Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

"major" Gluten Ingestion


Jonbo

Recommended Posts

Jonbo Apprentice

Went to a midnight showing of The Final Destination Thurs Night/Fri morning. Get popcorn and saw some Nacho Cheddar/White Cheddar seasoning on the side. I being stupid didn't thoroughly check the bottles of them but don't recall seeing an ingredient list. Since it was a rare night out for me (in town visiting friends/family after incisional hernia repair), I passed it off since I assumed it would just be cheddar.

Movie ends, and I felt my abdomen and noticed it starting to "brick" itself as I've deemed it. I then realize it had to have been the seasoning. I get home, immediately fire an email to the theater company's website and come to find out the White Cheddar has Gluten in it while the Nacho Cheddar didn't. WTF?! Was the first thought in my head. Unless white cheddar always has Gluten in it and just never knew that (for seasoning purposes).

4 days later, it's still as hard as a brick but thank god no pain (Percocet may be keeping it under control). Oddly enough its majorly distended (when laying a certain way on my side) right where my hernia was that was fixed. So now I'm almost certain the Celiac caused the hernia which I'll be bringing up at surgeon followup along with pictures I took of it. I'm just getting overwhelmed a bit because I ingested so much gluten (most since diagnosis) and it seems to just not be letting up at all. Not helping my recovery from the hernia surgery either.

Usually if I have some minor CC it will last 2-12 hours and then go back to "normal". I just hope it passes soon :( Granted, I'm lucky this is really my only symptom (some minor D 2nd day in but nothing to concern me) but rather not deal with it as long as I have been.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



brigala Explorer

Yuck. I'm sorry. :(

I had a brain-dead moment and glutened myself for a whole week on supplements I forgot to read the label on. I was on vacation at the time and I assumed the symptoms I was having was due to CC or something from a restaurant or the kitchen utensils in the cabin or whatnot. It had been a long time since I'd had symptoms that bad, though. I realized my mistake 10 days ago and I'm still suffering. So don't take this as condescending when I remind you to "ALWAYS" read the label, and "when in doubt, leave it out." I clearly need someone to remind ME once in a while.

That "brick" sensation you're talking about is familiar. I started noticing it when I began to cut down on gluten but before I made the commitment to go gluten-free. I'd intended to see a doctor before going gluten-free, but that feeling like there was a fist-sized rock in my stomach made it impossible to eat gluten any more once I found out what was causing it.

I hope you feel better soon.

taweavmo3 Enthusiast

I am so sorry....I'm just getting over a cc glutening, which was pretty short thank goodness. I remember the last time I was majorly glutened, it was the Walmart soy sauce that now has wheat. I was sick for 3-4 days before I could eat anything more than jello or white rice, but it took a couple of weeks before I really felt decent again. It just plain sucks!

Hopefully you are at the worst point and will start to feel better soon...we feel for ya!!!

Jonbo Apprentice
Yuck. I'm sorry. :(

I had a brain-dead moment and glutened myself for a whole week on supplements I forgot to read the label on. I was on vacation at the time and I assumed the symptoms I was having was due to CC or something from a restaurant or the kitchen utensils in the cabin or whatnot. It had been a long time since I'd had symptoms that bad, though. I realized my mistake 10 days ago and I'm still suffering. So don't take this as condescending when I remind you to "ALWAYS" read the label, and "when in doubt, leave it out." I clearly need someone to remind ME once in a while.

That "brick" sensation you're talking about is familiar. I started noticing it when I began to cut down on gluten but before I made the commitment to go gluten-free. I'd intended to see a doctor before going gluten-free, but that feeling like there was a fist-sized rock in my stomach made it impossible to eat gluten any more once I found out what was causing it.

I hope you feel better soon.

The funny thing, is that I always read the label and if doubted, I just not have it. Especially in person if food is already prepared and I'm just not sure I'll skip it. But one of those lapse of judgments because it was first time I'd been with them in a few months or so and just assumed it was just cheese. I don't think you came across as condescending since those words were already ingrained once I read this site and other sites.

Were you able to actually feel the rock with your hands if you pushed on your abdomen? The pictures I have of mine shows that it is extremely prevalent (when laying on one side it shows itself best). Thanks for the concerns so far. Just needed to slightly vent at my stupidity <_<

Jonbo Apprentice

*double posted*

brigala Explorer
Were you able to actually feel the rock with your hands if you pushed on your abdomen?

