Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Here...need Some Help!


fotochic03

Recommended Posts

fotochic03 Newbie

Hi there, I'm Erica and this is my first post here. We've been working to figure out my 1 year olds diet since he was about 12 months old...I still don't know what is up. We've been seeing a Naturopathic DR who works with my midwife, but tomorrow we have a well checkup with our pediatrician and I wanted to have all my ducks in a row so I don't leave with no new information.

I don't really know WHAT we are dealing with. My son is 19 months old and has an insatiable appetite. He's been dairy and wheat free since 13 months old. We've only relied on muscle testing for his weak/strong foods. We've found that with the addition of enzyme powder his appetite is greatly improved, but he has to take the recommended amount for a 12 year old in order for it to help (which is what was prescribed for him) but I still wonder if there is more to it than that. We also have some pretty bad wet/pasty poopy diapers 2-3 times a day....or not and then we have massive blow-outs.

He doesn't seem to have any bloated belly symptoms or pain... He weighs about 21lbs which is less than 5%tile.

For example on his daily eating (this is with out enzymes, we ran out and they are on order...

Monday

1/3 old fashioned oats (measured uncooked)

1/3 cup of apple sauce

small banana 5 inches

1 oz uice/6 oz water

2eggs over easy

1/2 sprouted grain bread

1oz juice 6oz water

Pirate Booty large handful 2/3 cup?

2 arrowroot animal cookies

banana

1tsp peanut butter Smart balance

1 rice cake low salt, very thin layer of peanut butter

3 small strawberries

2 multigrain gluten free crackers

Rice Milk 5oz

Instant Grits 1oz package

1oz juice water

Tuesday

1/3 old fashioned oats (measured uncooked)

1/3 cup of apple sauce

small banana 5 inches

1 oz uice/6 oz water

1 slice, no crust Sprouted Grain bread (genesis 1:29)

Kiwi with peel

Carrot juice (2 carrots juiced at home 2oz)

3/4c pinto beans whole bean boiled with salt

1/2 mashed banana 1/2 mashed avocado

1/2 Cucumber, 1/2 Sweet potato, 1 carrot juiced at home + 2oz premade apple juice (8oz of total juice)

6 oz Red Raspberry leaf tea + 2oz apple juice

2/3 cup Veggie flavored Pirate Booty

3 Gluten Free multigrain crackers

2oz pork chop

1tbs green beans (he doesn't eat these very well at all)

5oz rice milk


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

huh... I'm seeing a lot of carbs, not as much fat/protein. (of course, I've never fed a toddler, so it's fair to say I could be totally off on that!) also, if he's eating sprouted bread, he's not gluten free, or even wheat free. (sprouted wheat is still wheat!)

have you tried eliminating all gluten (including oats) or at least all the wheat?

ang1e0251 Contributor

I don't really know WHAT we are dealing with. My son is 19 months old and has an insatiable appetite. He's been dairy and wheat free since 13 months old.

Is your goal to have him eat gluten free? Just wheat free?

We've only relied on muscle testing for his weak/strong foods. We've found that with the addition of enzyme powder his appetite is greatly improved, but he has to take the recommended amount for a 12 year old in order for it to help (which is what was prescribed for him) but I still wonder if there is more to it than that. We also have some pretty bad wet/pasty poopy diapers 2-3 times a day....or not and then we have massive blow-outs.

The stool problems sound like he is eating something, maybe gluten that he doesn't tolerate well.

For example on his daily eating (this is with out enzymes, we ran out and they are on order...

What are the ingredients in the enzymes?

Monday

1/3 old fashioned oats (measured uncooked)

1/3 cup of apple sauce

small banana 5 inches

1 oz uice/6 oz water

Oatmeal is not tolerated well by many who cannot eat gluten or wheat.

2eggs over easy

1/2 sprouted grain bread

1oz juice 6oz water

What are the ingredients of the bread? Does it contain barley or rye? These can be problem foods.

Pirate Booty large handful 2/3 cup?

2 arrowroot animal cookies

banana

1tsp peanut butter Smart balance

Pirate Booty? I'm not familier with that.

