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Any One Here Have Foot Pain When They Eat Gluten?

Lynayah

By Lynayah
in Coping with Celiac Disease

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ang1e0251 Contributor
ang1e0251
Posted

You'll find the thread under "Other Food Intolerance and Leaky Gut Issues". It's called Specific Carbohydrate Diet (SCD). If you read parts of it, they do recommend web sites and books. I haven't read the books yet but have looked at some of the sites. It's good. I'll defer to the SCD experts on that thread.

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Lynayah Enthusiast
Lynayah
Posted
  • Author
You'll find the thread under "Other Food Intolerance and Leaky Gut Issues". It's called Specific Carbohydrate Diet (SCD). If you read parts of it, they do recommend web sites and books. I haven't read the books yet but have looked at some of the sites. It's good. I'll defer to the SCD experts on that thread.

THANK YOU, THANK YOU!

Hugs,

Lyn

Penny-M Newbie
Penny-M
Posted

I have suffered from foot pain for many years and I was diagnosed with Tendonitis in both my feet. GEE tendonitis--Inflammatory condition. I do believe it's connected with all the other inflammatory issues I have. Everything I have tried so far hasn't helped, I wear rubber soled shoes, I have found earth shoes to be the best, the ones from Walmart are pretty good as well. The selection stinks though. Planet earth has some nice soft soled shoes. I am hoping this new anti-inflammatory lifestyle I am adventuring into will help. Everyone tells you to exercise--I wish I could, but no matter what I try my feet kill me, even walking is a challenge, I am glad I have a desk job. I have a wonderful husband who massages me feet everynight before I shower or bath--He's the greatest!!!! :D

Lynayah Enthusiast
Lynayah
Posted
  • Author

I'm still healing -- only gluten free for a few weeks now with a couple set backs.

Last week I was glutened and the neurological twinges in my feet and ankles were strong. It's weird, in addition to the tops of my feet hurting and ankles swelling, I'll get a kink that comes and goes -- when it is present, it feels as though I have a light sprain in my ankle, and it can stop me cold. Sometimes it lasts for days, other times it comes and goes over the course of hours. During my gluten challenge, it became stronger over time.

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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      High DGP-A with normal IGA

      By knitty kitty · Posted

      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

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    • trents
      Finding gluten free ingredients

      By trents · Posted

      Welcome to the forum, @Kara S! Warrior bread is a grain free bread product. Google it. There are commercial mixes available, I believe, Youtube videos and many recipes. 
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