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Confused


mdono

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mdono Explorer

I've heard we can't eat neither caramel or vanilla? but I've read about others drinking coke and diet coke. it has caramel coloring.

Also, does anyone know about lattes at Starbucks? Some syrups have caramel coloring. I miss my vanilla latte!!

. . . and vanilla extract?? I heard we couldn't have it, but I had a gluten free cookie the other day that had vanilla in it. . ..

terribly confused


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tarnalberry Community Regular

caramel may be, but is not always, derived from wheat. you just have to call about it. vanilla, the bean, is gluten-free; there had been concern in the past that the alcohol used to draw the main flavor compounds out of the bean had gluten, but that is not the case. vanilla, by itself, is not an ingredient I call on.

celiac3270 Collaborator

Caramel coloring is questionable. From celiac.com:

3) The problem with caramel color is it may or may not contain gluten depending on how it is manufactured. In the USA caramel color must conform with the FDA standard of identity from 21CFR CH.1. This statute says: "the color additive caramel is the dark-brown liquid or solid material resulting from the carefully controlled heat treatment of the following food-grade carbohydrates: Dextrose (corn sugar), invert sugar, lactose (milk sugar), malt syrup (usually from barley malt), molasses (from cane), starch hydrolysates and fractions thereof (can include wheat), sucrose (cane or beet)." Also, acids, alkalis and salts are listed as additives which may be employed to assist the caramelization process.
jaimek Enthusiast

Caramel coloring in a product made in the us is fine. vanilla is gluten-free too. they thought it might not be because of the alchohol but it is distilled so that is fine. I drink Starbucks vanilla lattes all the time with no problem. I actually just had one this morning!

KaitiUSA Enthusiast

All of the starbucks drinks are gluten free except 1 frappucinno they have. All the syrups, whipped cream, etc is gluten free. I get toffee nut cream frappucinnos all the time :D

celiac3270 Collaborator

And except for the obvious: anything with a suspicious word in the name, such as "brownie"

  • 2 weeks later...
LivinLife Newbie

Coke and Pepsi are fine, I have no starbucks over here so I depend on my colas for the caffine!


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      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
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      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
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    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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