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New Here...what Do You Think

AJSmom

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AJSmom Rookie
AJSmom
Posted

Hi all! My son is 3 1/2, and has been dealing with many many health issues for a very long time. First off he has a congenital heart defect which will need surgery. We also deal with reflux, chronic constipation, asthma which I'm told is the reason for his constant cough.

I work at a day care and one of the moms there has been talking to me about my son. Her daughter is on a gluten free diet. One of the things she has noticed about my son is the dark circles under his eye. He's always been like that as long as I can remember.

What do you think? I'm willing to try out a gluten free diet...it's better then him being on medications for everything.

Thanks for any help/advice/suggestions

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celiac-mommy Collaborator
celiac-mommy
Posted

It can't hurt, but before you do, you might want to ask his doctor to run a celiac panel on him before changing his diet. On the other hand, my son's panel was negative but was diagnosed from his extremely positive dietary response. I'm not sure I'm helping too much :P

AJSmom Rookie
AJSmom
Posted
  • Author
It can't hurt, but before you do, you might want to ask his doctor to run a celiac panel on him before changing his diet. On the other hand, my son's panel was negative but was diagnosed from his extremely positive dietary response. I'm not sure I'm helping too much :P

We've done many many testing and I'm sure this one was one of them. I'll call next week when his office comes back from vacation. I've just heard and read stories of just like your son...testing coming back negative but still having many symptoms.

He has asthma and is on many meds for that...reflux on meds for that....constipation on meds for that. He was off some medications but slowly one by one getting put back on them. I hate the idea of him being on medications for such long time.

Ahorsesoul Enthusiast
Ahorsesoul
Posted

When my kids were young they looked like little racoons. Both are celiacs.

conviviality Newbie
conviviality
Posted
Hi all! My son is 3 1/2, and has been dealing with many many health issues for a very long time. First off he has a congenital heart defect which will need surgery. We also deal with reflux, chronic constipation, asthma which I'm told is the reason for his constant cough.

I work at a day care and one of the moms there has been talking to me about my son. Her daughter is on a gluten free diet. One of the things she has noticed about my son is the dark circles under his eye. He's always been like that as long as I can remember.

What do you think? I'm willing to try out a gluten free diet...it's better then him being on medications for everything.

Thanks for any help/advice/suggestions

I had dark circles under my eyes as a child. I never understood why but was always self-conscious about it. I did not get my Celiac diagnosis until age 39. But now, at 40, no more dark circles. This is not a proper way to diagnose I'm sure, but just thought I would share my own experience with you. Sometimes the symptoms are so subtle that no one notices. The research seems to show that gluten is just plain hard to digest for anyone, so it couldn't hurt to go gluten-free for the whole family. Its not that hard once you get used to it--I promise!

All the best!!

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    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      Hello, @NanceK, I'm glad you're willing to give Benfotiamine with B Complex another go!  I'm certain you'll feel much better.   Yes, supplementation is a good idea even if you're healing and gluten free.  The gluten free diet can be low in B vitamins and other nutrients. A nutritionist can help guide you to a nutrient dense diet, but food sensitivities and food preferences can limit choices.  I can't consume fish and shellfish due to the sulfa hypersensitivity and iodine content, and dairy is out as well.  I react to casein, the protein in dairy, as well as the iodine in dairy.  My Dermatitis Herpetiformis is aggravated by iodine.   Blood tests for B vitamin levels are notoriously inaccurate.  You can have deficiency symptoms before blood levels change to show a deficiency.  I had subclinical vitamin deficiencies for years which affected my health, leading to a slow downward spiral.  Because the B vitamins are water soluble, they are easily excreted in urine if not needed.  It's better to have it and not need it than need it and not have it.   Wheat and other gluten containing grain products have vitamins and minerals added to them to replace those nutrients lost in processing.  Manufacturers add cheap vitamins that our bodies don't absorb or utilize well.  Even normal people can suffer from vitamin deficiencies.  The rise in obesity can be caused by High Calorie Malnutrition, where people eat more carbohydrate calories but don't get sufficient thiamine and B vitamins to turn the calories into energy.  The calories are stored as fat in an effort to ration out diminishing thiamine  stores.    It's time to buy your own vitamins in forms like Benfotiamine that our bodies can use well.   Not sleeping well and fatigue are symptoms of Thiamine deficiency.   I'm certain Benfotiamine with a B Complex will help you immensely.  Just don't take them at night since B vitamins provide lots of energy, you can become too energetic to sleep.  Better to take them earlier in your day.   Do keep me posted on your progress!
    • NanceK
      My only proof

      By NanceK · Posted

      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
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