Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Update: Reason For Hope?

momxyz

Recommended Posts

momxyz Contributor
momxyz
Posted

first thanks to all of you who have given me sound advice and encouragement. This is an update on my daughter, her story told here:

https://www.celiac.com/gluten-free/index.ph...uten+depression

She is now 8 weeks going gluten free. she wasn't perfect with it early on but she has learned a lot and is motivated and responsible. And it's not me mandating this, she has recognized the benefits.

Improvement in her depression has been gradual, but improvement has been noted by not just me, but others around her frequently. It's been like a subtle and gradual lightening.

She no longer complains about not sleeping well. I have to get her up more often now so she can get to where she needs to be on time.

Her constipation has improved. While she is not totally "regular" she has not had to take laxatives for several weeks now.

We had another pleasant surprise this week. She grew a 1/2 inch over the summer! While that may not sound phenomenal, you have to understand this is a kid who never had the typical "shooting upward" growth spurt; we celebrated when she grew 3/4 of an inch over the course of an entire year. Now she's a half inch taller than me!

I am hoping, so hoping this means something. I am hoping praying that she can now get her period without chemical assistance! And it would be so totally great if that could happen very very soon. (has not had a period since going off BC when depression diagnosed in July)

She has been seeing a psychologist and is to date not on any meds. Although she is feeling better, I am fearful she would still opt for meds as the "quick fix" if offered. She has an appointment with a psychiatrist on 9/23. I will be having a heart to heart with her this week, expressing my views on the value of staying off meds..... but she is almost 18 and wanting to take charge of her life. That is good in many ways but.....

it puts fear into the heart of this mom. If she got her period spntaneously, then this would help me talk to both her and the psychiatrist about the benefit and value of just continueing to stay gluten free w/o meds for a while longer...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

I am so glad to hear she is doing better. Funny how much that 1/2 inch can mean to us when growth has been badly effected. Hopefully the growth will continue and she will continue to improve in the other areas as well. If her depression is easing there is a good chance that it will continue to get better and she will not need the meds.

nasalady Contributor
nasalady
Posted
We had another pleasant surprise this week. She grew a 1/2 inch over the summer! While that may not sound phenomenal, you have to understand this is a kid who never had the typical "shooting upward" growth spurt; we celebrated when she grew 3/4 of an inch over the course of an entire year. Now she's a half inch taller than me!

That's wonderful! So glad to hear about all of the improvements in your daughter! This must be a big weight off your shoulders!

We just got back from the pediatrician's office where we found out that Emma, our 3-year-old failure-to-thrive daughter, has grown a full inch in height since May! Unfortunately she lost about 1/3 of a pound (0.15 kg), but we think that's because of her throat surgery at the end of August. Emma's been gluten free since January....I really think that this is why she grew so suddenly.

So *happy dance* for our daughters and their progress on the gluten free diet!! :D

JoAnn

momxyz Contributor
momxyz
Posted
  • Author
That's wonderful! So glad to hear about all of the improvements in your daughter! This must be a big weight off your shoulders!

We just got back from the pediatrician's office where we found out that Emma, our 3-year-old failure-to-thrive daughter, has grown a full inch in height since May! Unfortunately she lost about 1/3 of a pound (0.15 kg), but we think that's because of her throat surgery at the end of August. Emma's been gluten free since January....I really think that this is why she grew so suddenly.

So *happy dance* for our daughters and their progress on the gluten free diet!! :D

JoAnn

good for Emma! I hope she continues to prosper.

As far as my daughter is concerned, we are at a different end of the spectrum... while she is happy about the 1/2 inch what she is really looking for is an advance from A cup to B cup....but the slight jump upward hopefully will be a precursor to that!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,930
    • Most Online (within 30 mins)
      7,748
    Mhp
    Newest Member
    Mhp
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Bitters for digestion?

      By Wheatwacked · Posted

      Definitely get vitamin D 25(OH)D.  Celiac Disease causes vitamin D deficiency and one of the functions of vitamin D is modulating the genes.  While we can survive with low vitamin D as an adaptation to living in a seasonal environment, the homeostasis is 200 nmol/L.  Vitamin D Receptors are found in nearly every cell with a nucleus,while the highest concentrations are in tissues like the intestine, kidney, parathyroid, and bone.  A cellular communication system, if you will. The vitamin D receptor: contemporary genomic approaches reveal new basic and translational insights  Possible Root Causes of Histamine Intolerance. "Low levels of certain nutrients like copper, Vitamins A, B6, and C can lead to histamine build up along with excess or deficient levels of iron. Iodine also plays a crucial role in histamine regulation."  
    • AnnaNZ
      Bitters for digestion?

      By AnnaNZ · Posted

      I forgot to mention my suspicion of the high amount of glyphosate allowed to be used on wheat in USA and NZ and Australia. My weight was 69kg mid-2023, I went down to 60kg in March 2024 and now hover around 63kg (just after winter here in NZ) - wheat-free and very low alcohol consumption.
    • AnnaNZ
      Bitters for digestion?

      By AnnaNZ · Posted

      Hi Jess Thanks so much for your response and apologies for the long delay in answering. I think I must have been waiting for something to happen before I replied and unfortunately it fell off the radar... I have had an upper endoscopy and colonoscopy in the meantime (which revealed 'minor' issues only). Yes I do think histamine intolerance is one of the problems. I have been lowering my histamine intake and feeling a lot better. And I do think it is the liver which is giving the pain. I am currently taking zinc (I have had three low zinc tests now), magnesium, B complex, vitamin E and a calcium/Vitamin C mix. I consciously think about getting vitamin D outside. (Maybe I should have my vitamin D re-tested now...) I am still 100% gluten-free. My current thoughts on the cause of the problems is some, if not all, of the following: Genetically low zinc uptake, lack of vitamin D, wine drinking (alcohol/sulphites), covid, immune depletion, gastroparesis, dysbiosis, leaky gut, inability to process certain foods I am so much better than late 2023 so feel very positive 🙂    
    • lehum
      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

      By lehum · Posted

      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
    • Hmart
      Is this celiac?

      By Hmart · Posted

      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.