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Confused Doctor ..

kare

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kare Newbie
kare
Posted

Hi all, Im new here.

My symptoms are: bloated abdomen after i eat ANYTHING, loss of 12 kgs in a few months (un-intentional), unusually gassy, constipated and fatigued (doctors have always told me i was just aneamic).

My doctor sent me for bloodtests, he was certain i would test positive for celiacs though my blood tests came back perfect - even my iron was great! the only thing my blood samples showed were my salt levels, which were unusually low.

the doctor is concerned and he has booked me in for a gastroscopy next month to determine what is happening and if my intestine/bowel has been damaged.

he says it is still possible i may test positive to celiacs with the gastroscopy and other possibilities are a sugar intollerance or lactose intollerance..

he has written on his referral: severe abdominal bloating and weight loss of 12kgs. cause unclear. bloods were unhelpful - all normal. to exclude coeliac and disacchiariose (spelling?) deficiency.

is coeliac similiar to celiacs? and can someone give me some idea how long a gastroscopy goes for and what side effects i may experience after, if any?

thanks in advance!

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psawyer Proficient
psawyer
Posted

Hi and welcome.

Coeliac is a variant spelling of celiac used in the UK and some other countries. They are the same thing.

I was out during my two gastroscopies, so I don't remember how long they took. I had colonoscopies done at the same time, which lengthens the procedure. The preparation for a colonoscopy is not any fun. You should not expect any side effects from either procedure.

ang1e0251 Contributor
ang1e0251
Posted

You might consider posting your blood results here with the lab's ranges. If a person is IGA deficient, the bloodwork appears normal even if you have celiac disease.

The endoscopy just took a few minutes. With the anesthesia, I don't remember any of it. I didn't have any discomfort after. I would do it again without fear.

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

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      Finding gluten free ingredients

      By trents · Posted

      Welcome to the forum, @Kara S! Warrior bread is a grain free bread product. Google it. There are commercial mixes available, I believe, Youtube videos and many recipes. 
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