Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Some Thoughts And Advice - Gastro In 2 Days


Bfromaz

Recommended Posts

Bfromaz Newbie

Hi All

I have been having stomach/bowel issues for over 10 years now. Several visits to ER. Many visits to Doctors. IBS is the diagnosis and nothing ever changes. My symtoms are Bloating ( Severe ), Pain, Nausea, diarhea, difficulty breathing, anxiety etc. In goes the food and all hell breaks loose. Having other more pressing medical issues the stomach issues have been put on hold for years now ( I have severe arthritus/ankylosing in my spine and type II Diabetes ).

On my last pain management visit my doc noticed the bloating and other symptoms and recommended I see a gastro. I see him monday. Knowing the appointment was soon I started looking up my symptoms and got a hit on gluten. This got me thinking...

Being diabetic I routinely drop my carb intake for months at a time. I eat mostly meat, vegetables, eggs and cheese. Thats it. I use this to keep my weight in check and my diabetes controlled. When I eat this way my gastric issues go away.

I'm strongly thinking after seeing the symptoms here and reading a bit that this may be my issue. For 3 weeks now I have been low carbing and no symptoms. On friday night I had a taco salad ( Meat, lettuce, cheese and some taco seasoning ). Right after my meal it started again ( cramps, bloating gas etc ). Then it clicked and I got the seasoning package and read it and it had some wheat in it.

So what do you all think? Low carb diet without gluten symptoms go away. Normal diet and all hell breaks loose. Are there other allergens in food that could cause this? How should I present this to the gastro?

Btw... im a 48 year old male. It would be really nice to get this last demon in my life under control.

Thanks

Bfromaz


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nu-to-no-glu Apprentice

You should definitely have the blood test and go from there and if all else fails, you know that eliminating wheat and other varients makes you feel better! If celiac is a dead end, or you can't find a dr to diagnose you, I would recommend having food allergy testing done. An immediate reaction after consuming could indicate a) celiac or B) additional food allergies ie milk, soy, etc. Good luck, sounds like you are on the right track with recognizing that food is the culprit for you ailments!

ang1e0251 Contributor

You need to be eating gluten for the testing to be as accurate as possible. If you have a blood test this week, take the results with a grain of salt as you've been mostly off gluten for awhile.

You have definately found a key to your problem. It's a pretty simple cause and effect to my way of thinking. Aren't you glad you had that aha! moment?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    2. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    3. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    4. - trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Taking Probiotics but Still Getting Sick After Gluten – Advice?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,212
    • Most Online (within 30 mins)
      7,748

    Melissa McGowan
    Newest Member
    Melissa McGowan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.