the challenge do let your doctor know. Some will have you stop the challenge. A dietary challenge is another valid tool in the road to diagnosis. Some doctors recognize this and some don't.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mom26boys Apprentice
If you have been gluten free for a couple weeks you may have a more intense reaction when you add it back in. If you should become severely ill from the challenge do let your doctor know. Some will have you stop the challenge. A dietary challenge is another valid tool in the road to diagnosis. Some doctors recognize this and some don't.

Thank you. Wow! I've learned so much here that I never would have thought of. Thank you for the time you respond to my post :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.