1 rice cake low salt, very thin layer of peanut butter

3 small strawberries

2 multigrain gluten free crackers

Rice Milk 5oz

Rice milk should be Ok but other posters have reported reactions to the barley in Rice Dream brand.

Instant Grits 1oz package

1oz juice water

Looks good.

Tuesday

1/3 old fashioned oats (measured uncooked)

1/3 cup of apple sauce

small banana 5 inches

1 oz u

1 slice, no crust Sprouted Grain bread (genesis 1:29)

Kiwi with peel

Carrot juice (2 carrots juiced at home 2oz)

3/4c pinto beans whole bean boiled with salt

1/2 mashed banana 1/2 mashed avocado

1/2 Cucumber, 1/2 Sweet potato, 1 carrot juiced at home + 2oz premade apple juice (8oz of total juice)

6 oz Red Raspberry leaf tea + 2oz apple juice

2/3 cup Veggie flavored Pirate Booty

3 Gluten Free multigrain crackers

2oz pork chop

1tbs green beans (he doesn't eat these very well at all)

5oz rice milk

The same concerns I mentioned above for this menu. I don't see much protein in this diet or dietary fat. Small children need 30 to 35% of their diet to be good dietary fat. That's probably why he seems to have such a good appetite, although the amount of food you listed seems pretty normal to me for his age. My son ate well at that age also. Though at age two , it seems children back off eating a lot. That's when their rate of growth slows somewhat.

If you're trying to avoid gluten, there are a few concerns in that diet. Also I would try to get a little more protein and more dietary fat in his diet. What do you think?

fotochic03 Newbie

Is your goal to have him eat gluten free? Just wheat free?

Well, the goal was wheat free, but I was told that sprouted wheat is okay for him...

I went to the pediatrician for our well check up on Friday. Spoke with the nutritionist, who rubs me quite the wrong way, but I did take away a few good things from the appointment. She recommended that we start him on a optiflora probiotic by shakely as well as a multi-vitamin. I decided to give a gluten free diet a shot (based on my own conclusions) . I went to the store and bought all his new foods tonight. All had gluten free labels. I'm going to do the diet for 2 weeks and see if we notice any changes, if nothing changes I'll consider adding the probiotic and see if that helps

The stool problems sound like he is eating something, maybe gluten that he doesn't tolerate well.

Yesterday and today he had diarrhea...wondering if that is a result from the immunizations he received on Friday. After talking to the nutritionist, I decided that chunky (salsa like) applesauce is a better way to describe his stools, rather than wet and pasty.

What are the ingredients in the enzymes? Copied and pasted from the website-

Proprietary Plant Enzyme Blend 320 mg

Alpha-Amylase (from Aspergillus oryzae), Protease (from Aspergillus oryzae), Glucoamylase (from Rhizopus nitveus), Lactase (from Aspergillus oryzae), Maltase (from Aspergillus oryzae), Cellulase (from Aspergillus niger), Lipase (from Aspergillus niger and Rhizopus oryzae), Acid Stable Protease (from Aspergillus niger), Hemicellulase (from Aspergillus niger), and Invertase (from Saccharomyces cerevisiae)

Other ingredients: Beet Fiber and Rice Flour

Contains NO added fillers, lubricants, soy, wheat, corn, dairy, sugar, yeast, gluten, starch, salt, additives, or preservatives.

Oatmeal is not tolerated well by many who cannot eat gluten or wheat.

Replacing Oatmeal with Quinoa flakes

What are the ingredients of the bread? Does it contain barley or rye? These can be problem foods.

He was eating Ezekiel Bread, but I bought the bread for life..gluten and wheat free kinds this evening.

Pirate Booty? I'm not familier with that. www.piratesbooty.com I just checked the website and it is gluten free. Its basically a "healthy" version of veggie flavored "puffs" and has absolutely no nutrition, but its an easy to eat snack food for a toddler with only 10 teeth.

Rice milk should be Ok but other posters have reported reactions to the barley in Rice Dream brand.

