Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Here...need Some Help!


fotochic03

Recommended Posts

fotochic03 Newbie

Hi there, I'm Erica and this is my first post here. We've been working to figure out my 1 year olds diet since he was about 12 months old...I still don't know what is up. We've been seeing a Naturopathic DR who works with my midwife, but tomorrow we have a well checkup with our pediatrician and I wanted to have all my ducks in a row so I don't leave with no new information.

I don't really know WHAT we are dealing with. My son is 19 months old and has an insatiable appetite. He's been dairy and wheat free since 13 months old. We've only relied on muscle testing for his weak/strong foods. We've found that with the addition of enzyme powder his appetite is greatly improved, but he has to take the recommended amount for a 12 year old in order for it to help (which is what was prescribed for him) but I still wonder if there is more to it than that. We also have some pretty bad wet/pasty poopy diapers 2-3 times a day....or not and then we have massive blow-outs.

He doesn't seem to have any bloated belly symptoms or pain... He weighs about 21lbs which is less than 5%tile.

For example on his daily eating (this is with out enzymes, we ran out and they are on order...

Monday

1/3 old fashioned oats (measured uncooked)

1/3 cup of apple sauce

small banana 5 inches

1 oz uice/6 oz water

2eggs over easy

1/2 sprouted grain bread

1oz juice 6oz water

Pirate Booty large handful 2/3 cup?

2 arrowroot animal cookies

banana

1tsp peanut butter Smart balance

1 rice cake low salt, very thin layer of peanut butter

3 small strawberries

2 multigrain gluten free crackers

Rice Milk 5oz

Instant Grits 1oz package

1oz juice water

Tuesday

1/3 old fashioned oats (measured uncooked)

1/3 cup of apple sauce

small banana 5 inches

1 oz uice/6 oz water

1 slice, no crust Sprouted Grain bread (genesis 1:29)

Kiwi with peel

Carrot juice (2 carrots juiced at home 2oz)

3/4c pinto beans whole bean boiled with salt

1/2 mashed banana 1/2 mashed avocado

1/2 Cucumber, 1/2 Sweet potato, 1 carrot juiced at home + 2oz premade apple juice (8oz of total juice)

6 oz Red Raspberry leaf tea + 2oz apple juice

2/3 cup Veggie flavored Pirate Booty

3 Gluten Free multigrain crackers

2oz pork chop

1tbs green beans (he doesn't eat these very well at all)

5oz rice milk


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

huh... I'm seeing a lot of carbs, not as much fat/protein. (of course, I've never fed a toddler, so it's fair to say I could be totally off on that!) also, if he's eating sprouted bread, he's not gluten free, or even wheat free. (sprouted wheat is still wheat!)

have you tried eliminating all gluten (including oats) or at least all the wheat?

ang1e0251 Contributor

I don't really know WHAT we are dealing with. My son is 19 months old and has an insatiable appetite. He's been dairy and wheat free since 13 months old.

Is your goal to have him eat gluten free? Just wheat free?

We've only relied on muscle testing for his weak/strong foods. We've found that with the addition of enzyme powder his appetite is greatly improved, but he has to take the recommended amount for a 12 year old in order for it to help (which is what was prescribed for him) but I still wonder if there is more to it than that. We also have some pretty bad wet/pasty poopy diapers 2-3 times a day....or not and then we have massive blow-outs.

The stool problems sound like he is eating something, maybe gluten that he doesn't tolerate well.

For example on his daily eating (this is with out enzymes, we ran out and they are on order...

What are the ingredients in the enzymes?

Monday

1/3 old fashioned oats (measured uncooked)

1/3 cup of apple sauce

small banana 5 inches

1 oz uice/6 oz water

Oatmeal is not tolerated well by many who cannot eat gluten or wheat.

2eggs over easy

1/2 sprouted grain bread

1oz juice 6oz water

What are the ingredients of the bread? Does it contain barley or rye? These can be problem foods.

Pirate Booty large handful 2/3 cup?

2 arrowroot animal cookies

banana

1tsp peanut butter Smart balance

Pirate Booty? I'm not familier with that.

1 rice cake low salt, very thin layer of peanut butter

3 small strawberries

2 multigrain gluten free crackers

Rice Milk 5oz

Rice milk should be Ok but other posters have reported reactions to the barley in Rice Dream brand.

Instant Grits 1oz package

1oz juice water

Looks good.

Tuesday

1/3 old fashioned oats (measured uncooked)

1/3 cup of apple sauce

small banana 5 inches

1 oz u

1 slice, no crust Sprouted Grain bread (genesis 1:29)

Kiwi with peel

Carrot juice (2 carrots juiced at home 2oz)

3/4c pinto beans whole bean boiled with salt

1/2 mashed banana 1/2 mashed avocado

1/2 Cucumber, 1/2 Sweet potato, 1 carrot juiced at home + 2oz premade apple juice (8oz of total juice)

6 oz Red Raspberry leaf tea + 2oz apple juice

2/3 cup Veggie flavored Pirate Booty

3 Gluten Free multigrain crackers

2oz pork chop

1tbs green beans (he doesn't eat these very well at all)

5oz rice milk

The same concerns I mentioned above for this menu. I don't see much protein in this diet or dietary fat. Small children need 30 to 35% of their diet to be good dietary fat. That's probably why he seems to have such a good appetite, although the amount of food you listed seems pretty normal to me for his age. My son ate well at that age also. Though at age two , it seems children back off eating a lot. That's when their rate of growth slows somewhat.