No, I don't remember ever actually feeling it with my hands. The brick feeling was actually in my *stomach* rather than my belly, so it would have been a little behind my rib cage where I wouldn't be able to easily palpitate it, I think. It was so severe it wouldn't surprise me if I could have felt it, had I really tried to, though. I never thought to do so.

I bet the hernia has a lot to do with it. Weak muscle, swelling behind the muscle, puts pressure on the muscle and makes it weaker... it would just spiral out of control from there. :(

-Elizabeth

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    2. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    3. - trents replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    4. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    5. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,901
    • Most Online (within 30 mins)
      7,748

    kharvey
    Newest Member
    kharvey
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Charlie1946, There are many vitamin deficiencies associated with PCOS and Celiac disease and mental health issues.  The malabsorption of nutrients caused by Celiac can exacerbate PCOS and mental health issues. Vitamin B 3 Niacin (the kind that causes flushing) improves sebaceous hyperplasia and PCOS. (300 mg/day) Vitamin B 1 Thiamine improves dysphagia, and with Omega Threes, Sjogren's, and PCOS.     (300 mg/day) The other B vitamins are needed as well because they all work together like an orchestra.   The fat soluble vitamins A, D, E, and K, are needed as well.  Low Vitamin D is common in both PCOS and Celiac and depression.   Deficiencies in Niacin Thiamine, Cobalamine B12, Folate B 9, Vitamin C, and Vitamin D can cause mental health issues.   I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants.  My mental health issues didn't get better until my vitamin deficiencies were corrected and a gluten free keto/paleo diet adopted.   Though blood tests are not really accurate, you may want to get tested for deficiencies before supplementing, otherwise you'll be measuring the vitamins you've taken and blood tests will show blood levels that are too high. Yes, Thiamine TTFD and the other vitamins are available over-the-counter.  A B Complex with additional Thiamine TTFD and Niacin made a big difference to my health.  I follow a paleo diet, and make sure I get Omega Threes.  I took high dose Vitamin D to correct my deficiency there.   I've run through the mental health gamut if you would like to talk about your issues.  You can personal message us if you would be more comfortable.   Interesting Reading: Nutritional and herbal interventions for polycystic ovary syndrome (PCOS): a comprehensive review of dietary approaches, macronutrient impact, and herbal medicine in management https://pmc.ncbi.nlm.nih.gov/articles/PMC12049039/
    • cristiana
      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem.   Just a few other thoughts.  I had debilitating anxiety prior to my diagnosis.  I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice:  for depression, The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi, and for debilitating anxiety, At Last A Life by Paul David.  Both can be ordered online, there is also a website for the latter.  If you are deficient in or have low iron or B12 this can cause or worsen mental health issues.  I am sure my own issues were caused by long-term deficiencies.   If you can get your blood tested, it would be useful.  In the case of iron, make sure you only supplement if you have a deficiency, and levels can be monitored, as too much iron can be dangerous. If you have burning mouth issues, very bad TMJ or neuralgia,  I understand the pain can be managed by the use of a certain class of medication like amitriptyline, which is also used to treat depression.  But there again, it is possible with the correct diet and supplementation these issues might improve? I do hope that you find relief soon. Cristiana
    • trents
      @Charlie1946, as an alternative to milk-based protein shakes, let me suggest whey protein. Whey and casein are the two main proteins found in milk but whey doesn't cause issues like casein can for celiacs. Concerning your question about celiac safe mental health facilities, unfortunately, healthcare facilities in general do not have good reputations for being celiac safe. Most celiacs find that they need to depend on family members to advocate for them diligently or bring in food from the outside. Training of staff is inconsistent and there is the issue of turnover and also cross contamination.
    • Charlie1946
      @knitty kitty are you kidding?  I had no idea about the casein!! No one ever mentioned that to me at all!! I basically live off that milk! I have also wondered if I have Sjorgen's , but I haven't been to the doctor yet. Can you get the TTFD over the counter? I do have dysphasia and I have lysine I just haven't been good about taking it. I am so glad I found this group and all of you with all this helpful information!! I thought I was going crazy!!  I have sebaceous hyperplasia too- is that related to Celiac?  OH , and I wanted to ask if there is a site where I could find information on mental health issues , with celiac safe facilities??
    • Charlie1946
      @trents, Hi, thank you for the reply, I used to be pretty good at taking my vitamins and supplements, because I also have PCOS, I have Barrett's esophagus, it's just too expensive to have it stretched all the time, and I also get kinda panicked when trying to swallow pills because of getting choked a lot before.  I think maybe the thrush made it worse, I just can't figure out why I can't get it to go away 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.