I bought the rice dream milk and noticed that the new improved "organic" version contained malt in the ingredients, so I took a look at the original- classic ...and it had different ingredients...no malt or barley listed and it is labeled gluten free.

The same concerns I mentioned above for this menu. I don't see much protein in this diet or dietary fat. Small children need 30 to 35% of their diet to be good dietary fat. That's probably why he seems to have such a good appetite, although the amount of food you listed seems pretty normal to me for his age. My son ate well at that age also. Though at age two , it seems children back off eating a lot. That's when their rate of growth slows somewhat.

If you're trying to avoid gluten, there are a few concerns in that diet. Also I would try to get a little more protein and more dietary fat in his diet. What do you think?

taweavmo3 Enthusiast

Based on his insatiable appetite, stool descriptions, and low weight , I would say it sounds like something is still causing malaborption. I think it's a great plan to try the gluten free diet. My dd, before she was diagnosed, would eat constantly. It was a joke in our house, b/c she was tiny, but she ate adult sized portions.

One thing you also might consider changing is the Rice Dream milk.....they are misleading in their ingredients list. The "gluten free" box is still processed with barley enzymes like the others, they just don't list it. Almond Breeze is safe (and great tasting!) and so is Pacific rice milk.

I'm still reeling over the comment by the nutritionist....I can see why you were less than impressed. The olive oil is a good idea....another one is coconut oil. Full of good fat for the brain, and it is tasty. I used to put it on toast in place of butter, then add some honey. Coconut milk is also a good source of fat, I use it at times in smoothies, added to almond milk to increase the fat content, or I bake with it.

Also, you may want to give it a bit longer than 2 weeks, only b/c everyone makes mistakes in the beginning, and gluten takes weeks to get out of the system. If the diet works, and he starts absorbing nutrients again, then you won't have to worry quite so much about the carb/protein/fat amounts. Just give yourself some time to learn the diet, take it day by day, and the rest will fall into place!

This is a great site for help....so many informative people (many have had zero luck with nutritionists btw!) that will answer questions in a heartbeat. Good luck!

ang1e0251 Contributor

I agree with the PP. I also recommend the coconut milk, it's very high in good dietary fat. I add to anything that's milky; like smoothies, omelettes, milk of any kind, dips, etc. Avocado is another good fat. It doesn't really matter when he eats his protein during the day but it will be satisfying to him and last longer with him. Just don't feed him anything reduced fat. His muscles need all the dietary fat to grow well.

The enzymes all looked OK to me. I'm no expert on that.

I'm wondering how the gluten-free will work for him. I hope that it helps and allows him the growth you are looking for. It's so hard on Mom when the answers aren't obvious and we're trying our best. You are a great Mom to worry so about your son and I can see you're giving him all the best. Hang in there!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      nothing has changed

    2. - nanny marley replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

    3. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      Supplements for those Diagnosed with Celiac Disease

    4. - par18 replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is it gluten?

    5. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748

    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
    • nanny marley
      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me  I tryed lol , another was to have another blood test after consuming gluten but it makes me so bad I tryed it for only a week, and because I have a trapped sciatic nerve when I get bad bowels it sets that off terribly so I just take it on myself now , I eat a gluten free diet , I'm the best I've ever been , and if I slip I know it so for me i have my own diagnosis  and I act accordingly, sometimes it's not so straight forward for some of us , for the first time in years I can plan to go out , and I have been absorbing my food better , running to the toilet has become occasionally now instead of all the time , i hope you find a solution 🤗
    • asaT
      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel.  they offered me an endoscopic biopsy 3 months later, but that i would need to continue eating gluten for it to be accurate. so i quit eating gluten and my intestine had healed by the time i had the biopsy (i'm guessing??). Why else would my TTgIgA be so high if not celiacs? Anyway, your ferritin will rise as your intestine heals and take HEME iron (brand 4 arrows). I took 20mg of this with vitamin c and lactoferrin and my ferritin went up, now sits around 35.  you will feel dramatically better getting your ferritin up, and you can do it orally with the right supplements. I wouldn't get an infusion, you will get as good or better results taking heme iron/vc/lf.  
    • par18
      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.