Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Did He Have A Clue?


fran641

Recommended Posts

fran641 Contributor

I went to a dermatologist who has treated my husband for skin cancer and he is a very good doctor. I was seeing him for a small wart removal. I asked him questions about my recent sensitivities due to celiacs. He said the rash I had that went away when I stopped eating grits, the rash that appeared after one day of using a cream with wheat ingredients and the awful itching hands after using a mixed spice, had nothing to do with the celiacs. Totally unrelated....just new allergies. Am I nuts or did this guy not have a clue about celiac sensitivities?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor
I went to a dermatologist who has treated my husband for skin cancer and he is a very good doctor. I was seeing him for a small wart removal. I asked him questions about my recent sensitivities due to celiacs. He said the rash I had that went away when I stopped eating grits, the rash that appeared after one day of using a cream with wheat ingredients and the awful itching hands after using a mixed spice, had nothing to do with the celiacs. Totally unrelated....just new allergies. Am I nuts or did this guy not have a clue about celiac sensitivities?

He doesn't have a clue. Thankfully you didn't go to him with the active rash looking for a diagnosis. Unfortunately this is the case with too many derms.

ranger Enthusiast

Docs can be clueless, but shouldn't be. Mine ordered celiac blood test knowing I had been gluten free for a month. At the time, I didn't know any better, but she should have.

fran641 Contributor

Thanks for the responses. I spent so many years and untold money looking for 1 doctor who could tell me why I had diarrhea for the last 30 years. I no longer think that all docs have all the answers. That dermatologist looked at me like I was kooky. "celiac is not the issue" he repeated more than once.

mushroom Proficient
Thanks for the responses. I spent so many years and untold money looking for 1 doctor who could tell me why I had diarrhea for the last 30 years. I no longer think that all docs have all the answers. That dermatologist looked at me like I was kooky. "celiac is not the issue" he repeated more than once.

I have found only one dermatologist in my life who impressed me. Unfortunately she is in Petaluma, CA. Stuff my dermatologists at home ignored, she biopsied...several basal cell and one squamous cell carcinoma. Unfortunately, I think like anesthesiologists, it is a specialty for those who graduated bottom of their class.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to tiffanygosci's topic in Coping with Celiac Disease
      14

      New Celiac Mama in My 30s

    2. - SusanJ replied to Jillian83's topic in Coping with Celiac Disease
      5

      Celiac and dermatitis herpetiformis has taken Me from Me

    3. - knitty kitty replied to tiffanygosci's topic in Coping with Celiac Disease
      14

      New Celiac Mama in My 30s

    4. - tiffanygosci replied to tiffanygosci's topic in Coping with Celiac Disease
      14

      New Celiac Mama in My 30s

    5. - RMJ replied to Riley.'s topic in Introduce Yourself / Share Stuff
      4

      Outgrow celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,981
    • Most Online (within 30 mins)
      7,748

    Cathal Brugha
    Newest Member
    Cathal Brugha
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
    • tiffanygosci
      Thank you for sharing all of this, Knitty Kitty! I did just want someone to share some commonality with. I did not know This one Deficiency was a thing and that it's common for Celiac Disease. It makes sense since this is a disorder that causes malabsorption. I will have to keep this in mind for my next appointments. You also just spurred me on to make that Dietician appointment. There's a lot of information online but I do need to see a professional. There is too much to juggle on my own with this condition.<3
    • RMJ
      I think your initial idea, eat gluten and be tested, was excellent. Now you have fear of that testing, but isn’t there also a fear each time you eat gluten that you’re injuring your body? Possibly affecting future fertility, bone health and more? Wouldn’t it be better to know for sure one way or the other? If you test negative, then you celebrate and get tested occasionally to make sure the tests don’t turn positive again. If you test positive, of course the recommendation from me and others is to stop gluten entirely.  But if you’re unable to convince yourself to do that, could a positive test at least convince you to minimize your gluten consumption?  Immune reactions are generally what is called dose response, the bigger the dose, the bigger the response (in this case, damage to your intestines and body). So while I am NOT saying you should eat any gluten with a positive test, the less the better.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.