Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Still Feeling Bad.


SergeTrigger

Recommended Posts

SergeTrigger Newbie

Hello,

Im new to this site and I got alot of questions. I was checked into the ER last week because of intense stomach and intestinal pains. I could not hold any food down. My stomach made awful churning sounds when I ate something with gluten in it. On Thursday I was diagnosed with Celiac's Diease. The blood work came back positive for those bad antibodies. I felt good for two days after because I only ate gluten-free Rice Chex, fresh chicken, fruits and veggies and hard boiled eggs. I am the only one in my household with this disease and my family stills eats gluten with the exception of me. Since Saturday my family started to get careless and they started leaving crumbs and stuff around. They still make food with gluten in the oven. Is there anyway that Im inhaling the gluten off of products like breaded fish sticks and tater tots? Would I have to get new kitchen wear and pots and pans?

Thank you for your help guys!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



runningcrazy Contributor

Have you cut out dairy, at least for a while as you heal. Many people have to remove all dairy from there diet when they go gluten free because it makes the healing of the villi much easier.

Also, if you are super sensitive, yes, you may be inhaling it. But chances are you are probably unknowingly accidently getting a few of those crumbs, or your just going through the healing process. Some people say it can take 6 months to a year to start feeling better, but it will come.

I understand how you feel, this is my 6th day Gluten free, dairy free, and the first two days were AMAZING! I felt GREAT. The next day I ate peanut butter. It did a number on me. All the symptoms that vanished the past two days ago returned, I felt terrible, and it really set me back. I dont know if therre were crumbs in the peanut butter or if i just had a hard time with it, but 3 days later Im only now starting to feel better.

Also, many people find other intolerances too, you may want to keep a food diary recording everything you eat and drink and any symptoms(bloating, pain, headaches, sleep issues, irritabilty, anything out of the ordinary) This will help you discover what else might be bothering you. Right now nuts are not agreeing, nor are legumes, which makes protein hard as i am a vegetarian.

So for now I would suggest dairy free, extra extra careful about crumbs, and a food diary. Of course, time will also help:)

SergeTrigger Newbie

Well in the hospital I was allowed to drink Wawa 2% milk cartons. It seemed to go down well in there. I will cut it out of my diet now. Thanks for your very informative post!

ranger Enthusiast

It's only me and DH, but he can use bread products on a specific are of the counte and then must do so on a paper plate. One crumb will make me very sick. Since it appears that you live in a mixed household, you should declare a portion of the counter gluten free and your family should respect that. You need to get your own toaster, cutting board, some new pans maybe. You also need your own containers for peanut butter, jlly, mayo, butter ect. It takes awhile to figure out the ins and out of the diet, but well worth it. Let me know if I can be of any help.

jabberwife Explorer

I've been gluten free for 2 months, and while I'm not 100% better, I am noticing symptoms gradually disappearing. It might not happen overnight for you. But I agree with what other posters have said...watch the CC, and log what you're eating, how you feel, what medications you take, for at least a month. It'll help you determine if there are any other factors preventing you from feeling better.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      18

      My journey is it gluten or fiber?

    2. - olivia11 replied to olivia11's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      suggest gluten free food

    3. - knitty kitty replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      GI DX celiac despite neg serology and no biopsy

    4. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      18

      My journey is it gluten or fiber?

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      18

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,754
    • Most Online (within 30 mins)
      7,748

    Brmorrison74
    Newest Member
    Brmorrison74
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I looked further into Thiamax Vitamin B1 by objective nutrients and read all the great reviews. I think I will give this a try. I noticed only possible side affect is possibly the first week so body adjusts. Life Extensions carries Benfotiamine with Thiamine and the mega one you mentioned. Not sure if both in one is better or seperate. some reviews state a laxative affect as side affect. SHould I take with my super B complex or just these 2 and multivitamin? I will do further research but I appreciate the wonderful explanation you provided on Thiamine.
    • olivia11
      Thanks I am mostly looking for everyday staples and easy meal ideas nothing too specialty if possible.
    • knitty kitty
      There are other Celiac genes. HLA DQ 2 and HLA DQ 8 show up in people from Northern European descent.   People of Mediterranean descent have HLA DQ 7.  People of Asian descent have HLA DQ 9.   There's other Indigenous populations that have other HLA genes that code for Celiac disease.   Are you still having symptoms?   What do you include in your diet?  Are you vegetarian? Are you taking any prescription medication?  Omeprazole?  Metformin?   Do you have anemia?  Thyroid problems? Are you taking any vitamins or herbal supplements?  
    • knitty kitty
      There are eight essential B vitamins.  They are all water soluble.  Any excess of B vitamins is easily excreted by the kidneys.   Thiamine is Vitamin B 1.  Thiamine is safe and nontoxic even in high doses.  Benfotiamine and TTFD are forms of Thiamine that the body can utilize very easily.   The form of Thiamine in the supplements you mentioned is Thiamine Mononitrate, a form that the body does not absorb well and does not utilize well.  Only about thirty percent of the amount on the label is actually absorbed in the small intestine.  Less than that can actually be used by the body.  Manufacturers add thiamine mononitrate to their products because it's cheap and shelf-stable.  Thiamine and other B vitamins break down when exposed to light and heat and over time.  Thiamine Mononitrate is a form that does not break down over time sitting on a shelf waiting for someone to buy them.  What makes Thiamine Mononitrate shelf stable makes it difficult for the body to turn into a useable form.  In fact, it takes more thiamine to turn it into a useable form.   Gastrointestinal Beriberi is a localized shortage of Thiamine in the gastrointestinal tract.  High carbohydrate meals can result in gastrointestinal symptoms of Gastric Beriberi.  Fiber is a type of carbohydrate.  So, high fiber/carbohydrate snacks could trigger Gastric Beriberi.   Since blood tests for Thiamine and other B vitamins are so inaccurate, the World Health Organization recommends trying Thiamine and looking for health improvement because it's safe and nontoxic.  
    • xxnonamexx
      Thanks very interesting I have to see if I should take these 2 vitamins along with my multi and super Vit B complex or if its too much or would hurt me. I don't have any other health issues but would love to see if this improves anything especially to feel stronger build muscle.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.