If you're trying to avoid gluten, there are a few concerns in that diet. Also I would try to get a little more protein and more dietary fat in his diet. What do you think?

fotochic03 Newbie

Is your goal to have him eat gluten free? Just wheat free?

Well, the goal was wheat free, but I was told that sprouted wheat is okay for him...

I went to the pediatrician for our well check up on Friday. Spoke with the nutritionist, who rubs me quite the wrong way, but I did take away a few good things from the appointment. She recommended that we start him on a optiflora probiotic by shakely as well as a multi-vitamin. I decided to give a gluten free diet a shot (based on my own conclusions) . I went to the store and bought all his new foods tonight. All had gluten free labels. I'm going to do the diet for 2 weeks and see if we notice any changes, if nothing changes I'll consider adding the probiotic and see if that helps

The stool problems sound like he is eating something, maybe gluten that he doesn't tolerate well.

Yesterday and today he had diarrhea...wondering if that is a result from the immunizations he received on Friday. After talking to the nutritionist, I decided that chunky (salsa like) applesauce is a better way to describe his stools, rather than wet and pasty.

What are the ingredients in the enzymes? Copied and pasted from the website-

Proprietary Plant Enzyme Blend 320 mg

Alpha-Amylase (from Aspergillus oryzae), Protease (from Aspergillus oryzae), Glucoamylase (from Rhizopus nitveus), Lactase (from Aspergillus oryzae), Maltase (from Aspergillus oryzae), Cellulase (from Aspergillus niger), Lipase (from Aspergillus niger and Rhizopus oryzae), Acid Stable Protease (from Aspergillus niger), Hemicellulase (from Aspergillus niger), and Invertase (from Saccharomyces cerevisiae)

Other ingredients: Beet Fiber and Rice Flour

Contains NO added fillers, lubricants, soy, wheat, corn, dairy, sugar, yeast, gluten, starch, salt, additives, or preservatives.

Oatmeal is not tolerated well by many who cannot eat gluten or wheat.

Replacing Oatmeal with Quinoa flakes

What are the ingredients of the bread? Does it contain barley or rye? These can be problem foods.

He was eating Ezekiel Bread, but I bought the bread for life..gluten and wheat free kinds this evening.

Pirate Booty? I'm not familier with that. www.piratesbooty.com I just checked the website and it is gluten free. Its basically a "healthy" version of veggie flavored "puffs" and has absolutely no nutrition, but its an easy to eat snack food for a toddler with only 10 teeth.

Rice milk should be Ok but other posters have reported reactions to the barley in Rice Dream brand.

I bought the rice dream milk and noticed that the new improved "organic" version contained malt in the ingredients, so I took a look at the original- classic ...and it had different ingredients...no malt or barley listed and it is labeled gluten free.

The same concerns I mentioned above for this menu. I don't see much protein in this diet or dietary fat. Small children need 30 to 35% of their diet to be good dietary fat. That's probably why he seems to have such a good appetite, although the amount of food you listed seems pretty normal to me for his age. My son ate well at that age also. Though at age two , it seems children back off eating a lot. That's when their rate of growth slows somewhat.

If you're trying to avoid gluten, there are a few concerns in that diet. Also I would try to get a little more protein and more dietary fat in his diet. What do you think?

taweavmo3 Enthusiast

Based on his insatiable appetite, stool descriptions, and low weight , I would say it sounds like something is still causing malaborption. I think it's a great plan to try the gluten free diet. My dd, before she was diagnosed, would eat constantly. It was a joke in our house, b/c she was tiny, but she ate adult sized portions.

One thing you also might consider changing is the Rice Dream milk.....they are misleading in their ingredients list. The "gluten free" box is still processed with barley enzymes like the others, they just don't list it. Almond Breeze is safe (and great tasting!) and so is Pacific rice milk.

I'm still reeling over the comment by the nutritionist....I can see why you were less than impressed. The olive oil is a good idea....another one is coconut oil. Full of good fat for the brain, and it is tasty. I used to put it on toast in place of butter, then add some honey. Coconut milk is also a good source of fat, I use it at times in smoothies, added to almond milk to increase the fat content, or I bake with it.

Also, you may want to give it a bit longer than 2 weeks, only b/c everyone makes mistakes in the beginning, and gluten takes weeks to get out of the system. If the diet works, and he starts absorbing nutrients again, then you won't have to worry quite so much about the carb/protein/fat amounts. Just give yourself some time to learn the diet, take it day by day, and the rest will fall into place!

This is a great site for help....so many informative people (many have had zero luck with nutritionists btw!) that will answer questions in a heartbeat. Good luck!

ang1e0251 Contributor

I agree with the PP. I also recommend the coconut milk, it's very high in good dietary fat. I add to anything that's milky; like smoothies, omelettes, milk of any kind, dips, etc. Avocado is another good fat. It doesn't really matter when he eats his protein during the day but it will be satisfying to him and last longer with him. Just don't feed him anything reduced fat. His muscles need all the dietary fat to grow well.

The enzymes all looked OK to me. I'm no expert on that.

I'm wondering how the gluten-free will work for him. I hope that it helps and allows him the growth you are looking for. It's so hard on Mom when the answers aren't obvious and we're trying our best. You are a great Mom to worry so about your son and I can see you're giving him all the best. Hang in there!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.