Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Some Of The Test Results Are Back.


Roda

Recommended Posts

Roda Rising Star

Well, at least for now I feel that I can give the celiac a rest for my oldest ds and we will continue to monitor him. I really think that everything is related to not feeling well with his sesonal allergies and his susceptibility to strep. Here are his results:

Gliadin IgA AB-- 4 unit (19 units or less ...Negative)

Gliadin IgG AB-- 1 unit (19 units or less ...Negative)

Tissue Transglutaminase Ab IgA--4 (values greater than 19 positive)

He has had a total IgA last year and is not deficient. I am still waiting on the reticulin IgA Autoantibodies.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nora-n Rookie

Yes, but it is known that at least 20% of biopsy proven celiacs have negative tests...

I know af a little girl (from another forum) who only had the endomysium antibody test positive.

How old is your child?

Often tests are unreliable with children under three because they do not make enough antibodies, but that was why the total IgA was done.

nora

Roda Rising Star
Yes, but it is known that at least 20% of biopsy proven celiacs have negative tests...

I know af a little girl (from another forum) who only had the endomysium antibody test positive.

How old is your child?

Often tests are unreliable with children under three because they do not make enough antibodies, but that was why the total IgA was done.

nora

He is just over 8 1/2 years old. He isn't having any symptoms to indicate a biopsy. He did not have the EMA done because the reference lab would not do it unless the tTG was positive. I had another post about that asking the importance of having it too with the other tests, but noone here would reply. So I did the labs where my insurance would pay. I didn't want the out of pocket expense of out of network. It would have been nice to get some other input though. Oh well. I do the best I can. I don't think this is the issue right now. It was easy to think so since I'm diagnosed, but I can't blame everything on celiac. I have had a pretty good instinct with both of my boys thus far that has served me well and I don't think this is it at this time. Thats not to say that I won't be keeping an eye on things.(I had him retested to include all the tests this time) Thanks for the reply.

lizard00 Enthusiast

Out of curiousity, are you having him tested every year?

I had my son tested last year around this time, and everything came back negative. I believe his tTG was 0. I understand how you feel, it would be easy to blame everything on celiac since I have it. I feel like I walk this line that borders awareness and paranoia... it's crazy.

I'll be seeing his pediatrician in about two weeks for my daughter's one month checkup, and I am going to ask him what his opinion is on the frequency of having him tested. Then I might ask my GI when I see him next... ;)

Roda Rising Star
Out of curiousity, are you having him tested every year?

I had my son tested last year around this time, and everything came back negative. I believe his tTG was 0. I understand how you feel, it would be easy to blame everything on celiac since I have it. I feel like I walk this line that borders awareness and paranoia... it's crazy.

I'll be seeing his pediatrician in about two weeks for my daughter's one month checkup, and I am going to ask him what his opinion is on the frequency of having him tested. Then I might ask my GI when I see him next... ;)

I don't know how frequently I should have him screened. We were having some isolated behavior problems and thought that this could be it. He only had a total IgA and tTG last Nov. so I asked his allergist to run all of the tests this time to cover all the bases. His tTG last Nov was 2. I can completly relate to the awareness bordering on paranoia. Not only do I have celiac, but I work in a hospital too and it can be quite bothersome to know things. Sometimes I think ignorance would be bliss. :lol: No not really, if that was the case, I would still probably be undiagnosed. I guess I just want to make sure if he is going to develop something I want to catch it early and not have him suffer. I have a 4 almost 5 year old too who had the same screening last year as my oldest ds. I have not had him retested yet and will probably wait awhile. My oldest ds's seasonal allergies are really bad this year and I really believe this is the problem. We had a two year period when they were really under control and he was feeling well and not sick. I guess the honeymoon is over. We'll get back on track though.

nora-n Rookie

Hi, sorry, we are not all online here every day...

That case with the little girl with only the endomysium test positive, was on another forum (delphi) so you could get more answers with important questions if you post them several places....maybe someone here in the children folder could have related and answered that it is not uncommon to only have one of the tests positive.

Still, about 20% of celiacs have negative blood tests.

There is another place you can use to test for early gluten issues, it is enterolab. They have a very sensitive IgA ttg and antigliadin stool test, that is where the antibodies show up long before the blood. But they pick it up so early that they can only call it gluten sensitivity, not celiac.

In case you wanted to prusue if gluten is an issue with the one with behaviour issues. They also test for antibodies against milk.

The gene tests give some kind of risk assessment.

The conventional celiac tests have a high cutoff, and this is intentional, so that they only pick up kinda severe celiac damage. They try to make them correlate with biopsy results showing severe villous damage.

nora

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,963
    • Most Online (within 30 mins)
      7,748

    Cheryl minshew
    Newest Member
    Cheryl minshew
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Pasballard
      I have Celiacs and want you to be aware of the amount of weight you can potentially put on if you rely on gluten free snacks, bread etc.,they  are high in carbs.  I put on 25 lbs in a short amount of time.  Whole Foods are the best way to go but I struggle with this.  The cost of gluten free is also a problem.  I love black licorice but most have gluten.  My favorite chili seasoning as well.  The list is endless.  I take  Advil liquid gels and had no idea until I read this.  I hope you do better than I have done.  I feel I am destined to suffer daily no matter what.  My aunt didn’t take care of herself and died from complications.  I hope you can get on a good routine.
    • growlinhard1
      Thank you, I appreciate the response. I'm going to begin the gluten free diet and wait for the biopsy results. I feel fairly certain that it's the right thing for my well being. I will keep you posted.
    • Scott Adams
      The flu vaccine is indeed not 100% effective every year, as its effectiveness varies depending on how well the vaccine strains match the circulating flu viruses. However, even in years when the match is less than perfect, the flu vaccine still provides significant benefits. Studies consistently show that vaccinated individuals who contract the flu often experience milder symptoms, a lower risk of complications, and a reduced likelihood of hospitalization or death compared to those who are unvaccinated. For high-risk groups, such as the elderly, young children, and individuals with chronic health conditions, the flu vaccine remains a critical tool for reducing severe outcomes. Regarding the mention of risks associated with vaccines, it’s important to note that the flu vaccine is generally very safe for most people. Serious side effects are extremely rare, and the benefits of vaccination far outweigh the risks for the vast majority of individuals. If someone has specific concerns about vaccine safety due to medical conditions or allergies, they should consult their healthcare provider to discuss their options. As for alternative measures like a D Lamp (ultraviolet light disinfection), while these can be useful for reducing pathogens in the environment, they are not a substitute for vaccination. The flu virus spreads primarily through respiratory droplets, and personal protection measures like hand hygiene, masking, and improving indoor ventilation can complement vaccination but cannot replace its targeted immune protection.
    • trents
      Because you have already had the "gold standard" test done, and because you have some experiential evidence that removing gluten from your diet causes you to feel better, it would make sense to begin the gluten-free diet as you wait for biopsy results.
    • growlinhard1
      I wasn't given any blood tests. I think I should try the gluten free diet because when I cut it out a few weeks ago for just a couple of days, I know I started feeling better. The difference was actually pretty dramatic. When I learned gluten free eating may cause false negative biopsy results, I went back to gluten full force and feel like you know what × 10. Do you feel it would be okay since the gold standard for diagnosis is behind me or should I wait for biopsy results? In your opinion, of course. I know you can't offer me medical advice.
×
×
  • Create New...